Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Problem

Googles

By Googles
in Coping with Celiac Disease

Recommended Posts

Googles Community Regular
Googles
Posted

I have been having a new problem. It's really hard to describe. I have had heart burn intermittently in the past, but the last week it has been almost constant. I have been taking tums which usually works in the past, but it just keeps coming back. I haven't changed anything I eat. Then yesterday and today it feels like food is trying to claw its way out of my chest. Like burp and it feels like food is trying to come out (not up). They've also been painful at the bottom of my diaphragm. My chest feels raw on the inside. I don't know how to better describe it. Any ideas?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

I have been having a new problem. It's really hard to describe. I have had heart burn intermittently in the past, but the last week it has been almost constant. I have been taking tums which usually works in the past, but it just keeps coming back. I haven't changed anything I eat. Then yesterday and today it feels like food is trying to claw its way out of my chest. Like burp and it feels like food is trying to come out (not up). They've also been painful at the bottom of my diaphragm. My chest feels raw on the inside. I don't know how to better describe it. Any ideas?

I have a hiatal hernia and I experience similar symptoms, sporadically. Hope you are not taking Tums Smoothies, they are not gluten free (as my last check). Regular Tums are gluten-free to my current knowledge.

You could also have developed an ulcer, or an inflamed esophagus. Maybe time to see a doctor. Acid can do some damage too.

jerseyangel Proficient
jerseyangel
Posted

I have a hiatal hernia and I experience similar symptoms, sporadically.

I do too, and for me there doesn't seem to be any set food or pattern that sets it off. I get the pressure, belching, and also coughing and hiccups (both at the same time <_< ).

I don't take anything for it, as I find that otc antacids make it worse. Walking helps, as does drinking water, and elevating the head of the bed. I second Lisa's suggestion that you check with your doctor on this one so you know what you're dealing with.

Lisa Mentor
Lisa
Posted

I do too, and for me there doesn't seem to be any set food or pattern that sets it off. I get the pressure, belching, and also coughing and hiccups (both at the same time <_< ).

I don't take anything for it, as I find that otc antacids make it worse. Walking helps, as does drinking water, and elevating the head of the bed. I second Lisa's suggestion that you check with your doctor on this one so you know what you're dealing with.

Patti, I have noticed also that antacids don't seem to help much. Tums don't help much but I was told it's good calcium.

Regarding the hernia..when resting or beginning sleep, turning to the left or flat side helps. Right side at rest finds the discomfort.

jerseyangel Proficient
jerseyangel
Posted

Regarding the hernia..when resting or beginning sleep, turning to the left or flat side helps. Right side at rest finds the discomfort.

Interesting--I'll try that. Thanks :)

cassP Contributor
cassP
Posted

if it's an acid reflux that's nonstop and you're not getting relief like before- it could very well be an ulcer. If it's convenient for you- you should think about seeing your doctor to see if you've got H.Pylori... And in the future- all of us with reoccuring reflux should get endos to check our esophagus.

I have crappy insurance and hate going on antibiotics- so last year when i thought i had an ulcer - i pounded ionized silver and grapefruit seed extract (*always follow instructions on bottle). These are natural antibiotics without the awful side effects. I also took pepto, tums, and occasional zantac. By the 3rd week i felt practically all better.

cahill Collaborator
cahill
Posted

Dont tums/most over the counter antacids have soy in them??? Do you have issues with soy?

Do you have issues with your gallbladder ??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Googles Community Regular
Googles
Posted
  • Author

I have a doctor's appointment with student health services for tomorrow. I hate going to the doctor. I'm worried they are going to tell me they don't know what is wrong and to just go away. Ugh.

GFinDC Veteran
GFinDC
Posted

if it's an acid reflux that's nonstop and you're not getting relief like before- it could very well be an ulcer. If it's convenient for you- you should think about seeing your doctor to see if you've got H.Pylori... And in the future- all of us with reoccuring reflux should get endos to check our esophagus.

I have crappy insurance and hate going on antibiotics- so last year when i thought i had an ulcer - i pounded ionized silver and grapefruit seed extract (*always follow instructions on bottle). These are natural antibiotics without the awful side effects. I also took pepto, tums, and occasional zantac. By the 3rd week i felt practically all better.

Garlic is supposed to be a good anti-bacterial too. I have been wondering what the GSE was for. Thanks for that.

Salax Contributor
Salax
Posted

I have the same. I higly recommend George's Aloe Vera juice twice a day. Once in the AM and once before bed. About 1/2 of a shot glass full. More than that can give you D. I have the herna as well, my doc started me on this for 3 weeks, symptoms gone, it heals the herna and the throat, etc.. When or if they start again, go back on the aloe. You should be able to find this in most health food stores or online. I hope you feel better. B)

Googles Community Regular
Googles
Posted
  • Author

So I went to the doctor today and they said I have GERD and should take antacids. So I will start doing that. They also said I should give up spicy food, and caffeine, and maybe tomatoes.Ugh. Within the last few months I just added tomatoes back in. I don't want to have to give them up again, but I guess I need to. I don't know how giving up caffeine is going to work. I might just cut back to start.

GFinDC Veteran
GFinDC
Posted

So I went to the doctor today and they said I have GERD and should take antacids. So I will start doing that. They also said I should give up spicy food, and caffeine, and maybe tomatoes.Ugh. Within the last few months I just added tomatoes back in. I don't want to have to give them up again, but I guess I need to. I don't know how giving up caffeine is going to work. I might just cut back to start.

Maybe you can switch to decaf in the afternoons. And later decaf in the mornings.

Wolicki Enthusiast
Wolicki
Posted

I have had similar problems in the past, and it turned out to be hyporchlorydia- low stomach acid. The effects are similar to GERD. Problem is I was prescibed acid blockers for over 20 years, so now I have no stomach acid or enzymes. So I take Betaine HCL and enzymes and the problems were resolved.

dilettantesteph Collaborator
dilettantesteph
Posted

I get GERD as a sign of glutening. It helped me to cut down on processed foods.

Juliebove Rising Star
Juliebove
Posted

So I went to the doctor today and they said I have GERD and should take antacids. So I will start doing that. They also said I should give up spicy food, and caffeine, and maybe tomatoes.Ugh. Within the last few months I just added tomatoes back in. I don't want to have to give them up again, but I guess I need to. I don't know how giving up caffeine is going to work. I might just cut back to start.

Everyone is different. I know people with GERD who also can not have onions and peppers. None of those things bother me. What does bother me is dark chocolate. The pain! Oh mama!

You should also invest in a GERD wedge pillow to sleep on. Or failing that, put some blocks under the head of your bed to raise it up a couple of inches.

Googles Community Regular
Googles
Posted
  • Author

Contrary to most people with GERD, for me it is not at all problematic when I lie down. It is actually better then. My doctor thinks it might be stress related, and so when I lie down, I usually am able to relax. So hopefully I wont have to adjust my sleeping position (I love sleeping on my stomach). I started the meds today. I hope that after being on them a couple of weeks it will all go away and then I can stop taking them. (wishful thinking probably, but I can hope.)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    2. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    3. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    5. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748
    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.