Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Share How Gluten Free Has Improved Your Life.

SGWhiskers

By SGWhiskers
in Coping with Celiac Disease

Recommended Posts

SGWhiskers Collaborator
SGWhiskers
Posted

Aside from improved health, what positives came about as a result of going gluten free? I'm in the mood for some happy celiac thoughts.

I'll give you 5 of mine.

1) I can make social plans and know I can keep them. No more feeling too exhausted to drag myself out the door.

2) I'm eating less processed foods and switching to chemical free hygine and cleaning products.

3) I went back to work and was successful on the job.

4) My hair has no more split ends and my nails grow pretty.

5) The best one is my surprise pregnancy after 8 years of infertility.

How has being gluten free improved your life?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kwylee Apprentice
kwylee
Posted

1. Blood pressure went from average of 135/90 to avergage of 110/72

2. Lost weight without trying, like my body is normalizing on its own (I don't eat gluten free goodies regularly, just unprocessed, preservative free foods)

3. Energy through the roof

4. Clear thinking and optimistic

5. Not "hot" all the time - now I get cold when everyone else is!!!!

srall Contributor
srall
Posted

Aside from improved health, what positives came about as a result of going gluten free? I'm in the mood for some happy celiac thoughts.

I'll give you 5 of mine.

1) I can make social plans and know I can keep them. No more feeling too exhausted to drag myself out the door.

2) I'm eating less processed foods and switching to chemical free hygine and cleaning products.

3) I went back to work and was successful on the job.

4) My hair has no more split ends and my nails grow pretty.

5) The best one is my surprise pregnancy after 8 years of infertility.

How has being gluten free improved your life?

I LOVE your #5!! Congratulations.

1) More energy

2) No more GI issues EVER.

3) No more brain fog

4) No more migraines

5) Joint pain/arthritis is being managed

6) There are a ton more... But those five immediately come to mind.

WheatChef Apprentice
WheatChef
Posted

5. Not "hot" all the time - now I get cold when everyone else is!!!!

I'm starting to notice the same thing happening to me! Unfortunately I just moved from South Florida up to Oregon to get away from the heat! Now I guess I actually have to bundle up for the winter instead of previous snow days walking around in a tshirt.

Anyways positive effects:

1. Fantastically defined midsection

2. Luscious sheen to hair

3. Can exercise without running out of steam in the first 5 minutes

4. A healthy skin tone!

5. Social phobias are gone and I actually want to be around people now!

Emilushka Contributor
Emilushka
Posted

1. Blood pressure went from average of 135/90 to avergage of 110/72

...

4. Clear thinking and optimistic

My #1 and #4 are the same, as long as we're not counting these in order. And while my blood pressure didn't drop quite THAT low all the time, It's definitely a lot better.

2. I don't have to schedule in extra pooping time in the morning (and I'm not late to my rotations thanks to uncontrollable pooping)

3. My belly feels like a BELLY again and not like a drum

5. I'm no longer worried about eating (as long as I eat foods I've pre-cleared and brought into my home) because I can count on the food to feel good in my body

K8ling Enthusiast
K8ling
Posted

Well, since going gluten-free

I began going to baseball games again, I am not afraid to go on road trips, I like to have "quality time" with my husband (constant upset stomach used to curtail it), my hair isn't falling out anymore, I have enough strength to care for my rambunctious little boy, I don't take Zofran like candy anymore, and I LOVE FOOD AGAIN!!! Being gluten-free has improved my life in so many ways! Also, people don't look at me weird when I say I am sick (again) because I used to always be sick and could never tell anyone what was wrong with me. Now I know!!

Marilyn R Community Regular
Marilyn R
Posted

1. I don't wish I would die anymore, or think about how death would be better than living. I'm very grateful about that.

2. For the first time in 18 months, I'm going to travel to see my mother, who I used to visit cross country every three months come hell or high water. (Hell came.) I'm going to be so happy when I see her!

3. I must admit that I'm happy I haven't pooped my pants in months.

4. I'm happy that I don't have nausea every morning and can go to work and function.

5. I'm happy that it's just food intolerances vs. something reallly horrid, and I'm happy about how good real, fresh, whole food tastes B)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tamika Rookie
tamika
Posted

Hello! Your #1 brought me to tears....i honestly feel like I am dying or something...at 30 years old. I feel horrible. all my tests are negative (EGD negative, colonoscopy negative, celiac panel-negative) All I have is a wheat allergy and a long list of tree/nut allergies. I have had positive results with eliminating wheat and milk for three weeks so I know what I have to do. I was looking for some definitive answers but I don't think I am going to find them. I am so frustrated...I am happy to know I don't have some gastrointestinal cancer but this is so aggravating. I appear to be becoming more intolerant to more foods ie. red dye. When does the madness stop?? Would you happen to recommend a specific elimination diet? thanks for listening.

srall Contributor
srall
Posted

Hello! Your #1 brought me to tears....i honestly feel like I am dying or something...at 30 years old. I feel horrible. all my tests are negative (EGD negative, colonoscopy negative, celiac panel-negative) All I have is a wheat allergy and a long list of tree/nut allergies. I have had positive results with eliminating wheat and milk for three weeks so I know what I have to do. I was looking for some definitive answers but I don't think I am going to find them. I am so frustrated...I am happy to know I don't have some gastrointestinal cancer but this is so aggravating. I appear to be becoming more intolerant to more foods ie. red dye. When does the madness stop?? Would you happen to recommend a specific elimination diet? thanks for listening.

I don't feel at all qualified to recommend a diet to you, but I guess I'm doing it anyway. I think if I were in your shoes, I'd do a whole foods diet, no processed, no grains for awhile. Eat a lot of veggies, some fruit, and meat. Cut out caffeine and alcohol. Give yourself a little bit of time...it takes time, and I bet you'll start to improve. By the way, I was tested negative for celiac, but I 100% believe that that doesn't mean my body can tolerate gluten. My brother tested negative too, and his GI told him he didn't have to stop gluten and he has classic symptoms.

And I agree with above posters that isn't it wonderful to know that this can all be managed with diet? Great, nutritious foods that our bodies were meant to eat. It's not convenient, but it's so much healthier than the typical American diet (assuming you are in the U.S.)

SGWhiskers Collaborator
SGWhiskers
Posted
  • Author

Hello! Your #1 brought me to tears....i honestly feel like I am dying or something...at 30 years old. I feel horrible. all my tests are negative (EGD negative, colonoscopy negative, celiac panel-negative) All I have is a wheat allergy and a long list of tree/nut allergies. I have had positive results with eliminating wheat and milk for three weeks so I know what I have to do. I was looking for some definitive answers but I don't think I am going to find them. I am so frustrated...I am happy to know I don't have some gastrointestinal cancer but this is so aggravating. I appear to be becoming more intolerant to more foods ie. red dye. When does the madness stop?? Would you happen to recommend a specific elimination diet? thanks for listening.

Tamika,

I'm sorry you are feeling so horrible. I understand the feeling of being 30 and thinking you must be dying. I'm glad you've found that making some dietary changes helps. Stick with it. You may also want to ask your doctor about testing you for other autoimmune diseases. If yo have not been to a rhumatologist, make an appointment. Celiac isn't the only disease that can make you feel like you must be dying. Also, get your lab results from the celiac panel. Sometimes, doctors will see low positive scores combined with negative scores and interpret the results as being negative. You also want to make sure your IgA total was tested.

I don't have advice about an elimination diet, I've been making my way blindly through this as well. There are some really knowledgable folks here and I bet if you post a question about elimination diets, they could help you.

I hope you find a way to better health soon. We all know how hard it is to feel sick all the time.

diane64 Apprentice
diane64
Posted

1. I am loving my teaching job again.

2. I have more patience, am calmer, and not anxious.

3. I am sleeping better and am no longer tired all of the time.

4. I no longer have joint pain.

5. The brain fog is gone!!!

Diane

Aside from improved health, what positives came about as a result of going gluten free? I'm in the mood for some happy celiac thoughts.

I'll give you 5 of mine.

1) I can make social plans and know I can keep them. No more feeling too exhausted to drag myself out the door.

2) I'm eating less processed foods and switching to chemical free hygine and cleaning products.

3) I went back to work and was successful on the job.

4) My hair has no more split ends and my nails grow pretty.

5) The best one is my surprise pregnancy after 8 years of infertility.

How has being gluten free improved your life?

11475 Apprentice
11475
Posted

5) The best one is my surprise pregnancy after 8 years of infertility.

Congratulations! What a beautiful surprise :)

kayo Explorer
kayo
Posted

1. No more brain fog or concentration issues

2. No more giant belly, no one asking me when I'm due :blink:

3. Hair and nails growing like crazy, and strong too

4. More prone to laughter than agitation

5. Normal appetite, lesser obsessive thoughts about food (when are we eating? what are we eating? when can we eat again?)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      1

      New issue

      @Jmartes71, Sorry you've been feeling so poorly. Are you taking any medication to treat the SIBO? Are you taking any Benfotiamine? Benfotiamine will help get control of the SIBO. Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks? Carbon Monoxide poisoning...
    2. knitty kitty
      - knitty kitty replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Blood Test for Celiac wheat type matters?

      European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States. In European countries, different cooking methods and longer fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat. Gluten content can...
    3. trents
      - trents replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

      From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound...
    4. knitty kitty
      - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

      Talk to your doctor about switching to an antihistamine, and supplementing essential vitamins and minerals. Dietary changes (low carb/paleo) may be beneficial for you. Have you talked to a dietician or nutritionist about a nutrient dense gluten free diet? It's harder to get all the vitamins needed from a gluten free diet. Gluten containing products are...
    5. Caligirl57
      - Caligirl57 replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

      I’m pretty sure they do. I have been on myfortic, tacrolimus since 2021 for my liver transplant and added prednisone after kidney transplant. I’m going to try to cut back omeprazole to 20 mg a day and then after a week try to stop altogether. Thank you for your help.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,084
    • Most Online (within 30 mins)
      7,748
    BlueIcyRose
    Newest Member
    BlueIcyRose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      New issue

      By knitty kitty · Posted

      @Jmartes71, Sorry you've been feeling so poorly.   Are you taking any medication to treat the SIBO?   Are you taking any Benfotiamine?  Benfotiamine will help get control of the SIBO.  Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks?  Carbon Monoxide poisoning can cause the same symptoms as the flu and glutening.  Doctors have to check venous blood (not arterial) for carbon monoxide.  Are other inhabitants sick, or just you?  Do they leave the house and get fresh air which relieves their symptoms?  
    • knitty kitty
      Blood Test for Celiac wheat type matters?

      By knitty kitty · Posted

      European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States.   In European countries, different cooking methods and longer  fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat.  Gluten content can vary according to where the wheat was grown, growing conditions, when harvested, and local preference, so a blend of both hard and soft wheat is used to make a uniform product.   I moved around quite a bit as a child in a military family.  I had different reactions to gluten in different areas of the country every time we moved.  I believe some wheat breeds and blends are able to provoke a worse immune response than others.   Since European soft wheat doesn't contain as much gluten as American wheat, you may try increasing your intake of your soft wheat products.  A minimum of ten grams of gluten is required to get a sufficient immunological response so that the anti-gluten antibodies leave the intestines and enter the bloodstream where they can be measured by the tTg IgA test.  Your whole wheat bread may only have a gram of gluten per slice, so be prepared...  
    • trents
      Severe severe mouth pain

      By trents · Posted

      From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound is real. If I were you I would aim at cutting back in weekly increments for two weeks at a time rather than daily increments. So, for instance, if you have been taking 2x20mg per day, the first week cut that down to 2x20mg for six days and 1x20 mg for the other day. Do that for two weeks and then cut down to 2x20mg for five days and 1x20 for two days. On the third week, go 20x2 for four days and 20x1 for 3 days. Give yourself a week to adjust for the reduced dosage rather than reducing it more each week. I hope this makes sense. 
    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      Talk to your doctor about switching to an antihistamine, and supplementing essential vitamins and minerals.  Dietary changes (low carb/paleo) may be beneficial for you.  Have you talked to a dietician or nutritionist about a nutrient dense gluten free diet?   It's harder to get all the vitamins needed from a gluten free diet.  Gluten containing products are required to be enriched or fortified with vitamins and minerals lost in processing.  Gluten free facsimile processed foods are not required to be enriched nor fortified.  So we have to buy our own vitamin supplements.   Glad to be of help.  Keep us posted on your progress!
    • Caligirl57
      Severe severe mouth pain

      By Caligirl57 · Posted

      I’m pretty sure they do. I have been on myfortic, tacrolimus since 2021 for my liver transplant and added prednisone after kidney transplant.  I’m going to try to cut back omeprazole to 20 mg a day and then after a week try to stop altogether. Thank you for your help.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.