Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ok.. Gotta Rant..


Nor-TX

Recommended Posts

Nor-TX Enthusiast

I work in an elementary school. Today certain staff were supposed to bring in treats - it was my day. I brought in gluten-free/dairy free hummous and gluten-free riceworks chips and labelled the platter gluten free and dairy free.

Our school nurse was in the room stuffing herself with rice krispie squares, melted cheese from the inside of a bread bowl and when I pointed out what I brought she said, oh good, because I can't eat wheat. I told her that my platter was gluten free but I then pointed out that the rice krispie treats and the melted cheese she was eating had gluten. She told me in a condesending manner that no, they are RICE Krispies... hence no wheat, and the cheese was ok because she scooped it from the center of the bread bowl. I tried to point out some issues and she finally said, "No, it is just the wheat in bread that she can't eat!!!" This woman is the school nurse???!!!

The staff always makes me feel like I am just trying to be difficult because I don't eat their food and usually bring my own treats. I just don't even bother going in to the lounge when food has been brought in... it's just now worth it. I gotta say, not sure which is harder - dealing with the public or dealing with the diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenngolightly Contributor

I work in an elementary school. Today certain staff were supposed to bring in treats - it was my day. I brought in gluten-free/dairy free hummous and gluten-free riceworks chips and labelled the platter gluten free and dairy free.

Our school nurse was in the room stuffing herself with rice krispie squares, melted cheese from the inside of a bread bowl and when I pointed out what I brought she said, oh good, because I can't eat wheat. I told her that my platter was gluten free but I then pointed out that the rice krispie treats and the melted cheese she was eating had gluten. She told me in a condesending manner that no, they are RICE Krispies... hence no wheat, and the cheese was ok because she scooped it from the center of the bread bowl. I tried to point out some issues and she finally said, "No, it is just the wheat in bread that she can't eat!!!" This woman is the school nurse???!!!

The staff always makes me feel like I am just trying to be difficult because I don't eat their food and usually bring my own treats. I just don't even bother going in to the lounge when food has been brought in... it's just now worth it. I gotta say, not sure which is harder - dealing with the public or dealing with the diet.

I vote "public."

kareng Grand Master

I work in an elementary school. Today certain staff were supposed to bring in treats - it was my day. I brought in gluten-free/dairy free hummous and gluten-free riceworks chips and labelled the platter gluten free and dairy free.

Our school nurse was in the room stuffing herself with rice krispie squares, melted cheese from the inside of a bread bowl and when I pointed out what I brought she said, oh good, because I can't eat wheat. I told her that my platter was gluten free but I then pointed out that the rice krispie treats and the melted cheese she was eating had gluten. She told me in a condesending manner that no, they are RICE Krispies... hence no wheat, and the cheese was ok because she scooped it from the center of the bread bowl. I tried to point out some issues and she finally said, "No, it is just the wheat in bread that she can't eat!!!" This woman is the school nurse???!!!

The staff always makes me feel like I am just trying to be difficult because I don't eat their food and usually bring my own treats. I just don't even bother going in to the lounge when food has been brought in... it's just now worth it. I gotta say, not sure which is harder - dealing with the public or dealing with the diet.

I would have said something like "I know that even the barley malt in the Rice Krispies and the crumbs in the bread bowl will cause an immune response and distruction of my intestines."

Gemini Experienced

I work in an elementary school. Today certain staff were supposed to bring in treats - it was my day. I brought in gluten-free/dairy free hummous and gluten-free riceworks chips and labelled the platter gluten free and dairy free.

Our school nurse was in the room stuffing herself with rice krispie squares, melted cheese from the inside of a bread bowl and when I pointed out what I brought she said, oh good, because I can't eat wheat. I told her that my platter was gluten free but I then pointed out that the rice krispie treats and the melted cheese she was eating had gluten. She told me in a condesending manner that no, they are RICE Krispies... hence no wheat, and the cheese was ok because she scooped it from the center of the bread bowl. I tried to point out some issues and she finally said, "No, it is just the wheat in bread that she can't eat!!!" This woman is the school nurse???!!!

The staff always makes me feel like I am just trying to be difficult because I don't eat their food and usually bring my own treats. I just don't even bother going in to the lounge when food has been brought in... it's just now worth it. I gotta say, not sure which is harder - dealing with the public or dealing with the diet.

One of the things which has never, even after almost 6 years gluten-free, failed to amaze me is the general level of ignorance regarding cc from most people I encounter with regards to Celiac. Most people seem to grasp the idea that someone with a peanut allergy cannot come into contact with a peanut, on any level, or they could die on the spot. Maybe that's what it takes for people to get it? :blink:

I realize that Celiacs can touch bread and have bread in their presence without an issue but why anyone would think you can eat around the gluten and be fine is mind blowing. Would they do that with something that had salmonella bacteria in it? I hardly think so. I have also found that it's medical people in particular who are the most ignorant or in denial about things and then when you point something out, nicely, they get all bent out of shape because they automatically assume they know more than you do about these things.

As much as I would like to help others learn as much as they can about their condition, I have stopped helping people, unless they ask me for help. It just isn't worth the aggravation. As for those people who like to make us look difficult with regards to food issues, the problem is theirs. I think there are many who resent those who have self control over what they eat and don't have a hissy fit because we can't eat the donuts. What I get at work are questions from people as to why I won't eat the frosting off the cake when the other Celiac in our group does? I always reply that I am not stupid, that's why! :P

India Contributor

Maybe I'm missing something here, but wasn't the nurse saying only that she had couldn't eat wheat? I agree that as the school nurse, she should have a better understanding of coeliac disease, but she seemed to be describing her own condition as a wheat intolerance, not a problem with gluten. It may be that she can eat barley products or even tolerate small amounts of wheat.

Gemini Experienced

Maybe I'm missing something here, but wasn't the nurse saying only that she had couldn't eat wheat? I agree that as the school nurse, she should have a better understanding of coeliac disease, but she seemed to be describing her own condition as a wheat intolerance, not a problem with gluten. It may be that she can eat barley products or even tolerate small amounts of wheat.

If the school nurse cannot eat wheat, then the Rice Krispies and bread bowl would have been a no-no. Even if she has an allergy vs. Celiac, those foods are a wheat bomb and would cause her a problem....if she really does have a problem. Wheat allergy can be as bad as Celiac....the reaction may be different but wheat should not be consumed.

notme Experienced

I tried to point out some issues and she finally said, "No, it is just the wheat in bread that she can't eat!!!" This woman is the school nurse???!!!

seriously!! ok, is this because: WE know more about this disease than most medical professionals?? the nurse (at my GI's office) called to give me my test results and then when i had questions for her she referred me to..... umm...... HERE! last month i had bronchitis that wasn't getting any better so i went to my doctor's office and saw one of the nurse practitioner to get antibiotics. when she was writing my prescription she checked my drug allergies and i told her to add gluten to the list because i have celiac disease. she acted like she had never heard of it and i (in shock!) explained to her what i could and couldn't ingest. i said, "haha i even had a bad reaction to lip gloss" and she says, (sarcastically!) "you can't even *touch* it???" i don't know where she applies her lip gloss. :o maybe her butt, because when i gave the office girl my chart back, i saw that the np had written "celiac sprue" (i never say 'sprue') on it so *obviously* she had heard of it. maybe she slept through that class.......


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Kellogg's Rice Krispies ingredients, taken from their web site:

RICE, SUGAR, SALT, MALT FLAVORING, IRON, ASCORBIC ACID (VITAMIN C), ALPHA TOCOPHEROL ACETATE (VITAMIN E), NIACINAMIDE, VITAMIN A PALMITATE, PYRIDOXINE HYDROCHLORIDE (VITAMIN B6), RIBOFLAVIN (VITAMIN B2), THIAMIN HYDROCHLORIDE (VITAMIN B1), FOLIC ACID, VITAMIN B12, VITAMIN D.

There is no wheat. The gluten comes from the fourth ingredient, malt flavoring. It's barley.

Nor-TX Enthusiast

I heard the nurse telling another staff that she can't eat wheat because of the gluten in it. To me, that means she needs to be on a gluten free diet. She is always complaining of headaches and body aches... now I know why.

jerseyangel Proficient

I heard the nurse telling another staff that she can't eat wheat because of the gluten in it. To me, that means she needs to be on a gluten free diet. She is always complaining of headaches and body aches... now I know why.

She's only fooling herself ;)

kayo Explorer
I gotta say, not sure which is harder - dealing with the public or dealing with the diet.

The public, hands down, no contest.

lynnelise Apprentice

I was going to say that I have a friend who gets sinus congestion when she eats a lot of wheat so while she avoids it for the most part she will occassionally eat white bread (for some reason enriched bread doesn't cause as bad of a reaction in her, only whole wheat). I thought maybe the nurse had a similar situation but since you've clarified that she said it was the gluten causing her reaction then it would be in her best interest to not be so rude and to accept your help!

I agree the public is worse than dealing with the diet.

When I bring gluten free dips with crackers or chips it never fails that someone will dip a piece of bread or a regular cracker in there. Then they act like they don't know why I can't eat anymore...Infuriating!!!

Nor-TX Enthusiast

I was going to say that I have a friend who gets sinus congestion when she eats a lot of wheat so while she avoids it for the most part she will occassionally eat white bread (for some reason enriched bread doesn't cause as bad of a reaction in her, only whole wheat). I thought maybe the nurse had a similar situation but since you've clarified that she said it was the gluten causing her reaction then it would be in her best interest to not be so rude and to accept your help!

I agree the public is worse than dealing with the diet.

When I bring gluten free dips with crackers or chips it never fails that someone will dip a piece of bread or a regular cracker in there. Then they act like they don't know why I can't eat anymore...Infuriating!!!

Yep, their comment is usually... "Oops... sorry, a little won't hurt you." and then they giggle.

Salax Contributor

Yep, their comment is usually... "Oops... sorry, a little won't hurt you." and then they giggle.

Oh I hate that! It's they think its a joke or its a fun/funny thing..hehe, haha, giggle....When I want to do is slap them when they make that ignorant comment. It's like you want to grab their food and sprinkle it with a arsenic and give it back to them while saying, "Oops sorry, a little won't hurt you." then giggle. OOOOH that would feel good. :P

Gemini Experienced

Kellogg's Rice Krispies ingredients, taken from their web site:

RICE, SUGAR, SALT, MALT FLAVORING, IRON, ASCORBIC ACID (VITAMIN C), ALPHA TOCOPHEROL ACETATE (VITAMIN E), NIACINAMIDE, VITAMIN A PALMITATE, PYRIDOXINE HYDROCHLORIDE (VITAMIN B6), RIBOFLAVIN (VITAMIN B2), THIAMIN HYDROCHLORIDE (VITAMIN B1), FOLIC ACID, VITAMIN B12, VITAMIN D.

There is no wheat. The gluten comes from the fourth ingredient, malt flavoring. It's barley.

Thanks for clarifying that, Peter. As a non-cereal eater, I assumed krispies had wheat, as everyone with Celiac seems to avoid it. However, I would also assume that the bread bowl did contain wheat, and maybe barley also, but I know there is definitely wheat in bread. That's such a no-brainer, it's mind boggling to think anyone who avoids wheat would do that but they do.

cap6 Enthusiast

How about when they say "oh, you can't eat it? Well, too bad. I can" and then stuff it in their face. grrrrr!!

mushroom Proficient

Just picture boils erupting all over their body, their fingers crippling into arthritic claws, their bodies doubled over in cramping pain, hives and DH erupting and their trying to scratch them with their arthritic limbs, and say, "Enjoy" :lol:

Juliebove Rising Star

Did she say why she can't eat wheat? BTW, Rice Krispies do not contain wheat. Gluten yes. But wheat? No.

My mother is not supposed to eat wheat. For her it is not an allergy but it does bother her athritis. She does eat it though and much like the nurse thinks of it only in things like bread. She doesn't even think of it in things like pancakes which also contain eggs, which she IS allergic to.

People avoid things for different reasons. But when they do things like that, it makes it really tough for the rest of us who really do have to avoid things because of problems like celiac and allergies.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    2. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    3. - McKinleyWY posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    4. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    5. - Peace lily replied to AristotlesCat's topic in Super Sensitive People
      118

      Gluten Free Coffee

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,238
    • Most Online (within 30 mins)
      7,748

    tcpb
    Newest Member
    tcpb
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.