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Possibly Secondary Allergy?


Becci

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Becci Enthusiast

Is it possible that I could have an additional food allergy? I was dx with Celiac May of last year, but over the last 3 months, I have been nauseated everyday to the point I have lost 10 pounds from not being able to eat.. I am 5'8", and now weigh 136 lbs...

I want to know everyone's opinions on the potential order I should try cutting out to see which it is... What are we more susceptible to?


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Skylark Collaborator

I assume you have ruled out pregnancy?

Stop eating oats if you have them as part of your diet. Try cutting out dairy first, then soy. Those are our biggies. Other problem foods can be corn and the remaining "big 8" allergens - eggs, fish, peanuts, tree nuts, and shellfish.

GFinDC Veteran

Dairy, soy, nightshades, (potatoes, tomatoes, peppers, eggplant), eggs,corn, tapioca, nuts, and so on and on.

mommida Enthusiast

Are you having any other symptoms that could be gallbladder related?

Becci Enthusiast

Hi everyone and thank you for responding...

Okay, from the top.

1.) I have been Trying to conceive for 1 year, but I am positive I am not pregnant.

2.) I haven't eaten oats since last Thanksgiving...

3.) I am going to cut out Dairy first, because I had problems with it a while back..

4.) Thank you for the list. :)

5.) What other symptoms would there be of Gallbladder issues?

T.H. Community Regular

Actually, even before dairy, you might want to check your gluten-free foods and cut out even more gluten. There's a variety of gluten levels in the gluten-free food, and some folks seem to develop a bit more sensitivity to lower levels of gluten after they've been gluten free a while. My daughter definitely had that. She was doing better, and then started getting worse until we called the gluten-free companies and started lowering her gluten levels even further.

Also, if it WAS gluten levels causing trouble, it's likely the dairy would be a problem again, too, since it would mean you're probably lactose intolerant again.

dilettantesteph Collaborator

I would do a whole foods diet, see if you get better and then try adding foods back in.


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Becci Enthusiast

Thank you all... I got glutened last night, so I will start ruling out as soon as its over.

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
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      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
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      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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