Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dunkin Donuts


Mama Melissa

Recommended Posts

Mama Melissa Enthusiast

Ok so i was at the mall with my mil and am still relatively new to the diet almost 4 months in,ok well i drank coffee 2 times since i started the diet both with reactions so i have layed off aside from those times the last 4 months.I decided its time to try again i am dying without my coffee:(So i went to d&d told them about my allergy i watched the guy pour a full fresh made pot of decaf coffee into a small cup then i added my own sugar and cream i drank and was fine until 3 hours later i got home felt RAGEE i felt soo mad depressed and violent then last night my belly hurt a little biut in my sleep now i woke up today and feel like im def not well rested like what the hell happenned geeze will i ever be able to drink coffee again???I kno it dosent have gluten why oh whyy Thanx for letting me vent:)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AzizaRivers Apprentice

I don't know about your general coffee reactions, BUT...I've heard of many celiacs, especially on here, reacting to Dunkin Donuts coffee. Not sure why, I don't drink coffee myself, but perhaps they have widespread contamination or they contain some unsafe ingredient. So you might just need to find a particular source for your coffee that does not give you problems.

Mama Melissa Enthusiast

yes i mean i called them and they reassured me all there coffees even flavored which i didnt try were gluten free ughh it stinks i know they said no starbucksss tho

ravenwoodglass Mentor

Have you tried drinking coffee you make at home? While their coffee may be gluten free the chance of CC is IMHO high.

K8ling Enthusiast

I drink Dunkin Donuts coffee at home and it's fine. I haven't tried buying a cup though.

kareng Grand Master

I think in a store that is making and baking glutony donuts, some flour might be in the air and landing on cups, pots, sugar packs, employees and customers.

I go to Starbucks. I don't get the flavors added but most of the flavors are fine.

Coffee & decaf coffee has acid in it that is hard on your stomach. I found that adding some milk helps neutralize that.

shopgirl Contributor

I drink Dunkin Donuts coffee at home and it's fine. I haven't tried buying a cup though.

Same here. I drink homebrewed French Vanilla.

But ever since I went gluten-free, if I drink more than one cup per day, my stomach goes nuts. Coffee can be harsh. If I stick to one cup, I'm fine. If I try a second, my stomach will start to cramp up. Of course, I brew my coffee weak


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lynnelise Apprentice

I go to Starbucks once a week and I've never had any issues.

I was drinking coffee daily and kept having reactions...stomach issues, rashes, metallic taste in my mouth, weird numbness in my gums...I was sure it was gluten and changed brands over and over and it kept happening. Went to allergy doc and I'm actually mildly allergic to coffee itself! If I drink it once or twice a week I'm fine but if I start drinking it daily the reactions get worse and worse.

Mama Melissa Enthusiast

yes i have tried 2 times at home and had worse reactionss but it was much earlier on in the diet:( I think i might need a new coffee pot it might be contaminated it hink not sure.This is the first time i was brave enough to try it out i guess it was a stupid move i think i will try starbucks next time they seem cleaner:)

Monklady123 Collaborator

Personally I would worry about anything made at a place that has "donuts" in it's name! :ph34r: I do get coffee at Starbucks with no problem, but that's all they do there. (I know they sell baked goods, but the baking isn't done there. At least not at mine.) It's the same reason I'm leery of getting gluten-free pizza at one of my local places. Yes, that crust may be gluten-free. But look at all the gluten that HAS to be flying around that kitchen! :ph34r:<_<:ph34r:

uglybassistx Newbie

I've had problems with Dunkin Donuts coffee in the past. I find that iced coffee does not irritate my stomach nearly as much as hot coffee would. I would think this is due to the coffee being more watered down in iced coffee than in regular hot coffee, but I could be wrong. Lately I've been staying away from coffee altogether and using tea as my caffeine fix.

shopgirl Contributor

Personally I would worry about anything made at a place that has "donuts" in it's name! :ph34r: I do get coffee at Starbucks with no problem, but that's all they do there. (I know they sell baked goods, but the baking isn't done there. At least not at mine.) It's the same reason I'm leery of getting gluten-free pizza at one of my local places. Yes, that crust may be gluten-free. But look at all the gluten that HAS to be flying around that kitchen! :ph34r:<_<:ph34r:

Most Dunkin Donuts don't bake their own doughnuts. I'm not sure any of them actually do. They get deliveries every day.

Monklady123 Collaborator

Most Dunkin Donuts don't bake their own doughnuts. I'm not sure any of them actually do. They get deliveries every day.

Yeah, true. I guess it's just the picture I have in my mind of my local Dunkin Donuts -- all the donuts sitting in the cases right near the coffee pot, with the employees always reaching in to take out some donuts, waving them around near the coffee... :ph34r: Makes me get a headache and cramps just thinking about it. lol..

But at my Starbucks the case with the baked goods is way over on the other side of the register, far away from the coffee-making area, and it's usually two different people -- the cashier gets the baked thing while the coffee gal is preparing the drink.

Fire Fairy Enthusiast

In my area the donut shops bake their own donuts therefore I wouldn't dream of consuming anything from those shops.

I was wondering if anyone knows the names of a few of the safe Starbucks coffee flavors. I asked at my Starbucks and the response I received was, "what's gluten?" (though the info might be helpful to you too Mama Melissa)

MelindaLee Contributor

In my area the donut shops bake their own donuts therefore I wouldn't dream of consuming anything from those shops.

I was wondering if anyone knows the names of a few of the safe Starbucks coffee flavors. I asked at my Starbucks and the response I received was, "what's gluten?" (though the info might be helpful to you too Mama Melissa)

I drink vanilla lattes all the time and I haven't had a reaction. I have also had white mochas with no proble.

Fire Fairy Enthusiast

I drink vanilla lattes all the time and I haven't had a reaction. I have also had white mochas with no proble.

White Mocha is my all time favorite! Thank you. :)

TooManyHats Rookie

It's so ironic that this is being discussed today. While out with my son yesterday he wanted to stop at DD. All I could picture was some employee that had handled donuts all day touching my cup and lid. I felt paranoid, but didn't care. We ended up stopping at Wawa (local convenience store) where I could make my own coffee. Success!

  • 5 years later...
cbkinc Newbie

NEVER AGAIN will I drink Dunkin Donuts coffee. This has happened both times I drank it and now I KNOW it is the coffee. I bought it and made my own at home and now I have those dreaded "I got glutened" cramps. NEVER again and I am throwing the rest out

cyclinglady Grand Master
45 minutes ago, cbkinc said:

NEVER AGAIN will I drink Dunkin Donuts coffee. This has happened both times I drank it and now I KNOW it is the coffee. I bought it and made my own at home and now I have those dreaded "I got glutened" cramps. NEVER again and I am throwing the rest out

Can you clarify?  Was it plain coffee or a flavored one?  

How long have you been gluten free?   You might be reacting to coffee if your gut is still damaged.  It's pretty acidic.    Did you drink it on an empty stomach?  Tea will do that to me.  My grandma who was British, always insisted we drink tea with milk and to have a biscuit too!  

Coffee is pretty safe when you purchase it and brew it at home and as long as it is not flavored.  

Please let us know.  

 

kareng Grand Master

Coffee from a bag and brewed at home never goes anywhere near the donuts.  Its just made at a coffee "factory".

 

Just to clarify - the original discussion from 2011 was about buying coffee made/brewed in an actual Dunkin Donuts shop.  So, getting donut crumbs/gluten in the coffee seems ... at least a possibility.  I am not sure of DD's coffee procedures, etc , but there are at least donuts being made and sold near the coffee.

 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fermented foods, Kefir, Kombucha?

    2. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,876
    • Most Online (within 30 mins)
      7,748

    pilber309
    Newest Member
    pilber309
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I have read fermented foods like sauerkraut, pickles, Kefir, Kombucha are great for gut health besides probiotics. However I have searched and read about ones that were tested (Kefir, Kombucha) and there is no clear one that is very helpful. Has anyone take Kefir, Kombucha and noticed a difference in gut health? I read one is lactose free but when tested was high in lactose so I would probably try a non dairy one. Thanks
    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.