Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dear Soy...i Hate You!


Salax

Recommended Posts

Salax Contributor

So the last few weeks I have noticed that something has been making my tongue itch and swell, which finally got to the point of making my lips puff and tingle. (It was not the Angelina Jolie look I was hoping for, :P ) Seriously, it scared me. I thought it was caffine, because I was drinking coffee and pepsi like a fish. So I stopped that, seemed still mildly uncomfortable in my mouth. Though it was corn, like corn syrup from the pepsi, coffee creamer, chocolate candy..since all those also have caffine. So I took out corn...Nada. FINALLY, I realized...SOY.

The stuff is in everything. Grr.

Dear Soy,

I hate you and what you do to my body, please go away and get out of my chocolate and all the yummy other foods I can/could still eat...no thanks to you. :ph34r: You suck!

So seriously. Soy is out now. Feeling better....BUT I think I am having a few other processed food issues. I think I am going to go Paleo in a couple weeks, after I clean out my fridge.

Blarg, ok venting over. B)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Ugh--soy is firmly out for me too. I'm glad you finally pinpointed the culprit :)

Salax Contributor

Ugh--soy is firmly out for me too. I'm glad you finally pinpointed the culprit :)

Thanks. It's amazing what's in our food. I am still surprised more and more people haven't developed food allergies or intolerences at a faster rate. Maybe they are, I don't know..maybe they don't care. Either way it sucks..lol I miss my chocolate. Luckily I found an alternative without soy or gluten, YEAH!

mushroom Proficient

No one hates soy worse than I do!!! Sorry that it is your enemy too! :(

11475 Apprentice

I'm sorry you have something else to watch out for now :(. Soy does seem to be in 'everything', doesn't it!

I'm sure this will not come as a revelation to many people, but I only just found out: vegetable oil often contains a large amount of refined oil from soy beans. My source says that this doesn't have to be declared on the bottle as doctors have decided (not everyone agrees, though) that it is safe because of the refining process. I suppose it would depend on the individual.

I'm not sure if that was helpful or not, but for me personally, it suddenly dawned why I was having trouble with peanut butter, and one particular brand of plain potato chips, while another brand (which used sunflower oil) gave me no problems at all.

So - something to consider with processed foods and cooking. I hope you're feeling better.

(For the record, this is from the Food Allergy Cookbook by Lucinda Bruce-Gardyne, 2007.)

jerseyangel Proficient

Thanks. It's amazing what's in our food. I am still surprised more and more people haven't developed food allergies or intolerences at a faster rate. Maybe they are, I don't know..maybe they don't care. Either way it sucks..lol I miss my chocolate. Luckily I found an alternative without soy or gluten, YEAH!

I agree with you, and when you think about it, how many people take antacids and other stomach remedies regularly without really considering what might be the root cause of their symptoms and difficulties?

I pop Enjoy Life Chocolate Chips or have one of their dark chocolate candy bars when I need chocolate. Not real exotic, but gets the job done :P

Salax Contributor

I'm sorry you have something else to watch out for now :(. Soy does seem to be in 'everything', doesn't it!

I'm sure this will not come as a revelation to many people, but I only just found out: vegetable oil often contains a large amount of refined oil from soy beans. My source says that this doesn't have to be declared on the bottle as doctors have decided (not everyone agrees, though) that it is safe because of the refining process. I suppose it would depend on the individual.

I'm not sure if that was helpful or not, but for me personally, it suddenly dawned why I was having trouble with peanut butter, and one particular brand of plain potato chips, while another brand (which used sunflower oil) gave me no problems at all.

So - something to consider with processed foods and cooking. I hope you're feeling better.

(For the record, this is from the Food Allergy Cookbook by Lucinda Bruce-Gardyne, 2007.)

I experienced this as well. My hubby was taking out everthing in the pantry with soy (God, I love that man!...He is so good to me), anywho we also discovered that the vegetable oil had soy! I was dumb struck! And so was he. CRAZY, what is soy doing in there! So ya, trash canned that. Also, corn tortilla chips and PB, thank GOD I still have my PB (el' natural, no soy there, but in the processed kinds lots of soy)...If I couldn't eat PB I would jump of a cliff. Maybe not, but I would cry.

Anyways, I thought that soy was a top 8 allergen and it had to be declared? No? :o


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Salax Contributor

I agree with you, and when you think about it, how many people take antacids and other stomach remedies regularly without really considering what might be the root cause of their symptoms and difficulties?

I pop Enjoy Life Chocolate Chips or have one of their dark chocolate candy bars when I need chocolate. Not real exotic, but gets the job done :P

It's totally what they are puttin' in that tummy that cause tummy troubles. People don't want to take the time or they don't get it..imho. Food is just like fuel for cars, you put the wrong kind in...issues pop up, car doesn't function so well..

But yes that chocolate isn't bad, especially with gobs of PB on it! Yum! :P

11475 Apprentice

Anyways, I thought that soy was a top 8 allergen and it had to be declared? No? :o

That's why I was amazed (and a little upset) to read that it had been decided for us what we could handle...especially since it says that there is not a 100% agreement on the issue.

I think also because it's not necessarily in every batch it might be harder to determine, but shouldn't it have a 'may contain' warning on at least?? If it is labelled, at least consumers can make up their own minds and try to keep themselves safe.

Glad you could keep your peanut butter! I think I'll be buying a natural version too. And hooray for lovely, helpful, understanding husbands :)

Salax Contributor

That's why I was amazed (and a little upset) to read that it had been decided for us what we could handle...especially since it says that there is not a 100% agreement on the issue.

I think also because it's not necessarily in every batch it might be harder to determine, but shouldn't it have a 'may contain' warning on at least?? If it is labelled, at least consumers can make up their own minds and try to keep themselves safe.

Glad you could keep your peanut butter! I think I'll be buying a natural version too. And hooray for lovely, helpful, understanding husbands :)

I guess that makes sense, but agree a "may contain" warning would be helpful.

Any places that we can eat out without gluten and soy safely?

mercury6 Newbie

So the last few weeks I have noticed that something has been making my tongue itch and swell, which finally got to the point of making my lips puff and tingle. (It was not the Angelina Jolie look I was hoping for, :P ) Seriously, it scared me. I thought it was caffine, because I was drinking coffee and pepsi like a fish. So I stopped that, seemed still mildly uncomfortable in my mouth. Though it was corn, like corn syrup from the pepsi, coffee creamer, chocolate candy..since all those also have caffine. So I took out corn...Nada. FINALLY, I realized...SOY.

The stuff is in everything. Grr.

Dear Soy,

I hate you and what you do to my body, please go away and get out of my chocolate and all the yummy other foods I can/could still eat...no thanks to you. :ph34r: You suck!

So seriously. Soy is out now. Feeling better....BUT I think I am having a few other processed food issues. I think I am going to go Paleo in a couple weeks, after I clean out my fridge.

Blarg, ok venting over. B)

Salax -

your reaction to soy sounds bad. can't stand the stuff either. i began experiencing recurring bronchial infections. my doc started prescribing me inhalers to open up my airway. i've never had asthma before in my life and suddenly i was having trouble breathing sitting still. i was already having other food intolerance issues and realized i was ingesting soy lecithin in teas, chocolate and even lip balms for starters. i cut anything containing soy from my diet since it's one of the top eight allergens. after a few days i could breathe just fine. soy really is in everything. watch out for soy lecithin. some claim it's tolerated by those who can't consume soy, but i can't tolerate either. good luck!

psawyer Proficient

Anyways, I thought that soy was a top 8 allergen and it had to be declared? No? :o

FALCPA specifically exempts "highly refined oils" from the standard, without defining what that term means. Open Original Shared Link

Salax Contributor

Salax -

your reaction to soy sounds bad. can't stand the stuff either. i began experiencing recurring bronchial infections. my doc started prescribing me inhalers to open up my airway. i've never had asthma before in my life and suddenly i was having trouble breathing sitting still. i was already having other food intolerance issues and realized i was ingesting soy lecithin in teas, chocolate and even lip balms for starters. i cut anything containing soy from my diet since it's one of the top eight allergens. after a few days i could breathe just fine. soy really is in everything. watch out for soy lecithin. some claim it's tolerated by those who can't consume soy, but i can't tolerate either. good luck!

Thanks for the info, I believe my reaction is that of allergy vs intolerance, so I think your right the lecithin is bad bad for me. I believe I also had trouble breathing, so I hear ya. :D

  • 2 weeks later...
Alison R Rookie

Salax,

I am new to gluten free, but not sadly not so new to soy free. After a hospitalization from soy, I began cooking almost everything from scratch at a young age (20).

I use basic, real, fresh ingredients to make my life easier (a big piece of fish, hormone free steak or chicken), fresh or frozen vegetables, etc.

Going out, I find that a quality restaurant and a discussion with the manager is all that is needed to have a safe meal. I had so little success with fast food, that I don't even try anymore. Probably not what you wanted to hear, but food issues have really made my diet better. I don't know many other people that eat swordfish, lamb, and other wonderful quality meats nearly as often as I do. You have to get daring and cook for yourself more, but when we go out, it's a real treat.....not McDonalds.

  • 2 weeks later...
MsMissy Newbie

Also a member of the SOY Haters club. I really miss chocolate, and about 90% of everything you can eat cheap. I am very grateful that my late grandmother taught me how to cook from scratch, i have done it most of my adult life too. I am one of those flat broke college students, but thanks to a huge list of food allergies and intolerance I do not have the luxury of the cheep pizza deals, mac and cheese, and Raman noodles to survive on. Soy I HATE you so very much, not only because im allergic to you (and your lectin) but because you have tricked the whole world into thinking your some kind of super-food. (when really if your not fermented your actually toxic.....read "The Whole Soy Story" its a book on the evils of soy....know thy enemy!)...pardon the spelling...dyslxia and good spelling dont really go together.

  • 2 weeks later...
IrishHeart Veteran

Also a member of the SOY Haters club. I really miss chocolate, and about 90% of everything you can eat cheap. I am very grateful that my late grandmother taught me how to cook from scratch, i have done it most of my adult life too. I am one of those flat broke college students, but thanks to a huge list of food allergies and intolerance I do not have the luxury of the cheep pizza deals, mac and cheese, and Raman noodles to survive on. Soy I HATE you so very much, not only because im allergic to you (and your lectin) but because you have tricked the whole world into thinking your some kind of super-food. (when really if your not fermented your actually toxic.....read "The Whole Soy Story" its a book on the evils of soy....know thy enemy!)...pardon the spelling...dyslxia and good spelling dont really go together.

Soy is ugly for me. Makes me sick, foggy headed and my mouth burns. Gives me D just like gluten. I did read "The Whole Soy Story" and even if I actually did like tofu (I do not...nasty texture, you might as well eat rubber erasers) I would never willingly eat SOY now!! Plus, it messes with your hormones. AVOID it!!

Ditto on the ENJOY life boom-choco-boom bars. They do in a pinch! ;)

  • 1 month later...
annegirl Explorer

I love how someone somewhere gets to decide that soybean oil can't affect you....that was my worst reaction and the one that highlighted what was actually making me sick (on top of gluten and dairy). Ditto on the Enjoy Life brand! I <3 them for making chocolate things that I can eat.

As far as the soy reaction goes...I get a "chemically" headache, fatigue and all over feel like I've been poisoned. It also makes my eyes itch and burn like crazy with a big dose of bloodshot on the side.

My question is: how long did it take to get over your soy reactions? It's been a week of no soy goodness and I still am having issues with my eyes itching and burning. I'm trying to figure out if I just need to hang tight and let my body clean out or if I need to start looking for yet another allergy (I'm down to veggies, fruit, meat and tiny amounts of rice and corn as it is!)

Also, I am waiting for my gluten, dairy, soy etc free soap, lotion, conditioner, shampoo, lip balm to get here so I can be sure I'm eliminating that issue. I have noticed my eyes burn in the shower with just the scent of my shampoo. I don't wear any lotion, makeup, perfume or anything now and I only use perfume and dye free soap for my clothes and no softener etc.

I just am going crazy with my eyes feeling bad!

cahill Collaborator

My question is: how long did it take to get over your soy reactions? It's been a week of no soy goodness and I still am having issues with my eyes itching and burning. I'm trying to figure out if I just need to hang tight and let my body clean out or if I need to start looking for yet another allergy

The last time soy 'GOT ME" it took over a week for me to even start to feel human again.

I am wondering now if I may be getting some soy ,, maybe from CC,, that I didnt realize. I have not been as strict with the CC with soy as maybe I need to be.

Soy in my opinion is PURE POISON :angry: to my body

annegirl Explorer

The last time soy 'GOT ME" it took over a week for me to even start to feel human again.

I am wondering now if I may be getting some soy ,, maybe from CC,, that I didnt realize. I have not been as strict with the CC with soy as maybe I need to be.

Soy in my opinion is PURE POISON :angry: to my body

Oh yes, I so agree with you. Soy is the worst. It took me 3 days to just feel ok. I'm still having some swollen gland issues too. I'll just hang in there and ride it out then. Just with so many issues popping up at once I'm getting paranoid that I'm allergic to everything!

As soon as I realized it was the soy that made me sick I cleaned it all out of my house (and I was being careful about not eating a lot as it was!). My sister has ended up with about 12 bags of groceries out of this whole thing gluten to dairy to soy intolerance. I don't even eat it if it says "natural flavorings" because I was told soy can sneak in that way.

But hey, in the end.... WE'RE going to be the healthy ones. Soy isn't good for anyone. Eating fresh, low fat, healthy foods is going to make us feel great and live longer. :) Sorta makes me feel like I've got a head start on all the other poor people that don't know any better and flock to McDonald's and Taco Bell. :P I "have" to eat healthy. Poor me ;)

chasbari Apprentice

My first episode with what we thought was CC in the early days turned out to be soy instead of gluten. I was ready to go to the hospital it was that bad. Add me to the list of soy haters.

CS

rosetapper23 Explorer

For all you soy haters out there (and I'm one of them!), I'm hoping that you've noticed that soy is in almost all mayos and cans of tuna fish. I now eat Smart Balance mayo and only tuna from Whole Foods or Trader Joe's.

Because our country has an excess amount of soybean oil to get rid of, they're putting it in everything!

annegirl Explorer

For all you soy haters out there (and I'm one of them!), I'm hoping that you've noticed that soy is in almost all mayos and cans of tuna fish. I now eat Smart Balance mayo and only tuna from Whole Foods or Trader Joe's.

Because our country has an excess amount of soybean oil to get rid of, they're putting it in everything!

Oh yes I've noticed. I basically don't eat anything right now that doesn't require cooking before consumption. I'm sick of being sick! I am looking forward to adding in some gluten/soy free mayo this summer for chicken salad (alas, no croissant to go with it! :( ).

chasbari Apprentice

For all you soy haters out there (and I'm one of them!), I'm hoping that you've noticed that soy is in almost all mayos and cans of tuna fish. I now eat Smart Balance mayo and only tuna from Whole Foods or Trader Joe's.

Because our country has an excess amount of soybean oil to get rid of, they're putting it in everything!

Just made note of those. I have not been able to find tune w/out soy. Tuna salad soy free sounds really good right about now!

annegirl Explorer

Just made note of those. I have not been able to find tune w/out soy. Tuna salad soy free sounds really good right about now!

If you google it you will find some conversations on soy free tuna. Check Costco's Kirkland brand.

mushroom Proficient

I've always loved King Oscars baby sardines, but lately they have been packing them all in soy bean oil. Finally found some (in a different (blue )- colored wrapper) that are packed in olive oil and bought the store out. :D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,345
    • Most Online (within 30 mins)
      7,748

    Louise Sullivan
    Newest Member
    Louise Sullivan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      My reaction to a gluten bolus exposure is similar to yours, with 2-3 hours of severe abdominal cramps and intractable emesis followed by several hours of diarrhea. I don't necessarily equate that one large exposure to gluten with significant intestinal lining damage, however. I think it's just a violent reaction to a what the body perceives to be a somewhat toxic substance that I am no longer tolerant of because I have quit exposing myself to it regularly. It's just the body purging itself of it rather than an expression of significant damage. Before diagnosis, when I was consuming gluten daily, I had little to no GI distress. I was, for the most part, a "silent celiac". The damage to my small bowel lining didn't happen all at once but was slow and insidious, accumulating over a period of years. The last time I got a big shot of gluten was about three years ago when I got my wife's wheat biscuits mixed up with my gluten-free ones. There was this acute reaction after about two hours of ingestion as I described above. I felt washed out for a few days and fully recovered within a week or so.  Now, I'm a 74-year-old male. So, I'm not worried about being pregnant. And I don't want to contradict your physicians advice. But I just don't think you have done significant damage to your small bowel lining by one episode of significant gluten ingestion. I just don't think it works that way.
    • Skydawg
      Wondering about some thoughts on how long to wait to try to get pregnant after a gluten exposure?  I have been diagnosed for 10 years and have followed the diet strictly. I have been cross contaminated before, but have never had a full on gluten exposure. I went to a restaurant recently, and the waiter messed up and gave me regular bread and told me it was gluten free. 2 hours later I was throwing up for the whole evening. I have never had that kind of reaction before as I have never had such a big exposure. My husband and I were planning to start trying to get pregnant this month. My dr did blood work to check for electrolytes and white blood cells, but did not do a full nutritional panel. Most of my GI symptoms have resolved in the past 2 weeks, but I am definitely still dealing with brain fog, fatigue and headaches. My dr has recommended I wait 3 months before I start to try to get pregnant.   I have read else where about how long it can take for the intestine to fully heal, and the impacts gluten exposure can have on pregnancy. I guess I am really wondering if anyone has had a similar experience? How long does it take to heal after 1 exposure like that, after following the diet so well for 10 years? Is 3 months an okay amount of time to wait? Is there anything I can do in the meantime to reduce my symptoms? 
    • ShadowLoom
      I’ve used tinctures and made my own edibles with gluten-free ingredients to stay safe. Dispensary staff don’t always know about gluten, so I double-check labels or just make my own.
    • Scott Adams
      It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
    • RMJ
      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
×
×
  • Create New...