Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone With Food Allergies And No Gi Symptoms?

adab8ca

Recommended Posts

adab8ca Enthusiast
adab8ca
Posted

I am a neuro celiac only: 41 years a silent celiac it seems and then 1 year of total mental and physical meltdown...Never had GI symptoms with my celiac, but BAD depression/anxiety and severe neuropathy. I am 4 months gluten-free and not really feeling much better (although I have put on some weight-before I was diagnosed, I lost about 25 pounds without trying but with no stomach symptoms to explain it, and now I am up about 12 pounds.)I do realize that with the total villous atrophy and being off scale on the TTG I have some healing to do. Now I am learning about other food intolerances and I am wondering if I could have these without GI symptoms and if I do for example have an intolerance to lactose, would eating lactose slow the healing of my villi? Also reading scary things about corn, so I am not a happy camper.

I am very strict with my diet, avoiding most processed foods. I would ask my doctors but because I am a non standard patient (medical mystery to the GP, GI and neurologist that I have seen in my travels for a diagnosis)they really don't know what to do with me.

I just want to do everything I can to feel better but I don't even know what that is. My stomach seems fine but everything else hurts (joints, nerves)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Are you supplementing with sublingual B12? If you not you may want to and see if it helps. It can take what seems like a really long time for the joint and neuro symptoms to resolve. For me it also took avoiding soy for the joint pain to go away completely. You may want to try eliminating soy and see if that helps. Do be sure to avoid any risk of CC and check all your supplements and script and OTC meds if you are not already.

cassP Contributor
cassP
Posted

I am a neuro celiac only: 41 years a silent celiac it seems and then 1 year of total mental and physical meltdown...Never had GI symptoms with my celiac, but BAD depression/anxiety and severe neuropathy. I am 4 months gluten-free and not really feeling much better (although I have put on some weight-before I was diagnosed, I lost about 25 pounds without trying but with no stomach symptoms to explain it, and now I am up about 12 pounds.)I do realize that with the total villous atrophy and being off scale on the TTG I have some healing to do. Now I am learning about other food intolerances and I am wondering if I could have these without GI symptoms and if I do for example have an intolerance to lactose, would eating lactose slow the healing of my villi? Also reading scary things about corn, so I am not a happy camper.

I am very strict with my diet, avoiding most processed foods. I would ask my doctors but because I am a non standard patient (medical mystery to the GP, GI and neurologist that I have seen in my travels for a diagnosis)they really don't know what to do with me.

I just want to do everything I can to feel better but I don't even know what that is. My stomach seems fine but everything else hurts (joints, nerves)

you're NOT a "medical mystery". according to a study out of Columbia University (even tho i do not agree with everything Dr. Green says): only 1 in 6 Celiacs have any gut symptoms.

now- since you dont- i imagine it must be hard to judge how you're healing- if i were you i would in addition to no gluten, i would limit or avoid dairy for a good 6 months at least. you could limit corn & sugar too. it's hard to tell you what to do- many people on here are just fine with corn- but i am totally not.

also- just try to eat really healthy with lots of whole foods, veggies & fruits & lean organic meat. try to keep your "gluten free" desserts and cereals and breads to a minimum- try to save them for "cheats".

and then to judge how you're healing- you should retest your ttg in 6 months or a year- to see if the numbers have come down.

and like many of us are doing right now- keep up with your doc, get everything tested especially vitamin B12 & D... a deficiency in B12 can cause peripheal neuropathy.

good luck and welcome :)

SaraKat Contributor
SaraKat
Posted

I have no gut issues. The only symptom I had was joint pain in the ribcage area and I have been anemic for years with no explanation. I have been gluten-free since September and don't seem to have any other food issues- I still drink milk and eat things with corn. Good Luck!

Skylark Collaborator
Skylark
Posted

If you eat something you're allergic or intolerant to, you will get symptoms. That's the definition of allergy/intolerance. The problem is pain like you're noticing can can be pretty slow. It might take eating the food for a few days to get pain, or you might have a reaction that's delayed for a day or two. You might consider talking to your Dr. about a food allergy panel, then eliminate those foods for a time and see if you feel better. You will not necessarily react to everything that comes up positive in an allergy panel, so your Dr. can talk to you about how you eliminate foods and then challenge.

The only thing that may cause a celiac reaction is oats, as probably 10-15% of celiacs can't eat them. You would react to those with your "gluten" reaction, whatever that is. Lactose won't do villous damage, but it seems to me that eating something that gives you cramping and D wouldn't be helpful? Sort of common sense there. A lot of celiacs have trouble with casein too, because of cross-reactions with the anti-gliadin antibodies. I strongly suggest you eliminate dairy entirely for a time and see if it helps. Once they heal, some celiacs can tolerate dairy again, and you may also become more lactose tolerant.

Anything on the "big 8" list -- milk, eggs, peanuts, tree nuts, fish, shellfish, soy, wheat -- is more likely to cause a reaction than other foods. People can have corn allergies and sensitivities but it's somewhat more uncommon. (And sometimes organic corn is tolerated but not GMO.)

T.H. Community Regular
T.H.
Posted

I have neuro and joint pain symptoms. They didn't resolve on a gluten free diet, but they are slowly resolving on a super gluten free diet.

However, it's a pretty crazy diet. gluten-free grains, as well as nuts and beans, tend to have too much gluten cc for me to handle unless I choose them carefully, veggies and fruits that have come into contact with gluten cause me trouble (sprays or wax coatings with gluten, or with gluten cc'd ingredients), meat that is cut up near gluten coated meat tends to cc it too much for me to handle. Even gluten containing soap used on processing machines could be an issues, it seems.

Perhaps I'm wrong and its something else, but so far, when I eliminate everything that has ever touched gluten, or as close to it as I can get, then I seem to get better.

Perhaps lowering your gluten content might help you too?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
    2. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    3. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    4. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
    5. trents
      - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

      What kind of practitioner did the blood test? Was this a medical doctor, a naturopathic doctor, a GI doc? I would certainly follow up with them and ask why they advised you not to eat red meat. I mean, it could be something like they, themselves, are a vegetarian and give that advice to everyone. Have you had an endoscopy with biopsy of the small bowel...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,692
    • Most Online (within 30 mins)
      7,748
    Ali Zaib
    Newest Member
    Ali Zaib
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac. (This was the same GP who said Dad didn't have dementia, when months before one of his colleagues suspected it and told me Dad must be diagnosed).  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      Issues before diagnosis

      By sha1091a · Posted

      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.