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Colonoscopy


Salax

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Salax Contributor

Question for all you brainie-acks out there


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kareng Grand Master

Maybe your aunt is confused and he did a colonoscopy and an endoscopy. The colonoscopy is the large intestine. Celiac destroys the villi in the small intestine. The endo goes in thru the mouth for the top part. Taking biopsies during the endo is how they diagnose Celiac. I had both done just to make sure I didn't have anything going on in the second half, too.

Hopefully, the doc isn't the confused one. Sometimes people hear " oscopy" and they all sound the same.

txplowgirl Enthusiast

You cannot test for Celiac with a colonoscopy. It's done with an endoscopy.

They biopsy the small intestines. You will get a negative test every time with a colonoscopy.

psawyer Proficient

The damage to the villi caused by celiac disease cannot be detected by colonoscopy. An endoscopy of the duodenum is needed to do that.

Is it possible that both an endoscopy and a colonoscopy were done at the same time? The preparation for a colonoscopy is more involved and includes what is needed for the endoscopy. It is prudent to do both, as there may be other issues besides celiac disease.

I have had the double procedure twice. In 2000, the endoscopy showed severe damage to my villi, while the colonoscopy was normal. When repeated in 2005, my villi were completely healed and were normal.

Salax Contributor

Thats what I thought. I need to ask. I hope it's not the doctor that is confused. I'd get another doc. Thanks guys. :D

seashele2 Newbie

Your aunts gastro can't look for celiac in the large intestine with a colonoscopy. She would need an endoscopy to find damage to the villi in the small intestine. My mother-in-law said her doc told her she didn't have celiac after her colonoscopy too but if he did, he is unclear on how celiac is diagnosed. Glad we use a different gastro than she does!

If your aunt's gastro did check with a colonoscopy, she also doesn't know how and where to check for celiac and any diagnosis based on that would be irrelevant.

Michelle

Western Washington State

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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