Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bladder Spasms And Pain


GFreeMO

Recommended Posts

GFreeMO Proficient

Anyone out there get bladder issues like spasms or pain after being glutened? I was glutened last week. Had my typical gas, huge bloating, big D, DH rash on knee. The last few times that I was glutened through CC, I get bladder issues after the intestinal ones. Anyone else?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

Anyone out there get bladder issues like spasms or pain after being glutened? I was glutened last week. Had my typical gas, huge bloating, big D, DH rash on knee. The last few times that I was glutened through CC, I get bladder issues after the intestinal ones. Anyone else?

i dont know about spasms... but if i have too much fructose, or too many fructans i feel like im getting a bladder infection.

and in the past when i ate more than a little gluten, i also felt like i was getting a bladder infection.

i have a really sensitive or small bladder- and im wondering if its Interstitial Cystitis that is pretty much gone when i dont eat gluten or excess fructose. ???

Looking for answers Contributor

I also feel like I have a bladder infection when I eat something I shouldn't have (by accident).

eatmeat4good Enthusiast

Yes, me too. Very painful as if there is an infection, but when they culture it is negative for bacteria, but I still have the severe spasms and symptoms of bladder infection if I get gluten. I'm glad you brought this up as I was wondering too.

Judy3 Contributor

I get the same thing. That's partly how this started, I've had cramps for two years despite a hysterectomy, and many tests they still were there. Turns out the 'cramps' are bladder and rectal spasms and they are better now that I'm gluten free. I still get them from time to time but I'm still healing so it's expected that it wouldn't be 100%

Looking for answers Contributor

BTW, other food allergies/intolerances cause this for me too. One of my only symptoms of my recent problems with avocado is a feeling like I have a bladder infection. That was a fun one to try to figure out. :P

  • 5 weeks later...
GF avenger Apprentice

Just wanted to pop in and add that my primary symptom of gluten exposure feels like a bladder infection, but may actually be interstitial cystitis that is aggravated by the gluten.

Tips for feeling better quick:

Steep some looseleaf nettle tea for 10 minutes, and drink up. I believe the antihistamine properties make me feel better within an hour. Linden tea is also quite nice.

A hot pad over the lower abdomen is lovely for the spasms. You might also try a castor oil pack, covered by the hot pad. I did this nightly for months, while drinking nettle tea, as I was getting better.

Also, check out Wendy Cohan's The Better Bladder Book, in which she draws a strong connection between gluten and bladder trouble. (Moderator, I'm not trying just to sell her book. She did save me, and my bladder, and the peeps here should know about it.)

You only get one bladder, be nice to it!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 year later...
quincy Contributor

Just wanted to pop in and add that my primary symptom of gluten exposure feels like a bladder infection, but may actually be interstitial cystitis that is aggravated by the gluten.

Tips for feeling better quick:

Steep some looseleaf nettle tea for 10 minutes, and drink up. I believe the antihistamine properties make me feel better within an hour. Linden tea is also quite nice.

A hot pad over the lower abdomen is lovely for the spasms. You might also try a castor oil pack, covered by the hot pad. I did this nightly for months, while drinking nettle tea, as I was getting better.

Also, check out Wendy Cohan's The Better Bladder Book, in which she draws a strong connection between gluten and bladder trouble. (Moderator, I'm not trying just to sell her book. She did save me, and my bladder, and the peeps here should know about it.)

You only get one bladder, be nice to it!

Just prior to my celiac dx I was running to the bathroom for both reasons. I seemed to have had the painful overactive and spasming bladder while having loose bowels. I had many scans and tests but the doctors did not tell me what was wrong with my bladder.

AFter seeing 3 urologists, the last one told me my bladder wall was thickened and since I had no infection it was non neurogenic neurogenic bladder voiding dysfunction.... huh? I seem to get relief when I take celebrex but I am worried about taking too much celebrex because I am still healing my gut. I have been gluten free for almost 2 years, so I am afraid that the damage has been done, now I just need to keep the symptoms from flaring up.

anyone out there have non neurogenic bladder?

AVR1962 Collaborator

Good timing with this post. I have been gluten-free for 10 months and have never had this symptom until this last week. I have had many bladder infections before but this was different. I have never had actual cramping in the bladder before and this time I did, and bad. I had a culture done and doc gave me a week of antibiotics. However, I am positive I did not have any gluten. I wonder if other foods can create the same reaction? Could just be this was anotehr bladder infection but it did not feel like the typical symptoms I normally have.

GFreeMO Proficient

Good timing with this post. I have been gluten-free for 10 months and have never had this symptom until this last week. I have had many bladder infections before but this was different. I have never had actual cramping in the bladder before and this time I did, and bad. I had a culture done and doc gave me a week of antibiotics. However, I am positive I did not have any gluten. I wonder if other foods can create the same reaction? Could just be this was anotehr bladder infection but it did not feel like the typical symptoms I normally have.

I do think that other foods can cause this. I know that for me, corn syrup gives me bladder pain.

Hopefully you are feeling better by now!

:)

AVR1962 Collaborator

I do think that other foods can cause this. I know that for me, corn syrup gives me bladder pain.

Hopefully you are feeling better by now!

:)

I feel terribly stupid at this point. My bladder pain and kidney pain came back about a week after being off antibiotics. I went to an online symptom checker and it came up with vitamin toxicity. I have red so much on vits and I am very careful. Unfortunately I think I made a mistake without even thinking twice and I thinks it is what has been costing me.

This past fall I was having real trouble with my eyes and started taking 3 tabs of cod liver oil a day and it made all my eye issues go away except some long distance blurring (20/20 long distance vision). When my multi vit ran out I replaced it without looking at the amount of A. After seeing the result of the symptoms checker I looked at my multi and calculated what I was taking in with my cod liver, ugh, a total of 6250 IUs and I was eating fish, chicken, leafy greens and carrots on top of that. Sp probably a minimum of 7000 IUs daily of vit A since Nov. Of course I have yet to confirm this with my doc, appt on Thurs.

However, I have stopped all vits except Milk Thistle to decongest the liver and I am on a liquid diet the clear my system.

mommyto2kids Collaborator

That was my main symptom when they were trying to figure out what I had. The ob said I had interstitial cystitis and the gastro Dr. finally said celiac and called the ob and told him he was wrong. It was quite a production. Two headstrong Dr.s both saying they were right. Never want to repeat that again. This aspect of celiac needs to be further researched. It would be worth a call to Gluten Free Living Magazine and ask them if they could ever do an article on this.

cougie23 Explorer

A hot pad over the lower abdomen is lovely for the spasms. You might also try a castor oil pack, covered by the hot pad. I did this nightly for months, while drinking nettle tea, as I was getting better.

So is a warm purring cat! LOL I'm serious! good for cramps and tummy aches! The bigger the cat and the stronger the purrr...the vibrations are amazing! I know how funny this sounds...but I used to have asilver gray cat named Boo...and whenever I would feel rotten he would lay down on the exact spot (without ever being prompted) and his purring would make me feel better! I used to call him my little "chakra tuner"! LOL

And yes Gluten and Dairy also give me sharp pains and or feelings of bladder infection..or having to pee CONSTANTLY (I thought I had incontenance, but my Dr. said it was also one of many symtoms of celiacs)! :blink::D

quincy Contributor

Good timing with this post. I have been gluten-free for 10 months and have never had this symptom until this last week. I have had many bladder infections before but this was different. I have never had actual cramping in the bladder before and this time I did, and bad. I had a culture done and doc gave me a week of antibiotics. However, I am positive I did not have any gluten. I wonder if other foods can create the same reaction? Could just be this was anotehr bladder infection but it did not feel like the typical symptoms I normally have.

yes, I have been cramping in my bladder for months now. I am going for bladder re-training therapy and bio feedback. Its awful not to be able to drink a lot of water because my bladder just

freaks out. My pt said that almost half her bladder re-trainig patients have celiac!! I have bladder wall thickening and she said its probably collagen thats built up over the years from the constant inflammation from gluten. I have been gluten free for several years now, so I am beginning to suspect another intolerance like peanut butter and hummus, which I eat alot of both...

anyone with a peanut intolerance out there have bladder spasming issues???

AVR1962 Collaborator

yes, I have been cramping in my bladder for months now. I am going for bladder re-training therapy and bio feedback. Its awful not to be able to drink a lot of water because my bladder just

freaks out. My pt said that almost half her bladder re-trainig patients have celiac!! I have bladder wall thickening and she said its probably collagen thats built up over the years from the constant inflammation from gluten. I have been gluten free for several years now, so I am beginning to suspect another intolerance like peanut butter and hummus, which I eat alot of both...

anyone with a peanut intolerance out there have bladder spasming issues???

Very interesting! When I met with doc this week he told me he thought I had an over-active baldder which I have to say, I don't think is the case but I do have a referral to urology.

As far as peanut butter, it is on the high oxalate food list. No sure if that could be giving you issues or not. I am taking them out of my diet.

mommyto2kids Collaborator

Quincy,

Ask your pt if he has any articles he has written on this subject or ask him to write an article. I am very interested if he has further info on this subject since my ob who is the bladder specialist in this town, does not know that celiac can cause bladder issues! He just thinks I'm crazy. I just had a hyst. due to bladder, uterus pain. So this of extreme interest to me. PM me if get further info or a web site or anything further on this issue. Thanks so much.

  • 1 month later...
quincy Contributor

Very interesting! When I met with doc this week he told me he thought I had an over-active baldder which I have to say, I don't think is the case but I do have a referral to urology.

As far as peanut butter, it is on the high oxalate food list. No sure if that could be giving you issues or not. I am taking them out of my diet.

Did you get any resolution to your bladder symptoms? I still am improving but its still uncomfortable: it feels like a UTI but there is never any infection or blood in the urine. some of us

might have painful bladder syndrome (PBS) or Overactive bladder syndrome (OBS) or IC interstitial cystitis.

my naturopath doctor recently emailed me this statement about the latest theory of IC : "one of the theories about IC is that it is the liver not quenching or processing the metabolites fast enough (or a leaky gut that's recycing things several times making the liver repeat everything!)"

I don't fully understand what she means here and I will ask her when I see her this Thursday. keep you posted. If anyone reads this post and wants to provide an update on bladder problems please do because this has been a major quality of life issue for many of us....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

    2. - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

    3. - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    4. - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    5. - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,840
    • Most Online (within 30 mins)
      7,748

    Sarah C37
    Newest Member
    Sarah C37
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.