Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Modified Food Starch - Avoid?


Robin-E

Recommended Posts

Robin-E Newbie

I've read conflicting articles about modified food starch, so wanted to check with some of you to see what your experience is with it. I've been avoiding it completely. I was diagnosed in March, but it seems recently that it doesn't take much at all for me to get really sick, so I'm pretty cautious. I've read that modified food starch is usually corn unless specified, but I've seen labels that have both modified food starch and modified corn starch, so I'd assume that mfs is wheat?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



scarlett77 Apprentice

I've read conflicting articles about modified food starch, so wanted to check with some of you to see what your experience is with it. I've been avoiding it completely. I was diagnosed in March, but it seems recently that it doesn't take much at all for me to get really sick, so I'm pretty cautious. I've read that modified food starch is usually corn unless specified, but I've seen labels that have both modified food starch and modified corn starch, so I'd assume that mfs is wheat?

It SHOULD be corn based if it is in the US, however, to be 100% sure you should always check with the manufacturer.

Personally, if it is a main stream widely known US brand I tend to trust it. If it is some unknown small or local brand then I will call and check.

Skylark Collaborator

In the US, if the food starch is derived from wheat it must be declared a "wheat ingredient" on the label.

polarbearscooby Explorer

I find myself avoiding it too because I'm SUPER sensitive...

psawyer Proficient

In the US, as stated, if it is wheat that fact must be clearly disclosed. It is most commonly tapioca* or corn. It is never rye or barley, so in the US if it does not say wheat then it is gluten-free.

*Some people, including some celiacs, are sensitive to tapioca.

polarbearscooby Explorer

In the US, as stated, if it is wheat that fact must be clearly disclosed. It is most commonly tapioca* or corn. It is never rye or barley, so in the US if it does not say wheat then it is gluten-free.

*Some people, including some celiacs, are sensitive to tapioca.

I have a newly diagnosed friend who LOVES tapioca and has been experiencing some glutened symptoms recently...could it be related to the tapioca?

lovegrov Collaborator

It SHOULD be corn based if it is in the US, however, to be 100% sure you should always check with the manufacturer.

Personally, if it is a main stream widely known US brand I tend to trust it. If it is some unknown small or local brand then I will call and check.

As others have said, if it's from wheat It MUST say so. No need to call anybody.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I have a newly diagnosed friend who LOVES tapioca and has been experiencing some glutened symptoms recently...could it be related to the tapioca?

There are people on here who have said they have trouble with tapioca.

jerseyangel Proficient

I have a newly diagnosed friend who LOVES tapioca and has been experiencing some glutened symptoms recently...could it be related to the tapioca?

It's possible to be intolerant to tapioca--I am particularly sensitive to it. It's not related to gluten, but a separate sensitivity. I get a very dry mouth from the time I take a bite and later, stomach pain. It's different from my gluten reaction.

Your friend could try omitting tapioca for a week or so and then trying it alone and see how she feels. This approach is the best way to ferret out problem foods.

julandjo Explorer

There are people on here who have said they have trouble with tapioca.

My daughter and I both have major problems with tapioca.

  • 1 year later...
dustynbob Newbie

How can we be sure the item with the ingredient "modified food starch" is a made in America product? So much has some components made in another country.

psawyer Proficient

How can we be sure the item with the ingredient "modified food starch" is a made in America product? So much has some components made in another country.

You can't, but if it is sold in the US, it must conform to US label regulations, and wheat, if present, must be disclosed. I personally haven't encountered modified wheat starch in over a decade on the diet.

sandsurfgirl Collaborator

I've seen wheat starch a couple of times but clearly labeled.

Tapioca and I are not really friends. I don't get super sick from it but I do get minor issues sometimes. I'm sparing with it and I don't eat it often.

  • 8 months later...
Beth P. Newbie

I've been puzzled by the "modified food starch" for a long time also. Fanta orange pop (and other flavors) say that on the label. & I've always been wary of it. There is a high-end grocery store in my town that has another brand of pop for sale right next to the Fanta. It carries a Gluten-Free label, as if to suggest that the other brands are not. I don't know where Fanta is made, since I don't have a bottle in front of me, but I will stop worrying about it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    2. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,338
    • Most Online (within 30 mins)
      7,748

    Erica Johnson
    Newest Member
    Erica Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.