Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Am Ready To Eat Gluten!

cap6

By cap6
in Coping with Celiac Disease

Recommended Posts

cap6 Enthusiast
cap6
Posted

Here I thought I had the perfect "recipe" for my chronic constipation. It worked for about 2 months and then just quit. Right now I think I would eat some gluten just to get D - anything but this C. I have been living on 3 Ducolax, every night for 2 weeks. The dr gave me Lactulose on Friday but that isn't working. After 6 days of little to no poop I got desperate and did the "colon cleanse" yesterday. Drink two 64oz gatorades and two of the 238 mg bottles of miralax. Well, it helped a little but today when ever I eat something I am bent over with bloating. The dr office just brushes me off so don't know if I can get in to see the dr tomorrow. I am getting pretty desperate!

Oh... I just had to vent. I have been gluten-free since March & doing pretty good - except for this C!!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shopgirl Contributor
shopgirl
Posted

Have you looked for other foods that could be causing it? Dairy/casein? Soy? Are you eating plenty of leafy greens, fruit, vegetables? Drinking a good amount of water? Exercising?

C was my number one gluten symptom and it hasn't totally eased off since I went gluten-free a couple months ago but I can alleviate it by eating a big spinach/lettuce salad every day with a good serving of plain olive oil on top. Fruits and veggies throughout the day. Water.

Give us a few more details and we might be able to help but don't go back to gluten. Not worth it.

bridgetm Enthusiast
bridgetm
Posted

I'm scheduled for a colonoscopy on the 30th out of concern of Crohn's or some other IBD (upper scope, 2 MRIs and a pill cam showed no abnormalities). The thought of eating a real Christmas cookie is looking more attractive than 3 dulcalax, 64 oz of Gatorade and Miralax and magnesium bromide. Who needs drugs when wheat protein could be incredibly successful?? Of course, I'll go the drug route... at least they won't put me to bed for 48 hours.

I can relate to your frustration though. My main symptom with gluten was diarrhea. When I get trace CC'd consistently (happened a few days in a row last week) I get the D but almost simultaneously I also get C. It feels like C, like my system had just shut down, but I'll still get D-like BMs. I make at least one meal a day a simple bowl of white rice with some salt and, of course, lots of water throughout the day helps to balance things out.

mamaw Community Regular
mamaw
Posted

I feel your pain! I was in the hospital for aweek because of thet same issue.... I have no problems -- its just I have weak bowel muscles... I've been checked & tested many times. My dad had the same issue. Here is what I do: miralax twice a day & mineral oil as dirested. Once I start being reg or the stool gets like the big D I slack off a day or more then start back up with miralax once a day.

good luck...

cap6 Enthusiast
cap6
Posted
  • Author

Thanks for your replies. I do feel like just curling up and crying like a baby at times.

I drink a lot of water, 5 or 6 bottles a day as am always very thirsty. Water is about all I drink other than a glass of wine here and there.

Food wise - not much what I would call "junk". Veggies, fruit, chicken mostly. We do very little processed stuff any more, our dinners and stuff are all well balanced. Since I can't eat close to all of the advised serving of healthy stuff every day I figure there is no room for the junk or processed stuff.

Metamucil 2 x's a day. Flax seed oil & probiotic every day.

I don't eat much dairy -about all would be a bit of cheese sprinkled on a meal. Don't like milk and use very little butter. Don't use soy that I am aware of but am going to check all of the stuff in the cupboard for any hidden ingredients that I may have missed.

Have had this C issue on and off all of my life but never quite as bad as right now. I am going to try to get in to see the dr today but I think they are getting tired of seeing me every couple of months. But what else is there to do? It's weird as last year I missed Christmas as was so very sick (not diagnosed yet) and feel like "here it comes again". I am not trying to be negative I just feel very negative today. Usually am a pretty up beat person but I swear there are times when this disease really tests you!

As for a cookie - even a bite is sounding like a welcome relief right now!

polarbearscooby Explorer
polarbearscooby
Posted

Its good to know I'm not the only one, because I've had times when Ive considered eating gluten just to go...but I've been to embarrassed to ask about it...

I've had the issue my whole life, and it got worse after my gallbladder was taken out. I actually ended up in the ER because we though I might have busted an internal stitch, but my doctor told me my entire bowel, all the way up to my stomach, was um. Full. Then two years later I got diagnosed and I was free of the D and the C....until my first glutening, then it happens like clock work, D 30 mins after for 2 hours, then after that C for up to a week.... and once it's all gotten out of my system I'm fine until my next accident.

I ALWAYS drink plenty of water, we buy by the case now, I drink 4-6 bottles a day...

I eat veggies (although probably not as much as I should...)

I don't drink milk, the only dairy I get is from a vitamin and cheese on things like Tacos and Pizza :) (what?! I'm a college student! lol)

Anyway thank you for finally breaching this subject!!

cap6 Enthusiast
cap6
Posted
  • Author

my pleasure. Lol !!! I think that this is a topic that concerns all celiacs to some degree but not necessarily one that is easy to bring up. But desperation does force us I guess and it's good to feel so safe to talk on this board.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


polarbearscooby Explorer
polarbearscooby
Posted

my pleasure. Lol !!! I think that this is a topic that concerns all celiacs to some degree but not necessarily one that is easy to bring up. But desperation does force us I guess and it's good to feel so safe to talk on this board.

Very true! :)

Thanks for having that courage!

jenngolightly Contributor
jenngolightly
Posted

Here I thought I had the perfect "recipe" for my chronic constipation. It worked for about 2 months and then just quit. Right now I think I would eat some gluten just to get D - anything but this C. I have been living on 3 Ducolax, every night for 2 weeks. The dr gave me Lactulose on Friday but that isn't working. After 6 days of little to no poop I got desperate and did the "colon cleanse" yesterday. Drink two 64oz gatorades and two of the 238 mg bottles of miralax. Well, it helped a little but today when ever I eat something I am bent over with bloating. The dr office just brushes me off so don't know if I can get in to see the dr tomorrow. I am getting pretty desperate!

Oh... I just had to vent. I have been gluten-free since March & doing pretty good - except for this C!!!!!

Are you only gluten-free? Dairy, soy, or corn might be causing constipation. That's what happens to me.

cap6 Enthusiast
cap6
Posted
  • Author

I eat little to no dairy but will take a look at the corn & soy. Thank you!

sandsurfgirl Collaborator
sandsurfgirl
Posted

Get a good old fashioned enema. Not the little bottle of Fleet's. Get the one that's like a hot water bottle but it has a tube attached. It is natural, safe and the best thing to get immediate relief without taking more medications, etc.

It holds like a quart of water but only a little bit will go in at a time. This is gross, but hey we're celiacs. We dont' care right? The best thing to do is to lay on your back first. Then after you go to the bathroom, lay on your right side. Bathroom. Tummy or hands and knees. Bathroom. Then left side.

You'll feel so much better if you try it.

cap6 Enthusiast
cap6
Posted
  • Author

gulp! I am ready for that step. Also have a dr appt on thursday. Here's hoping something breaks loose. No pun intended!

Judy3 Contributor
Judy3
Posted

Glad to know that I'm not the only one!!! I went from D 15 times a day before the gluten free diet and now it's C most of the time...

I thought it was just me!!

:lol:

cap6 Enthusiast
cap6
Posted
  • Author

do we really want to talk about it? lol I've never discussed so many bodily functions before going gluten-free!!

ravenwoodglass Mentor
ravenwoodglass
Posted

I eat little to no dairy but will take a look at the corn & soy. Thank you!

Good idea to give up the soy. You maybe should give them up one at a time. Soy was the C offender for me. Even a little bit binds me up painfully for days. My system doesn't tolerate flax seed in any form so I couldn't use anything with that for relief.

cap6 Enthusiast
cap6
Posted
  • Author

soy is being cut as of now. I am trying to get a referral to see the GI at the Celiac Foundation in San Diego. My dr approved it now if only my insurance will.

FooGirlsMom Rookie
FooGirlsMom
Posted

Along with the corn & soy for allergic reacion, do you eat the higher fiber grains like quinoa, buckwheat, etc? Rice can be constipating (that's why I'm eating it :) I have the opposite problem). Winter is difficult sometimes but along with the fiber, drinking your 64+ ounces of water a day should help.

Sure hope you feel better soon!

FooGirlsMom

Gutsy Girl Rookie
Gutsy Girl
Posted

Hey, something caught my eye in the OP's post. You drink wine once a day or sometimes.

I've found it hard to find gluten free wine. Please correct me, others, if I'm wrong. But wine is very often CC and on the general no-no list unless you've DEFINITELY found a brand that is 100% gluten free.

Is it possible that this is a source of the problem?

Looking for answers Contributor
Looking for answers
Posted

I'll add one more thought...are you getting enough good fats? Sometimes the lack of it can really bind me up. Avocados, olive oil, fish oils, etc really help.

ravenwoodglass Mentor
ravenwoodglass
Posted

Hey, something caught my eye in the OP's post. You drink wine once a day or sometimes.

I've found it hard to find gluten free wine. Please correct me, others, if I'm wrong. But wine is very often CC and on the general no-no list unless you've DEFINITELY found a brand that is 100% gluten free.

Is it possible that this is a source of the problem?

Wine shouldn't generally be an issue. Wine coolers in the US are a malt beverage and those are of course out. There has been occasional talk about wine barrels and a flour paste used to seal them but I think that is rare. Wine does however contain sulfites naturally and some people are sensitive to those but that is not a gluten issue.

cap6 Enthusiast
cap6
Posted
  • Author

wine has never been an issue - thank goodness! And I'm glad to hear it comfirmed as gluten-free. Whew! :P I am going to look at the fats as I don't use a lot of fats. I need to learn what & how to use properly. I have never been much of a cook so along with Celiac comes learning to cook!

Thank you all so much for the encouragement.

shopgirl Contributor
shopgirl
Posted

wine has never been an issue - thank goodness! And I'm glad to hear it comfirmed as gluten-free. Whew! :P I am going to look at the fats as I don't use a lot of fats. I need to learn what & how to use properly. I have never been much of a cook so along with Celiac comes learning to cook!

Thank you all so much for the encouragement.

Olive oil helps. Put a good table spoon of it on a green leafy salad. Some people even eat it straight before bed.

Sometimes bad fats can help too. I don't eat a lot of red meat but a homecooked hamburger hasn't failed me yet.

Marz Enthusiast
Marz
Posted

Aaah, I feel your pain :( I only ever suffered from c after going gluten free! Strange but true :(

I've also thought sometimes C is worse than D, because it's not just one or two episodes on the loo, it affects you for several days!

I found that Magnesium supplements (like for sportsmen) helped a lot, I have one that also includes Vit B - needed for Mg absorption. I was also having muscle twitches/cramps, which led me to believe I had a Mg deficiency - not sure if you suffer from this as well?

Do a search on this forum, you need Mg with amino acids, or something else, not Magnesium Oxide because that doesn't get absorbed in your intestine. You need the Mg in your muscles, not inside your intestine. Basically Mg is essential for smooth muscle function, and there's a theory that with celiacs you don't absorb as much Mg as you need, hence the extra supplement.

Don't take supplements if you have a kidney problem though- Mg is excreted via kidneys, and if you have kidney disease etc, the Mg can build up to toxic levels in your body.

Once your body has enough Mg, your intestines should start contracting properly and get things "moving" :)

I also found flours, brown rice, too much fiber can cause constipation. Like brown rice, bananas, pea/buckwheat flour. Not sure if you're eating a lot of baked goods/gluten-free substitutes? Some people find extra fiber actually worsens the problem instead of making constipation better.

I'm sure you're getting enough fiber, I think most celiacs get lots of fruit/veggies in their diet ;)

cap6 Enthusiast
cap6
Posted
  • Author

that's an interesting thought Marz. Several years ago I went through a period of time where I had leg twitches, thought it was restless leg syndrome but added mg & potassium & it went away. Eventually dropped the supps and had no more trouble, however, I think that I will mosey over to the health food store & check out some mg with the amino. What you said makes perfect sense. Thanks

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease. It will not show if you have active Celiac disease. Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies. The...
    2. trents
      - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases...
    3. McKinleyWY
      - McKinleyWY posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

      Hello all, I was diagnosed at the age of 2 as being allergic to yeast. All my life I have avoided bread and most products containing enriched flour as they contain yeast (when making the man made vitamins to add back in to the flour). Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat...
    4. trents
      - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you...
    5. Peace lily
      - Peace lily replied to AristotlesCat's topic in Super Sensitive People
      118

      Gluten Free Coffee

      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,238
    • Most Online (within 30 mins)
      7,748
    tcpb
    Newest Member
    tcpb
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Accuracy of testing concerns

      By knitty kitty · Posted

      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Accuracy of testing concerns

      By trents · Posted

      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Accuracy of testing concerns

      By McKinleyWY · Posted

      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      A little about me and my celiac disease

      By trents · Posted

      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Gluten Free Coffee

      By Peace lily · Posted

      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.