Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Total Gut Inflamation!


mela14

Recommended Posts

mela14 Enthusiast

My entire gut feels like it is inflamed from this gluten incident! I've had 2 sleepless and painful nghts with all the toxic symtpoms. I had to take a zantac during the night to stop the burning> Is there anything better out there that would help the inflamation (short term) while I get this under control again. I'm really sensitive to a lot of meds and of course need a gluten-free one. any ideas or just stick with the zantac?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

Prilosec OTC worked better for me.

richard

mela14 Enthusiast

I went and bought OTC Zantac 150. Let's hope it helps! the IBS is really bad too but I don't want to take too many different meds! When it rains it pours....My abdomen is soooooooooooo bloated and it hurts!

kvogt Rookie

There was a study posted some time ago that said antiacids may contribute to food allergies by allowing undigested proteins into the small bowel.

mela14 Enthusiast

thanks for the responses. I think i found the culprit...BEANO!

Coincidentally I've been sick since I started taking it and seem to get more bloated and feel more ill right after I take it. Isn't it supposed to help you digest??? anyway, after doing some research I found that it is made from a fungus and that some may be sensitive or allergic to it. given all my food allergies I'm sure that is what is making me sick. Hopefully by stopping it I will feel better in a few days!

this is soooooooooooo upsetting and crazy. another day in the house feeling awful. I took 2 last night with dinner and was up all night! :angry:

anerissara Enthusiast

I hope you've found the culprit and that you feel better soon! I have been seriously thinking of getting some beano after my last glutening incident, bloated for 4 days straight and then pain in my gut for another 4 days. Argh! However, if it's made out of fungus of any sort I think I'll stay away from it. Right now my system seems to be so sensitive that I don't want to chance it!

Shoot, does anyone have any suggestions on how to get rid of the bloating without beano? Did the beano work at first?

mela14 Enthusiast

I used to take Zelnorm for the IBS..but found that after taking it for a while it caused too much movement! I cut the does in half an only took it with my largest meal. It helped me get through some rough patches. I try not to take anything for long periods of time.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 4 weeks later...
Susantg3 Rookie

:( sometimes when the gut is inflammed, you may need an antispamodic, which is a prescription. Levbid, donnatol-sp?, are examples. they relax the gut. also simethacone (like gas x) may help reduce bloating by moving gas out. I tolerate motrin and find it helps with pain as pain increases production of prostoglandins, which is the hormone that causes pain. antiinflammatory drugs like motrin reduce this hormone.

Good luck

sue

Debbie-nibbles Newbie

I'm still new at this gluten free stuff. Forked out all the $ on a bread machine thats to be used to make the worst tasting stuff ever. All the different flours, because you can't use just one... I guess the suffering we're going through is not enough. I'm just having a really bad day, got glutten in me last Saturday. My lower back aches, across my shoulders and neck, feel listless, angry, anxious, and just want to go to bed. I need to get out and exercise but can't even get going on that, this is so frustrating! I want to just cry most of the time, food turns my stomach but I force myself to eat. I'm congested feeling with my voice sounding crouppy. My poor husband don't know what to do, thinks I'm heading to the looney bin. I just sit there not wanting to talk or watch shows with him. Is this just me. I used to be happy, laughing at everything, singing to music, always ready to up and go. It also feels like stuff crawling around inside of me. Looking forward to tomorrow... Gotta get better...

BamBam Community Regular
I'm still new at this gluten free stuff. Forked out all the $ on a bread machine thats to be used to make the worst tasting stuff ever. All the different flours, because you can't use just one... I guess the suffering we're going through is not enough. I'm just having a really bad day, got glutten in me last Saturday. My lower back aches, across my shoulders and neck, feel listless, angry, anxious, and just want to go to bed. I need to get out and exercise but can't even get going on that, this is so frustrating! I want to just cry most of the time, food turns my stomach but I force myself to eat. I'm congested feeling with my voice sounding crouppy. My poor husband don't know what to do, thinks I'm heading to the looney bin. I just sit there not wanting to talk or watch shows with him. Is this just me. I used to be happy, laughing at everything, singing to music, always ready to up and go. It also feels like stuff crawling around inside of me. Looking forward to tomorrow... Gotta get better...

<{POST_SNAPBACK}>

Debbie nibbles:

You have described exactly how I feel when I eat gluten, I just can't do anything, everything is upsetting, and I too was happy, laughing and singing. I hope to get back to that point again to. I have ingested gluten several times this past month, so will take awhile to get back to myself. The sooner the better! My husband really suffers when I go through this stuff.

BamBam Community Regular

DebbieNibbles

I was talking to my husband over the lunch hour and told him about your note about not being yourself. I told my husband "her board name is DebbieNibbles and he says, well, then yours should be 'BernadetteChews.'" :huh:;)

mandigirl1 Enthusiast

hey everyone......

Ive been accidentally glutened from eating a box of Corn Pops cereal----had the worst suffering and pain since my first episode upon diagnosis 6 yrs ago----would have gone to the ER but figured, if its Celiac related what can the doctors do for me? Theres no remedy or cure....it just has to "take its course", right?

What helped me through this bad 48 hours (besides my caring boyfriend) were the following:

1. hot lemon water

2. advil

3. white rice

4. banana

5. gluten-free roll with jelly

:)

I would also like to add that I always take this anti-gas pill that works wonders for me......I take it before or after I eat most meals like barbeques, sushi, dairy, etc.

This pill makes me feel soooooo much better! However, I never confirmed with the company if they are completely gluten-free. Im assuming---and I know that I shouldnt assume anything. The name is Phayzme. Does anyone know for sure if this is gluten-free? If it is, its a lifesaver....try it!!!!! :rolleyes:

drjmarkusic Newbie

I have looked in my list of medications and cannot find that Phayzme is gluten-free. <_< That doesn't mean it isn't, it is just not on my listing of gluten-free meds.

pantrygirl Newbie

You might try chewing fennel seeds or cumin seeds. I found they help relieve indigestion and heartburn within minutes.

pixiegirl Enthusiast

I don't know about Phayzme but Rolaids makes a antiacid and anti-gas called Rolaids Multi Symptom and they told me it was gluten-free it works wonders for me.

Susan

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,036
    • Most Online (within 30 mins)
      7,748

    Jill Seiler
    Newest Member
    Jill Seiler
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.