Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mythbusters Gluten Submission Campaign


domesticactivist

Recommended Posts

domesticactivist Collaborator

Someone on another site brought up how cool it would be to see cross contamination and gluten featured on mythbusters. My kids love the idea and asked me to get everyone I can to submit myths about gluten to mythbusters. I started a thread on their site and I hope folks will post their gluten related myths as well.

Here is the thread I started: Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CrunchyChristianMama Newbie

Someone on another site brought up how cool it would be to see cross contamination and gluten featured on mythbusters. My kids love the idea and asked me to get everyone I can to submit myths about gluten to mythbusters. I started a thread on their site and I hope folks will post their gluten related myths as well.

Here is the thread I started: Open Original Shared Link

The person who responded to your thread on there needs some serious Celiac education!

domesticactivist Collaborator

The person who responded to your thread on there needs some serious Celiac education!

Yeah. I wrote this back:

domesticactivist

Junior Member

Registered: 01-10-11

Posted 01-10-11 05:31 PM

Wolicki Enthusiast

That guy's post really irritated me. Made me (just for a moment) wish that he was a very sensitive celiac being told that his actions seem extreme. Butthead :angry:

Just to be clear, the butthead is the guy arguing on the thread about destroying gluten, not this forum :P

domesticactivist Collaborator

Here is another related thread: Open Original Shared Link

kareng Grand Master

I registered as gfKaren. He just wants to argue. It had nothing to do with the question really.

"Why are you being so argumentative? Questioning the ladies illness? All she and her kids wanted to know was at what temperature a wheat gluten protein incinerates. We have heard that it is a big sturdy molecule that can withstand temperatures that would destroy other proteins. Debating with us whether 1 molecule can make us sick has nothing to do with the topic and request."

FooGirlsMom Rookie

Yeah I noticed that response or two you got was pretty grouchy. I have never heard anyone bicker with someone about a diagnosed medical condition - let alone completely miss the point of the post. All you wanted to know is how hot does the water have to get to destroy gluten and can it hang around with normal washing & still contaminate someone.

Brother!

FooGirlsMom


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Just to be clear, the butthead is the guy arguing on the thread about destroying gluten, not this forum :P

No...none of us here are ever butt heads! :P

I think everyone should go on there and back her up! C.com against Buttheads!

domesticactivist Collaborator
:) don't forget to maintain the high ground. Buttheads usually just end up making themselves look bad, anyway.
gary'sgirl Explorer

I just posted a comment under the name gfSarah. I'm afraid after I posted I saw that I was a little long winded and preachy, but, oh well. :rolleyes:

I wish people would be more understanding and encouraging about what we have to do to stay healthy. It's not like it's easy or something we do just cause we want to.

BeHappy Apprentice

Wow. What's his problem? Does he even know what Celiac is?? Some people need to find a hobby... Just ignore him. Don't even give him the negative attention. He doesn't deserve it. Let's all just keep writing that we have seen some serious regression. Some people.... Sheesh.

modiddly16 Enthusiast

That guy is a total creep. I had to stop reading because I was getting ready to post something pretty fierce.

kareng Grand Master

I looked around. The guy is an "expert" on everything. He gets his info from Wikipedia which is not always accurate. He must be pretty old because he said "wet hen party". I'm not sure anyone under 80 would use that term.

Anyway, ignoring him will probably frustrate him the most.

domesticactivist Collaborator

You know what? I'm so impressed to have finally found a forum (this one) where people know how to deal with trolls!

kareng Grand Master

You know what? I'm so impressed to have finally found a forum (this one) where people know how to deal with trolls!

Don't you get a really big Billy Goat to head butt him off the bridge? :P

Dixiebell Contributor

A quote from lynnelise that speaks volumes to me:

"I think one reason that people like to think that stuff like this only exists in our mind because to admit that it's real would be admitting it could happen to them."

It irritated me. My son and I are not 'offically diagnosed' but we know we can't eat it.

This may be this guys hobby. Maybe he likes to stir up $h#t.

kareng Grand Master

I thought about saying this but decided not to engage him anymore.

Do you have a food, like green peppers (for example) that you have figured out disagrees with you. Everytime you have an omlette with gps, you have gas and belch all day? If you have the omlette without the gps, you do fine. You have figured out GPs are bad for you and you try to avoid them.

Some people try no gluten for a couple of weeks and feel much better. They donot want to make themselves or thier child feel sick again by eating gluten to get a blood test.

An endoscopy done right away might be informative. The main problem with that procedure is that it isn't a good diagnostic tool for someone in the early stages unless they are lucky. According to your beloved Wikipedia, the average adult small intestine is 16 feet. If 20% is damaged and most GIs take 3-6 biopsies, what are the odds that the GI might miss and only biopsy healthy tissue? I don't know. Someone can do the math. (Never heard of a decent GI doc, musch less a pediatric one, that can get you in in less than 1 month, just my observation)

The problem with the "little bit won't hurt you theory" is that little bits add up. Wikipedia says we can consume 500 units(?) per day and not cause any immune rsponse. Great! That becomes the standard for gluten free. Now we have food labelled gluten-free at 400 units per serving, below the Govt standard. I eat a sandwich of gluten-free bread for lunch - each 1 slice serving is 400 units. Silly me, I use 2 pieces to make my sandwich. I am already over the limit for my day. I didn't even eat 2 gluten-free cookies (2 cookies = 1 serving, gluten 300 units) for dessert yet or figure in the accidental crumb from my kids whole wheat sandwich. This is why it is so important to eliminate every crumb you can, because they add up. This is also why a much lower standard of gluten-free is important.

That's all I'm going to say.

modiddly16 Enthusiast

Using the term "wet hen party" just made me laugh. :D

GFinDC Veteran

Well, here's my MB show suggestion. A little sexiness should help get people interested in the topic.

****************************************************

Ok, here is one I'd like to see MB test. Can a person be exposed to enough gluten to get sick from kissing a gluten eater who hasn't brushed their teeth? Say your significant other just drank a heavy German beer and wants to smooch you up. Can a celiac get sick from kissing them? Celiac sites I have read suggest the answer could be yes, if the beer drinker hasn't brushed and rinsed/gargled first. But is there enough residual gluten transferred from a kiss to make a celiac sick?

The US FDA is still considering their rules for labeling foods gluten free although by law they were supposed to be final years ago. Their proposed standard is less than 20 ppm to label a food gluten free. So, does a gluten kisser transfer 20 ppm or more to another person? Of course this test doesn't have to be done with real celiacs. If a method of collecting the gluten from the kissee's mouth and measuring it is used, it doesn't matter if the person is celiac or not. The amount of gluten transferred is the question.

We all know lipstick can get transferred during a kiss, why not gluten (gliaden)?

****************************************************

domesticactivist Collaborator

I love it :)

kayo Explorer

Wow, talk a about a troll fest over there on the mythbuster's thread. That one person needs a hobby! I cant take anyone seriously when they condescendingly start a reply with, now ladies...

I just registered so I can also request they tackle how easily, or not, gluten can be destroyed on cookware and utensils. I think that would make for a very interesting experiment. How happy would we all be to find out hot soapy water does the trick?

irish daveyboy Community Regular

Wow, talk a about a troll fest over there on the mythbuster's thread. That one person needs a hobby! I cant take anyone seriously when they condescendingly start a reply with, now ladies...

I just registered so I can also request they tackle how easily, or not, gluten can be destroyed on cookware and utensils. I think that would make for a very interesting experiment. How happy would we all be to find out hot soapy water does the trick?

Personally Myth Busters only want things you can crash, drop, burn, make explode, float, fly and gluten doesn't fit into any of those catergories.

There are 2 Hopes of getting anything to do with Gluten featured.

1. Bob Hope

2. No Hope

David

domesticactivist Collaborator

It's a long shot but I have seen episodes where they had segments that didn't involve crashes or explosions. The tight jeans come to mind. I imagine they could incinerate stuff for this one. That could be fun. The thread I started has well over 1000 views and three checks for ratings. Which is way more than most threads. That plus a troll test indicate controversy around the subject. Seems there is interest.

GFinDC Veteran

I agree, explosions are something MB always find a way to fit in. Big kids get big explosions! They could blowup a truckload of wheat and test the remains for gluten. I wouldn't cry over some destroyed wheat. :)

modiddly16 Enthusiast

I do love Bob Hope...maybe we should try him :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,543
    • Most Online (within 30 mins)
      7,748

    Jeanette K.
    Newest Member
    Jeanette K.
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.