Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Did I Do Wrong?


AZGirl

Recommended Posts

AZGirl Rookie

I am feeling terrible tonight and have no idea how I could have been glutened. I had 1 cup of plain yogurt for breakfast followed by dry plain almonds and craisins. For lunch: left over roast beef with veggies that I made, so no chance there, a cup of sugar-free chocolate pudding- I checked the label and finally I took 2 Excedrin Migraine.

I am very diligent so I don't know where I could have messed myself up, but if any of you have an idea please speak up, so I don't do this again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



txplowgirl Enthusiast

I'm sorry you feel so bad, I have heard that craisins are dusted with flour, not for sure.

jerseyangel Proficient

Ocean Spray Craisins are gluten-free. I'm wondering if it might be the sugar free pudding--aspertame can cause symptoms in some people as can sugar alcohols.

GlutenFreeManna Rising Star

What brand of yogurt? Activia has a warning on it that it may contain wheat. Also is it possible that you are casein intolerant?

For the almonds did you buy a brand that is not processed with wheat? Many nuts have a warning that they "may contain wheat" or are processed on equipment that also processes wheat. But that warning is optional in the US, so unless you call them and check you don't know. It's like playing russian roulette if you are super-sensitive to cc. Craisins should be okay gluten-wise (I've never seen any with flour dusted on them anyway) HOWEVER dried fruit and nuts can cause cramping and pain, especially if you are in the early stages of healing--those things are especially hard to digest. I would lay off of raw things like that for a while if that's what you are experiencing. Eat soft foods like steamed veggies.

sunnybabi1986 Contributor

Ocean Spray states that its beverages and sauces are gluten free, but then gives this disclaimer:

"Do Ocean Spray

Lisa Mentor

I agree with Patti that the Crans are gluten free. Please check their website (Oceanspray) to verify, or 1-800-662-3263

Not knowing how long you have been on the diet, but it's often recommended that you give up dairy products for a while, until healing can take place. It can often be re-introduced without issue.

starrytrekchic Apprentice

What type of chocolate pudding? I can't eat snack pack chocolate pudding cups, and I'm not sure why. As far as I can tell, they're completely gluten free, but I've reacted to them all three times I've tried them.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

I have a bag of chocolate covered Craisins and they do not list gluten in their listing, but rather milk and soy.

T.H. Community Regular

The first offenders I'd be looking at would be the almonds (biggest processing CC risk), then the craisins (I don't know them specifically, but many dried fruit has CC issues), then the pudding (only because it's got some extra additives, if it's flavored and gluten free).

The worst gluten reaction I ever had was to pistachios, actually - same as you, I figured they'd be safe, but woah....BAD reaction. My daughter and I both were very ill, yuck.

Good luck - hope that your reaction passes quickly

Lisa Mentor

The first offenders I'd be looking at would be the almonds (biggest processing CC risk), then the craisins (I don't know them specifically, but many dried fruit has CC issues), then the pudding (only because it's got some extra additives, if it's flavored and gluten free).

The worst gluten reaction I ever had was to pistachios, actually - same as you, I figured they'd be safe, but woah....BAD reaction. My daughter and I both were very ill, yuck.

Good luck - hope that your reaction passes quickly

With due respect, do you have any substantiated evidence for your "offenders"? Many people depend on the information found here. Links or citations are welcome.

Many companies have been friends of people with food allergies. Ocean Spray is one of them. As always mentioned here, every one is different. But, please do your research.

Board Rule # 5

https://www.celiac.com/gluten-free/index.php?app=forums&module=extras&section=boardrules

* Any claims you make here should be based on legitimate sources, or be expressed as opinion, experience, or inquiry. You should remain on topic and be consistent with the theme of the forum as a whole.

eatmeat4good Enthusiast

I am feeling terrible tonight and have no idea how I could have been glutened. I had 1 cup of plain yogurt for breakfast followed by dry plain almonds and craisins. For lunch: left over roast beef with veggies that I made, so no chance there, a cup of sugar-free chocolate pudding- I checked the label and finally I took 2 Excedrin Migraine.

I am very diligent so I don't know where I could have messed myself up, but if any of you have an idea please speak up, so I don't do this again.

I would suspect the aspartame or sweetener in the sugar free pudding. It could also be sulphites if the craisins contained sulphites. Many dried fruits do contain sulphites and these are known to cause headache. I don't have a particular reference for you other than I googled suphites when I had such reactions. Good luck and I hope it passes quickly.

Marz Enthusiast

I'd suspect the pudding - I have had a very strong reaction to chocolate mousse pudding before. No gluten warning on it, made by a company I trust, so I assume no gluten was intentionally added. But... they do make lots of puddings containing wheat as well, so I think shared lines. They didn't warn about it, but it's fairly obvious that is the case.

Of course, I've also had creme brule puddings by the same company, and those were 100%, so perhaps it was some other ingredient disagreeing with me (I have a bad soya intolerance as well....)

AZGirl Rookie

You all are amazing!! Thank you for all the ideas and information!!!

I read the back of the craisen package, which was from WalMart, and it said "may contain traces of wheat." We also have a bag of Ocean Spray that says "Gluten-free" and made in a gluten free facility. I'm pretty sure that must have been it. I haven't been having problems with almonds or the SF pudding packs. I am logging my food and reactions, so maybe somewhere down the road I'll have more solid information about what happened yesterday. I am feeling a lot better today.

I had no idea that my new life would include company phone calls and researching every bite that goes in my mouth, but on the bright side I now know I have some control over how I feel.

AZGirl Rookie

Okay everyone just a little update. I have been feeling very good for the last few days and again today was struck by gluten unintentionally. Today when reviewing this posting I noticed a common food item- the sugar free pudding pack. I'm still not sure it's the culprit, but I went to Hunt's website to explore and they do not give the SF chocolate pudding a gluten free label. I couldn't find anything in it's ingredients that make me think it has gluten in it, but they do label other puddings in their line as "gluten free."

I know that others have had issues with pudding packs, so for now I think I'm going to avoid them.

Just so you know my day included:

Plain yogurt, a banana, coffee, lemon chicken (homemade), wild rice and green peas.

Oddly my reaction took a little while to occur. I usually know if I am eating something with gluten within the first 3-5 bites. I get very intense stomach spasms right away and the bloating begins.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    2. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,340
    • Most Online (within 30 mins)
      7,748

    Abbyyoung417
    Newest Member
    Abbyyoung417
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.