Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Hear Gluten Free Get Grouped With Things Like Vegetarianism


UnhappyCoeliac

Recommended Posts

UnhappyCoeliac Enthusiast

Heard some bimbo on the radio saying...Assumptions about a guy you can make if he takes you to a 'gluten free' and 'vegetarian restaurant'

Was kinda mad, felt like ringing up and explaining the difference between eating for a life style choice and eating a certain way because you are forced to by a disease.

Also heard the skinny model bimbo types yawning on eating gluten free. Some people eat gluten free food... for like a FAD or a fashion and it kinda takes away from the seriousness of it all, these bimbo morons looking for a new crash diet to go on.

Anyone else see people not making the distinction?

ps: Dont know where to put this thread


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sandsurfgirl Collaborator

My favorite is when they think it has something to do with sugar. Just tonight a friend who is a NURSE said to me "Well you might not want to eat that with your gluten diet. It has a lot of sugar."

I'm not on a "gluten" diet and sugar is not my problem.

Some lady today at Sprouts was looking at a gluten free pizza. I told her it was good, although expensive and that there are pizza crust mixes that are cheaper and better. Then I asked if she had celiac and said "No, I'm just trying to watch what I eat."

Well lady, maybe you should try cutting out oh... pizza. I told her if she doesn't have celiac she's better off buying the whole wheat one. EYEROLL

Pac Apprentice

My favorite: "Of course you can eat this ......(cheese, ham, jam, chips, crackers) it's all natural." For some reason people think I just want to eat healthy and gluten is in artificial foods. If it's labeled "no artificial colorants or preservatives" it must be ok for me. :-)

polarbearscooby Explorer

My sister is a vegetarian (by choice) and for the first few months after I was diagnosed she accused me of just making a choice not to eat wheat. Until I had my first major glutening, I was sick as a dog, and everyone around me knew it. After that she's layed off a little.

And she isn't the only one in my family who just ASSUMES I made a choice. It really ticks me off....

T.H. Community Regular

Don't forget organic - you don't have to check the labels of things that are organic, right? They'd never had added gluten or cross contamination. :rolleyes:

polarbearscooby Explorer

Don't forget organic - you don't have to check the labels of things that are organic, right? They'd never had added gluten or cross contamination. :rolleyes:

Oh Gosh! lol How could I forget organic!

Also if it's "low in carbs" I should be able to eat it, right? *DEEP SIGH*

kayo Explorer

I also get sick of people saying, I should eat gluten free too so I can lose some weight.

:rolleyes:

That's when I know they really don't know what gluten is or why people have to stick to a gluten free diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bonnie blue Explorer

I also get the comments from friends and co-workers about the weight loss and how they should do my diet, my reply is always ok the weight loss came from being un-diagnosed for so long, not the gluten free diet. They dont understand the risk of eating gluten,(and yes I have tried to explain many times) so my reply now is just yes I do eat much healthier, and a well balanced diet and exercise is good for everyone. I have even got to the point of eating alone in my office so everyone doesnt comment on my lunch, (heavy sigh) sometimes I just feel so alienated from the rest of the world.

kitgordon Explorer

I also get sick of people saying, I should eat gluten free too so I can lose some weight.

:rolleyes:

That's when I know they really don't know what gluten is or why people have to stick to a gluten free diet.

I've gained nearly 10 lbs. being gluten-free; I assume because my body is actually absorbing fats now. And we all know gluten free cookies, etc. are so lo-cal - NOT! If people want to lose weight, why don't they try eating less, or healthier, instead of imitating sick folks? Geez!

polarbearscooby Explorer

I've gained nearly 10 lbs. being gluten-free; I assume because my body is actually absorbing fats now. And we all know gluten free cookies, etc. are so lo-cal - NOT! If people want to lose weight, why don't they try eating less, or healthier, instead of imitating sick folks? Geez!

HEAR HEAR!

I hate it when people tell me "At least you can loose weight" or "Maybe I should do that and get thin"

It irks me so!

mushroom Proficient

Yeah, the organic bit. Even the markets group gluten free with organic, but not with vegetarian or diabetic necessarily.

I once took an organic gardening glass and we had a potluck, and one of the gals was shocked that I put chicken stock in something and said, Oh, I just assumed it would all be vegetarian :o:blink: As we have found out, never assume anything anywhere. :ph34r:

SGWhiskers Collaborator

It makes me nuts that my new grocery store puts the gluten-free foods with the organic whole wheat products. A big bank of gluten-free and whole wheat all mixed in together. One product I want to buy sits right next to a bag of Wheat Gluten. I find myself wiping down a lot of my cans and bags before I open them just to get the paranoia off them.

flutterby Apprentice

I've had the same experience. My favorite was a vegan acquaintance who said "Oh yeah, dude. Cheer up!!! I TOTALLY know how you feel. I'm vegan, after all."

I explained to him as politely as possible that the difference was that he has a CHOICE.

The best advice I heard was during my initial diagnosis. A close friend told me about her Celiac friend, and how they would just laugh and laugh and laugh when people said things like "OH! BUT YOU CAN'T HAVE EGG THEN!" :lol:

It's also important to give kudos to people for trying, even if they don't get it right.

Loey Rising Star

Heard some bimbo on the radio saying...Assumptions about a guy you can make if he takes you to a 'gluten free' and 'vegetarian restaurant'

Was kinda mad, felt like ringing up and explaining the difference between eating for a life style choice and eating a certain way because you are forced to by a disease.

Also heard the skinny model bimbo types yawning on eating gluten free. Some people eat gluten free food... for like a FAD or a fashion and it kinda takes away from the seriousness of it all, these bimbo morons looking for a new crash diet to go on.

Anyone else see people not making the distinction?

ps: Dont know where to put this thread

Wish I could remember which thread has the video of an Indian doctor talking about just this. That celebrities and other people want to go on the gluten free diet to lose weight but it isn't necessarily healthy for them and it is the ONLY way we can eat. I would love to be able to have a slice of pizza as I remember it ( and I can't even have the gluten-free type right now because I'm off of dairy and tomatoes). Do I like the fact that I did lose weight, yes. Do I like the way I lost it (bedridden for 6 weeks), HELL no! None of us chose to live this life. It's the hand that was dealt us.

OK, I did find one clip about the celebrities using it as a way to lose weight and another clip of a doctor talking about celiac. I couldn't find the original clip I was looking for. I pasted them both down below.

Loey

mbrookes Community Regular

Thank you so much for the link to the doctor talking about gluten problems. Every family member, friend and acquaintance of a Celiac should have to watch that. It would solve a lot of problems for many of us. Thanks again!

srall Contributor

I get the..."Oh, well the co-op sells organic wheat so you could try that."

And then last night my gluten free daughter and I went out to dinner. There is a Latin restaurant that has a lot of "safe" things on the menu. So I spend time with the waiter talking about what we can and can't eat...no croutons on the salad. He was very prepared to discuss what on the menu was gluten free, so imagine my frustration when my daughters pork chop came out with fried onion rings on top. And then the waiter brought us bread and butter. I don't expect everyone to know what gluten is, but he was so informed when discussing what was okay to eat from their menu.

Loey Rising Star

I get the..."Oh, well the co-op sells organic wheat so you could try that."

And then last night my gluten free daughter and I went out to dinner. There is a Latin restaurant that has a lot of "safe" things on the menu. So I spend time with the waiter talking about what we can and can't eat...no croutons on the salad. He was very prepared to discuss what on the menu was gluten free, so imagine my frustration when my daughters pork chop came out with fried onion rings on top. And then the waiter brought us bread and butter. I don't expect everyone to know what gluten is, but he was so informed when discussing what was okay to eat from their menu.

That bites it. I went to a restaurant that my GI recommended for their gluten-free menu except they didn't bring what I ordered out correctly. We had waited so long for the meal that I just ordered a second appetizer.

The Triumph Dining series has cards you can purchase that are laminate and in several languages (cuisines). One side is in English, the other is in the language of the cuisine. I pasted the link to the cards below. Of course if the chef is going to ignore you, what's the point?

Loey

Open Original Shared Link

Loey Rising Star

Thank you so much for the link to the doctor talking about gluten problems. Every family member, friend and acquaintance of a Celiac should have to watch that. It would solve a lot of problems for many of us. Thanks again!

You're welcome! I'm lucky that my husband and son understand my special needs (and that gluten will never be in my house) but when i try to explain it to others I get a glazed look. Glad if you'll be able to show it to someone and have them learn what it means to be on this diet and what it does to us if we're not.

Have a happy gluten free Thanksgiving!

Loey

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    2. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    5. - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,407
    • Most Online (within 30 mins)
      7,748

    H2HPizzaWagon
    Newest Member
    H2HPizzaWagon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.