Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Processed 'gluten Free'


williamsburg000

Recommended Posts

williamsburg000 Rookie

Hi everyone :)

Can I ask if anyone's taken the bull by the horns and only ever eats whole foods rather than incorporating processed products labelled as Gluten Free into their diet?

I have to admit I find it very difficult to steer away from all these tempting foods that hold out the promise of being gluten free, but even eating them in moderation I find myself continually being 'glutened.'

These products conform to the 20 ppm codex but they're still causing me problems, not necessarily immediately, but over the course of time there's a cumulative effect that's definately affecting me.

I guess I'm going to have to be more disciplined and begin labelling these products as out of reach or at least only eat them very rarely and as a treat.

My consultant's never said that I should steer away from these products, but I'm beginning to feel that long term the only safe option is to avoid all processed foods and flours whatever their claims.

Are we kidding ourselves consuming these products and damaging our health?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wolicki Enthusiast

I've been g'd a few times by "gluten free" items. I have chosen to be grain and processed food free, just because after eliminating all the bad things from my diet, I realized that grains and processed junk makes me feel bad.

Well, except for peanut butter and salsa in a jar :D

My doc told me that if everyone took such good care of themselves, he would be out of a job ;) It makes it hard to eat out regularly, but I feel fantastic.

txplowgirl Enthusiast

Yes, gluten free processed foods get me every time. I eat just plain meats, brown rice, sweet potatoes, nuts, some beans, some fruits and veggies, because it looks like I have fructose malabsorbtion also as well as dairy and soy free too. And I can eat peanut butter too, thank goodness! :D

Even with that I eat pretty well. Do I like it, no, but I'd rather eat like this than feel what I felt for nearly 40 years.

GlutenFreeManna Rising Star

I eat mostly whole foods not just because I feel better, but also because it's less expensive. I do try a new gluten free processed food about once a month and I have a few that don't give me any problems (Pamela's ginger cookies are a fantastic). I eat some processed things that are naturally gluten free without problems too like corn tortillas, rice cakes, almond milk, etc. But I do make most of my meals from scratch to avoid gluten, soy and dairy. It's all about figuring out what works best for you.

dilettantesteph Collaborator

Based on the posts I read here, I do believe that plenty of celiacs eat 20 ppm gluten without any problem. I'm not one of them. I can't even manage with 5 ppm gluten. I eat very few processed foods, and no processed grains. I wash and sort everything. I've found gluten grains in a lot of places where they don't belong. It's a pain, but you do get used to it.

Jestgar Rising Star

I eat mainly whole foods. Processed stuff is fine for a treat, but I can't imagine it ever being a large part of my diet.

lpellegr Collaborator

Same here. I don't substitute in store-bought gluten-free stuff for regular, I just do without, with a few exceptions. I cook from scratch, leaning toward Paleo, make my own bread and cookies but not much of it. I buy Tinkyada pasta, but don't eat it often. About once a month a waffle or bagel. I try to avoid carbs, and it costs less to skip all that stuff. And I almost never get my old symptoms back, so I think I'm doing a decent job not glutening myself.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



T.H. Community Regular

My consultant's never said that I should steer away from these products, but I'm beginning to feel that long term the only safe option is to avoid all processed foods and flours whatever their claims.

Are we kidding ourselves consuming these products and damaging our health?

I sometimes wonder about that. I can't tolerate the processed stuff, pretty much, and as the cook in the family, that meant I avoid them in our meals (my son and daughter are gluten free, too). My daughter, far as we knew, could tolerate them just fine. But after she's been on the VERY gluten free diet with me cooking? Now she's starting to have trouble whenever she goes out and tries one of the processed gluten free foods.

Makes me wonder if any of us could have that happen, go totally gluten free and then realize we DO have trouble with less gluten than we thought. Don't know, but it'd be interesting to try it.

That said...if you are having a hard time letting go of gluten free processed foods and want to wean yourself from them, might be useful to drop the ones with the most gluten and stick to the least gluten ones, perhaps?

Pamela's and Kinnickinik are two that I know test at 5ppm of gluten or less. If you call up the companies that make a particular food, you can ask what level of gluten ppm their food has to test below and they'll tell you (it takes a while, sometimes), so that might help out. I think Envirokidz is 5 or 10ppm gluten or below, too. Can't recall any others off hand.

good luck dropping the foods!

Oh, and if it helps? Corn and soy are often CC'd by gluten more than the other grains and legumes due to growing practices, so might be good to keep the level of those two low, as well, if you're avoiding even minimal gluten cc.

mushroom Proficient

I buy about one loaf of bread a week, and some cookies and a few rice crackers, along with rice pasta. I do have gluten free flours that I bake into gluten-free goodies occasionally. But that's about it.

cap6 Enthusiast

I eat whole foods for the most part. I do buy a load of bread to have on hand as I will make a quick sandwich if we're going to be gone all day but really try to keep anything processed down to one small treat a week. The strange thing is that I no longer crave "junk" food. Now I find myself craving good stuff like veggies. Weird!!

Cheryl-C Enthusiast

I'd say I maintain a balance. Lately I've been making the move to more a more organic style of living, (so fewer processed items) but having found a few grocery store items I love (and a couple of restaurants) I can't (won't?) give it up altogether. That said, many of the "processed" things I buy from the store, I buy organic: no additives, flavourings, colourings, etc - I try to go as natural as I can. Also, I'd like to add that Glutino chocolate wafers are the devil. :P

psawyer Proficient

I use products from El Peto and Glutino regularly.

Both have facilities which do not have any gluten ingredients on site. Both realize that, even in the "gluten-free" facility, it is possible for an ingredient to be be contaminated before it reaches their premises. It is also possible for an employee to eat something and bring crumbs in on their clothing. There can never be a guarantee of zero gluten. It sucks, but that is reality.

Although the expectation is zero gluten content, there is no test that can prove that. Glutino test for 20 ppm. El Peto test for 5 ppm.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      Supplements for those Diagnosed with Celiac Disease

    3. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.