Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened Again

GFreeMO

By GFreeMO
in Coping with Celiac Disease

Recommended Posts

GFreeMO Proficient
GFreeMO
Posted

I pretty much eat the same foods over and over with a few exceptions. I recently added a few things to my diet that I have not had in 6 months or more. Has anyone been glutened by any of these items? I am at a loss as to what got me and which I should throw out.

Plain Organic coffee with coffeemate creamer I bought a new coffeemaker as well.

Edy's French Vanilla Ice Cream

Hershey's Kisses

Dairy is not a problem as I drink milk and eat cheese etc.

Lays Stax

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFreeMO Proficient
GFreeMO
Posted
  • Author

I just read the other 2 posts from today about the Kisses. I suspect that those are the culprit. Into the trash they go. You know, this is not the first time that Hershey's has made me sick. Back to Enjoy Life Chocolate bars at least they are made in a dedicated factory on dedicated lines.

aedixon Newbie
aedixon
Posted

If you can handle dairy, stick with regular 1/2 and 1/2 or milk for your coffee.

I run from coffee creamer and Hershey's chocolate. From everything I've read, I think they both are risky.

And it never seems to matter if they're marked gluten-free or not, I ALWAYS have issues after eating potato chips. IDK if it's a grease/fat thing or what, but my innerds just can't handle them.

Judy3 Contributor
Judy3
Posted

I had a date tonight, first meeting of a very nice man... We went to Perkins where I had previewed the menu and found something that looked to be gluten free. Swiss and mushroom chicken on a bed of herbed rice with two sides.. I picked two veggies. Ok we're in business right? WRONG.

My dinner came out with a big ol roll on top of my asparagus so I asked the waitress for another small plate so I could remove the asparagus from my plate. (I had told her about the gluten thing before I ordered and she assured me there wasn't any in this dish haha) She was upset that I wasted the asparagus.. Excuse me? Secondly, I'm talking with my new friend and not really paying attention to my 'herbed rice' and he noticed (he has a friend with Celiac) that what I was eating wasn't just rice, there was orzo pasta in it... Grrrrrrrrr

This is my first time being glutened and I feel like crap. I feel like I have the flu and it's only been an hour since we were at the restaurant. So much for a nice first date huh? But he was very good about it and didn't bat an eye and even asked me if I'd like to see him again so it wasn't all bad... he is a nice guy! Twinkle in her eye as she sits close to the bathroom!

He said next time we'll go to the Mexican place I love...

hawkgirl98 Newbie
hawkgirl98
Posted

I pretty much eat the same foods over and over with a few exceptions. I recently added a few things to my diet that I have not had in 6 months or more. Has anyone been glutened by any of these items? I am at a loss as to what got me and which I should throw out.

Plain Organic coffee with coffeemate creamer I bought a new coffeemaker as well.

Edy's French Vanilla Ice Cream

Hershey's Kisses

Dairy is not a problem as I drink milk and eat cheese etc.

Lays Stax

I have never had a problem with Hershey's kisses - eat them all the time. But I do get sick from Lay's Stax, so I think that could be the culprit.

starrytrekchic Apprentice
starrytrekchic
Posted

Everything I've read (and the coffeemate reps) say that coffeemate is gluten free, but I got sick off their Honey Vanilla Creme twice. Haven't had a problem with their sugar free versions & I'm too scared to try their sugary ones again. I don't think anyone else has a problem with them though.

GFreeMO Proficient
GFreeMO
Posted
  • Author

Sometimes it's a crap shoot as to what glutened us.

Today I had real cream with my coffee.

Going to skip the Stax

Threw the ice cream and kisses out.

I def. don't need the candy and I am getting a new ice cream maker for Christmas so problem solved. It just gets annoying feeling bad and not knowing exactly what zapped us.

Judy3, I'm sorry you got sick on your date. Good thing that you were not going to a movie or something after! He sounds like a keeper since he was so understanding. Hope you feel better soon!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kayo Explorer
kayo
Posted

Maybe it's the soy in these products?

GFinDC Veteran
GFinDC
Posted

Maybe it's the soy in these products?

That's what I was thinking too, soy. Coffee Mate has soy in it. I am not sure about the Hershey's Kisses, but most chocolate has soy in it. The Coffee Mate site says it is gluten free.

GFreeMO Proficient
GFreeMO
Posted
  • Author

hmmm, maybe it is the soy. I'll have to eliminate soy and see if I feel better. Thanks everyone for your help!

Does soy tend to give people gluten type intestinal reactions?

eatmeat4good Enthusiast
eatmeat4good
Posted

hmmm, maybe it is the soy. I'll have to eliminate soy and see if I feel better. Thanks everyone for your help!

Does soy tend to give people gluten type intestinal reactions?

Yes, for me it does. I am still healing (3 months) and the only thing I kept using was coffee mate. I love the stuff. But after feeling so sick....I realized it is the soy. Every single time. I now use half n half or real cream. I think that solved the problem...until I start getting sick from the dairy! Good luck. I am right there with you on this..learning what makes me ill.

GFinDC Veteran
GFinDC
Posted

Yes, for me it does. I am still healing (3 months) and the only thing I kept using was coffee mate. I love the stuff. But after feeling so sick....I realized it is the soy. Every single time. I now use half n half or real cream. I think that solved the problem...until I start getting sick from the dairy! Good luck. I am right there with you on this..learning what makes me ill.

Soy can cause GI symptoms, along with a whole bunch of other possible symptoms too. Different people can have different reactions to it.

kayo Explorer
kayo
Posted
Does soy tend to give people gluten type intestinal reactions?

Me too. In fact my reaction to soy is stronger and worse than my reaction to gluten. I also tend to puff up like a puffer fish.

txplowgirl Enthusiast
txplowgirl
Posted

Not only does soy give me a little bit of gi reactions but I get depression and anxiety worse.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
    2. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    3. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    4. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
    5. trents
      - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

      What kind of practitioner did the blood test? Was this a medical doctor, a naturopathic doctor, a GI doc? I would certainly follow up with them and ask why they advised you not to eat red meat. I mean, it could be something like they, themselves, are a vegetarian and give that advice to everyone. Have you had an endoscopy with biopsy of the small bowel...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,692
    • Most Online (within 30 mins)
      7,748
    Ali Zaib
    Newest Member
    Ali Zaib
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      Issues before diagnosis

      By sha1091a · Posted

      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.