Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Couple Of Days Of Disappointments


Cheryl-C

Recommended Posts

Cheryl-C Enthusiast

I went to the grocery store a couple of days ago, and found tortillas by TIFCO that appeared to be gluten-free. (They make the tortilla chips that I love!) So I eagerly bought them. When I went to eat one .... I couldn't finish it. It was so BAD-tasting that I couldn't bring myself to eat it.

*sigh*

This morning, I tried Bob's Red Mill buckwheat hot cereal, as a former oatmeal-lover who was missing hot cereal. So very, very bad. I couldn't finish it. Drowning it in milk and brown sugar did not disguise the taste at all.

So I'm very sad. I'm not sure which is worse - probably the buckwheat, as it cost more.

Does anyone know of a different oatmeal-replacement? Another grain, perhaps, with a less-strong flavour? If I dump anymore brown sugar on this cereal it's not longer going to be a "healthy choice." Arg!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dixiebell Contributor

Grits or polenta and I have also found cream of rice.

missy'smom Collaborator

Bob's Mighty Tasty Hot cereal is a blend of grains and not strong tasting IMO. The corn and sorghum in it are mild and sweet. There are instant certified gluten-free oats packets available.

lynnelise Apprentice

I prefer cream of rice or grits. I also have quinoa flakes that are pretty good. I don't love the texture but the taste is ok. You could try gluten free oats and see how well you tolerate them.

ravenwoodglass Mentor

I go with Pocono Cream of Buckwheat, it has a creamy texture and very mild flavor compared with even their buckwheat 'kasha' which is more chunky and has a stronger flavor. Cream of Rice is okay also.

Tigercat17 Enthusiast

I second Pocono Cream of Buckwheat. It's so good with milk and fresh blueberries or strawberries. I eat this about two times a week :)

Skylark Collaborator

Are you unable to tolerate oats? I thought I couldn't eat them until I learned about all the wheat in regular oatmeal and tried the Bob's Red Mill gluten-free oats. I also eat cream of rice and grits.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NorthernElf Enthusiast

I like Bob's Mighty Tasty hot cereal too - just over a cup of boiling water, stir in 1/4 cup of the stuff & simmer for 5 minutes, stir in an egg until it's cooked & add dried cranberries & walnuts....mmmm..... :D

Diane-in-FL Explorer

I like Arrowhead Mills Organic Rice & Shine. It's a brown rice hot cereal. I usually add golden raisins to it. :)

Cheryl-C Enthusiast

Are you unable to tolerate oats? I thought I couldn't eat them until I learned about all the wheat in regular oatmeal and tried the Bob's Red Mill gluten-free oats. I also eat cream of rice and grits.

I actually don't know about oats. I haven't had them since going gluten-free 7 months ago. I've heard about the gluten-free ones but I haven't seen them. The local stores carry Bob's Red Mill products (that's where I got the buckwheat) but I don't know if they don't carry the gluten-free oats or I just haven't seen them. I'll take another look.

Thanks to everyone for their ideas. I certainly miss hot cereal, and would love to find one that didn't taste like tree bark. (Yes, I do eat a lot of tree bark, thanks for asking ... :P)

Considering what this nasty buckwheat cost me, I'm still going to have to use it up though. Does it have any other uses? Can I used it as a rice side dish and load it with spices? Can I put it in soup? If I make it for breakfast and smother it in jam, can I still feel good about it being "healthy" ???!!

amy2011 Rookie

I like Arrowhead Mills Organic Rice & Shine. It's a brown rice hot cereal. I usually add golden raisins to it. :)

Does anyone know where you can find Rice and Shine??? I have heard great things and I too miss my morning oatmeal. I live in Southern Ontario, but do visit the States occassionally. Also, does anyone know if they cell Rice Chex in Canada?

Thanks!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    2. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    4. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?

    5. - Scott Adams replied to ElenaM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      I think I am gluten intolerant


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,906
    • Most Online (within 30 mins)
      7,748

    Dakota4
    Newest Member
    Dakota4
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.