Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dexa Bone Scan

Mama Melissa

By Mama Melissa
in Related Issues & Disorders

Recommended Posts

Mama Melissa Enthusiast
Mama Melissa
Posted

Hey just wanted to know if any celiacs out there have ever gotten this bone scan test and what happened if you did have osteoporosis?? how do they treat it??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Test is easy no prep needed. I do have osteoporosis and they tried to push meds on me. I declined as I don't consider them safe and some research does state they are not good for celiacs. My doctor advised getting adaquate calcium and vitamin D and weight bearing excercise. You may want to see a recent thread on Fosamax and read all you can about those drugs before you agree to take them.

Mama Melissa Enthusiast
Mama Melissa
Posted
  • Author

thank you raven

mushroom Proficient
mushroom
Posted

My Vit. D was very low and I suffered a compression fracture in my spine from a fall injury, so all the docs assumed I had osteoporosis. I said I wanted another DEXA scan before making that assumption (I had had a screening scan 4 years or so before that said my bones were great), and guess what, my bones were still great :D But I still take lots of D and calcium....

sb2178 Enthusiast
sb2178
Posted

magnesium, vitamin K, and a diet that is high in fruit and veg (7+ servings per day) are also bone protective. Sufficient protein helpful, excessive protein harmful.

It's a very easy test-- you really just have to be wearing no metal or dense plastic and it takes (usually) between 5 and 11 minutes for a full body and less for a part like hip or spine.

cahill Collaborator
cahill
Posted

I am 54 years old .

I had my latest DEXA scan this past summer and it showed osteoporosis in my spine.

My doc IMMEDIATELY started trying to push Boniva on me.

I declined to go that route. I am taking supplements and doing weigh bearing exercises.And will closely watch the progress of the osteoporosis to decided wither or not to add drugs like Boniva.

Tina B Apprentice
Tina B
Posted

Hey just wanted to know if any celiacs out there have ever gotten this bone scan test and what happened if you did have osteoporosis?? how do they treat it??

normally it is done at age 50 but my gyn ordered mine at age 45 because of the celiac. The initial showed osteopenia which is the beginnings of osteoporosis. The follow up 2 years later showed no change which is good. I had added weight bearing exercise (treadmill, eliptical) and weight training as well as calcium with magnesium. The reason for doing it earlier was to see if I would need something like Fosamax or Boniva earlier than expected.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Wolicki Enthusiast
Wolicki
Posted

I've had several. I was dx'd with osteoporosis and osteopenia at 34, and it kept getting worse every year, even with reclast injections. Once I was dx'd celiac, I am sure to take my calcium and D religiously and exercise 5 times a week. My most recent (first post diagnosis) dexa scan showed "dramatic improvement," with no drugs. Doc was astonished and said keep it up!

The test takes like 5 minutes. You just lay there (with no metal) and then you're done. Easiest test ever!

  • 1 month later...
ILoveflowers74 Newbie
ILoveflowers74
Posted

I also (like mushroom) compression fractured my spine at 28 yrs old....that's when I got my first scan . Dx osteopenia... Was told to take calcium and d for a year and repeat the scan I even added weight bearing exercise I was jacked lol. However my 1 yr follow up was worse . I couldn't understand it . I mentioned to the doc that it seemed like I wasn't absorbing it... Cuz I was taking it. It just kinda was forgotten about until now with my suspecting celiac . My most recent scan which was the first in 4 years was worse still. Currently doing the gluten challenge . Can't wait to be able to absorb and try to save my bones I'm 37 now time is running out ? I have no doubt that I'm a celiac . I just need my dx for backup. ... So I can go back to being gluten-free and begin recovery again... I cannot wait.

Good luck with your scan. It's very Easy you'll see. :)

shopgirl Contributor
shopgirl
Posted

My scan was clean thankfully. I spent my life drinking enough milk to choke a cow so I'm guessing that helped. Like the others said, it's easy: you just lie on the table for a few minutes while they scan you. I got to listen to the tech tell me about her weekend plans (visiting her grandchildren and finishing a knitting project, if you're interested).

My mother (non-Celiac) showed osteopenia but she declined all the drugs they pushed on her and has maintained her levels for the past five years by taking Vitamin D and eating a healthy diet.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748
    Patty6133
    Newest Member
    Patty6133
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      Yes, you are right. Indeed, I’ve been feeling anemic since the beginning of this week, and today I felt horrible during a lecture at the university, I was trembling a lot and felt all my body incredibly heavy, so I had to come back home. I’ll do a blood test tomorrow, but I’m just worried about the possibility of it coming back negative. I’ve been eating two cookies in the morning as my only source of gluten over the past two weeks—could that affect the final result?
    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.