Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just A Funny Thing My Doctor Said...


Rowena

Recommended Posts

Rowena Rising Star

I had to share this, as I recently asked my doctor for some advice on things. But she openly admitted that she didn't know all the answers... (Mainly it was to my question about facial cleanser) So she referred me to a forum where I could ask the very question I had. Guess which one it was?

Yup you got it. This one. Sorry I just had to share that with you guys. I thought you all would find it funny too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

You've got a GREAT doctor there! It's rare to find one that will admit they don't have all the answers....Hold onto her!

Rowena Rising Star

You've got a GREAT doctor there! It's rare to find one that will admit they don't have all the answers....Hold onto her!

Its true, and she'll be the first to say I need a second opinion, even though she's positive about her diagnosis. (Fact is she has) She also does not remove ANY possibilities from the picture... Which is good because my last doctor did. And she was an arrogant, "I know everything Don't question me, I tell you what you must do and you have no say in the matter."

Jestgar Rising Star

So she referred me to a forum where I could ask the very question I had. Guess which one it was?

Yup you got it. This one.

No pressure or anything gang. Now that we're physician recommended.

jerseyangel Proficient

Yup you got it. This one.

Wow--that's quite the compliment! :D

kareng Grand Master

The boys pediatrician told me he didn't understand their blood tests. What could I find out? ( found out they weren't positive for celiac). A bit frustrating but at least he is willing to listen to new info.

Skylark Collaborator

Wow, that's quite the compliment. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

This is the best place I know of to come for info :D (Not talkin' about me own here :unsure: )

'

Loey Rising Star

I had to share this, as I recently asked my doctor for some advice on things. But she openly admitted that she didn't know all the answers... (Mainly it was to my question about facial cleanser) So she referred me to a forum where I could ask the very question I had. Guess which one it was?

Yup you got it. This one. Sorry I just had to share that with you guys. I thought you all would find it funny too.

Every time I do a google search for information on something it always has at least five links to this forum. It could be because all of you are the smartest folks I've ever met!!!!!!!!!!!!

Sounds like you have a great doctor. I miss my old doctor from NJ. He was compared to House but he just had a dry sense of humor that you had to "get." I got it. He was a brilliant diagnostician and if I had my colonoscopy when he wanted me to (and had not been using Immodium for years and not telling him about it) I'm sure that celiac would have come up a lot sooner. He sent me to a wonderful GI who did all the tests she could. I was bedridden for 6 weeks after taking Augmetin and he thought it was -C-Dif. He sent me to a GI at that point. I was literally moving to a new town/state the day after I got all of my test results. My old GI wanted me to have a capsule endoscopy as soon as I found a new GI. She thought the celiac had gone undiagnosed for a long time an as concerned about organ damage. My new GI didn't think it was necessary. I was all right for about a month following the gluten-free diet and then had a flare. After being in excruciating pain for 5 weeks (and having the pain also move vertically under my breastbone in addition to the abdominal and lower back pain) he finally ordered the test. Still rather dismissive and treating me like a nut job. Then he called me the day after the test (they had told me it would take 2-3 weeks to read the results) and lo and behold they found an ulcer. Total 360 in his attitude. Not dismissive and my calls are returned immediately.

I'm having a biopsy of the ulcer on November 12th. I now live in a VERY small town with a small hospital. He wants to use a special anesthesiologist because of certain meds I'm on. If I still lived in my old town the biopsy would have been done by now because I used a large teaching hospital and they always had the best anesthesiologists. Have to admit the release form was scary. My hubby says it's standard CYA but they might wind up doing more than the biopsy if they find something else.

I just want to get better so I can get a job and have a somewhat normal life. I'm an unemployed elementary and special education teacher (went back to grad school at 50 after having an exciting first career and then being a stay at home mom after having a child at 40). I taught for 4 years while in grad school and can't even imagine doing that right now. I'm also a resource geek so if anyone ever wants me to research anything just let me know (of course some of the links will lead back to this wonderful forum)

Loey smile.gif

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,040
    • Most Online (within 30 mins)
      7,748

    marlee h
    Newest Member
    marlee h
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.