Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sometimes, I Really, Really Wonder.


T.H.

Recommended Posts

T.H. Community Regular

I've heard that a lot of Celiacs are sensitive to soy, have very nasty symptoms to it, etc...

And then I heard this: soy beans are often grown as a rotation crop with wheat, where wheat is harvested and then soy beans are sown in the same field, where they grow and get covered in whatever left over wheat pieces are left on the ground so gluten touches them all over. And they they are harvested with the same harvesters, etc...

So is it just me, or does it seem reasonable to have that brief thought: for some of us, could our sensitivity to soy beans actually be a reaction to severe CC of the soybean crop?

I'd be curious if anyone who is sensitive to soy (not allergic) has reactions that are similar to their gluten reaction, or if they are completely different. Just thinking about this, honestly, as I'm working out what my daughter can eat and what we need to keep her away from.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

I've heard that a lot of Celiacs are sensitive to soy, have very nasty symptoms to it, etc...

And then I heard this: soy beans are often grown as a rotation crop with wheat, where wheat is harvested and then soy beans are sown in the same field, where they grow and get covered in whatever left over wheat pieces are left on the ground so gluten touches them all over. And they they are harvested with the same harvesters, etc...

So is it just me, or does it seem reasonable to have that brief thought: for some of us, could our sensitivity to soy beans actually be a reaction to severe CC of the soybean crop?

I'd be curious if anyone who is sensitive to soy (not allergic) has reactions that are similar to their gluten reaction, or if they are completely different. Just thinking about this, honestly, as I'm working out what my daughter can eat and what we need to keep her away from.

Wow that is quite a thought! I am interested in what others have to say about it.

I think I do have a reaction to most grains though not as intensely as the wheat family. I often wonder if its also a problem of similar CC-ing...

I am not strictly allergic to soy but have been told it is bad for me so I stay away from it. I don't really think its that good for most people unless its fermented and gluten-free of course!.

Meanwhile I am considering hypnosis to help me be less reactive to breathing in dust that is CC with gluten... How far do our reactions go?? Can we intervene and affect the mind/body connection? Somehow as sensitives we need to investigate all these matters...

Bea

mushroom Proficient

I never had itching from gluten, but once I quit gluten soy made me itch terribly with bright red rash. Later this itching and rash was replicated with potatoes, then itching, rash and hives with citrus. Now, it has all changed again, and everything just gives me bloating and a-fib, except for gluten which still gives me that nauseous throw-up kinda feeling, deep down where you can't get rid of it and it makes you retch at the same time. Soy never has done this for me. But I knew I did not tolerate soy (and corn and lactose) before I found out about the gluten. The only common thread I have found to my non-gluten reactions is lectins.

dilettantesteph Collaborator

I think that there is true soy intolerance and there is a reaction to cc. To distinguish them, buy Edaname in the shell. Wash, shell and eat. I can't eat soy containing things with a reaction, but I can eat Edaname like that.

GlutenFreeManna Rising Star

My reaction to soy is mostly different, with some overlapping symptoms. Clear as mud? lol.

With gluten I have neuro reactions AND digestive reactions.

With Soy I have all of the neuro reactions but fewer of the digestive reactions. The reactions also tends to depend on what form the soy is in for me. I can't handle soy flour or eddamame at all (will have neuro and some digestion problems). Soy oil and soy lectin does not give me as bad of a reaction (but I do still have a build up reaction if I eat them on a regular basis so I don't buy products with these in them). When I am eating out I don't worry if fries are cooked in soybean oil. I just worry about cross contamination and if ordering something like a gluten-free pizza crust I do ask if it has soy flour. I eat out so rarely and it's hard enough to be gluten free that it's worth risking that something is cooking in soybean oil (AKA Vegetable oil) if I have a little brain fog or headache later. And sometimes eliminating things cooked with soy oil makes it impossible to eat at a restuarant with a gluten-free menu. I also can get away with snaeaking some chocolate with soy lectin about once a month, but I try not to push my luck. I do keep soy free chocolate subs around, but they are never as creamy and yummy as the choclate with soy added.

In a nutshell soy and gluten are not at all the same for me as far as how strict I am and how severe my reactions are. But that is very interesting about soy and wheat being grown in the same fields. I'm wondering if wheat is also CC'd with soy so that my neuro reactions to gluten are actually due to the soy cc'd in the wheat. It would be intersting to take a poll of people here with neuro reactions to gluten and see how many also avoid soy.

srall Contributor

If I eat too much soy I get eczema and eventually sore joints. Whereas with gluten D, C, brain fog, sore joints, etc etc etc.

I often wonder though if my problem with corn is actually CC. I can't quite figure it out, and I always have a gluten response to it.

However I can eat gluten free oats, in relatively small amounts with no huge side effects. It is all so hard to figure out, I know.

ksymonds84 Enthusiast

I get itchy red splotches on my face and upper chest with soy and soy lecithin. I hate that Orieda has soybean oil coating their french fries. Tried them again over the weekend and splotches the next day. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

I get different reactions, but neither are pleasant. Soy is a standard rotation crop since it puts nitrogen in the soil. So there is always a chance of the last crop grown sprouting some volunteers. And then there is storage on the farm in large silos, using a conveyor belt, hauling by a truck to a collection center and storage, then selling and delivery to a buyer via another truck. Then possibly grinding and packaging in a shared facility with shared equipment. And then people eating the stuff with a shared mouth. I guess we don't have much choice there though. :)

I linked a couple Youtube videos of soy harvesting and corn harvesting below. They both have catchy music to entertain you as you marvel at the precision and deft separation of the various plant types being harvested. Basically anything in front of the machine gets chopped down, cut off, if it fits the size specs blown into the wagon. There are separators on some modern combine models that can eliminate undesirable items like rocks, birds, snakes etc that would gum up the works. They actually sound pretty good on newer more expensive machines. Good for something moving at the speed these things operate that is.

I have never actually run a combine but I watched one on Utube.

Corn eating Method

Open Original Shared Link

Open Original Shared Link

Soybeans in the Farm Ecosystem

Open Original Shared Link

Tofu and soy oil come from soy bean plants that are grown on farms. Many farmers grow soy beans as cash crops that they can send to places such as tofu processing plants. Soybean plants are legumes. Legumes have bacteria on nodules which are on the roots of the plant. The bacteria on the nodules takes nitrogen from the air and fixes it into the soil, so that other plants that require nitrogen can use it as well.

This nitrogen cycle that was breifly discussed above is used in what farmers call a crop rotation. Farmers use soybeans and other legumes in roatations with grass crops such as corn or wheat. Grass crops are unable to take their own nitrogen from the air so they either need the nitrogen in the soil that the legumes provide for them in a crop rotation or they need a chemical fertilizer containing nitrogen. Many farmers choose to use both. Most farmers use a two or four year rotation on their fields. In a two year rotation a farmer will alternate a year of a legume such as soybeans and a year of a grass crop such as corn. In a four year rotation a farmer will alternate back and forth between legumes and grass crops just as in a two year rotation, but instead he will use four differnt crops. For example, a farmer may plant a rotation of soybeans, corn, alfalfa (a legume), then wheat (a grass).

YoloGx Rookie

Well--maybe that in part explains why I don't tolerate grains in general or legumes except for chinese peas or string beans. CC everywhere simply in the growth and processing of grains and legumes!!

Nevertheless I would like to experience less problems simply walking around the dusty aisles of Home Depot for instance... They use glutenous starch in sheet rock etc. etc. etc. Not to speak of getting the gluten-free items next to the bins of wheat etc. at Whole Foods.

I should probably start a new thread on the body/mind connection in relation to CC once I experiment with hypnosis on this subject. My boyfriend already has less migraines from CC as a result of hypnosis for instance. He too is a sensitive celiac.

However in the meanwhile its my belief these CC conditions are inter-related. It is hard to live in a world permeated by gluten--so we all need to do what we can to increase our tolerance of it... whether through mind/body, diet, herbs, supplements, exercise etc.

I don't want to frequently experience what I did recently at a night class-- freaking out because everyone else is sharing cupcakes! And then have someone ask (who knows of my condition) "Oh am I bothering you because I am too close?" I don't think it affected me being there; however it was hard to say since I already was reacting to the gluten from the aisles of Home Depot. Nevertheless it was un-nerving.

Bea

Skylark Collaborator

Responses to allergy or intolerance triggers are definitely affected by stress and fear. You might find Emotional Freedom Technique helpful, Bea. I used it to get my mind/body used to eating milk and soy again once my gut healed. Open Original Shared Link is the original free EFT manual. Sadly, the guy that worked it out has retired and the site he used to run is very commercial now.

That's interesting info on crop rotation with legumes. It makes perfect sense that soy would be used to fix nitrogen in wheat fields.

cassP Contributor

this is all so interesting.. this crop rotation! i wonder if this contributes to corn & soy being issues for so many of us... i also suspect the Genetic Modification messes with our bodies

Marz Enthusiast

Was just thinking this myself - how much of my intolerance to soya could be linked to CC with gluten. I mean if they can find up to 2000ppm of gluten in soy flour, how many ppm of gluten may be in processed soy products made with that flour or derived from the same source?

My reaction to soya does seem different though, and it's similar to oats, in that it truly makes me extremely ill. While gluten will cause pain and nausea etc, usually with an episode or two on the loo a few days on, soy will give me the runs for half a day. At least that seems to be the case - I tried some Ensure powder last week (contains soy, "gluten-free"), and it made me so sick I don't want to touch soya ever again.

And it's really a pity, since it seems everyone *loves* to coat all their meats and dishes with soy sauce - now I have to add another line to my speech at restaurants - no gluten, no wheat flour, yes white flour is wheat, no bread, please don't put any basting or soy sauce on my fillet, thanks... :)

cassP Contributor

Was just thinking this myself - how much of my intolerance to soya could be linked to CC with gluten. I mean if they can find up to 2000ppm of gluten in soy flour, how many ppm of gluten may be in processed soy products made with that flour or derived from the same source?

My reaction to soya does seem different though, and it's similar to oats, in that it truly makes me extremely ill. While gluten will cause pain and nausea etc, usually with an episode or two on the loo a few days on, soy will give me the runs for half a day. At least that seems to be the case - I tried some Ensure powder last week (contains soy, "gluten-free"), and it made me so sick I don't want to touch soya ever again.

And it's really a pity, since it seems everyone *loves* to coat all their meats and dishes with soy sauce - now I have to add another line to my speech at restaurants - no gluten, no wheat flour, yes white flour is wheat, no bread, please don't put any basting or soy sauce on my fillet, thanks... :)

annoying isnt it... we just had a work dinner at Abuelo's ... granted they were very NICE to me and accomadating- told me i couldnt have the fajita steak.... i ask why?... because they sautee it in SOY SAUCE!!!! WHY flavor a mexican styled steak with SOY SAUCE???????? GEEZ

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.