Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Dx'd Question


Marc49

Recommended Posts

Marc49 Explorer

Due to a positive gene test on 1/19 I am now preparing to go gluten free for a period of time to see if it helps me.

I do not eat a lot of bread, so this will not be that difficult for me I don't believe. What will be my biggest problem though is pasta, and pizza dough for my occasional treat!

Does anyone know of a good brand of pasta, and/or pizza dough that is pre-made like a Boboli crust, or a mix if I have to go that way?

I figure it is easier to ask folks that have been dealing with this previously than to try umpteen different products blindly.

Also I think I read that Borden fat-free American cheese single were OK, but I would like to verify that also if possible.

May as well throw in another while I am at it!

I shop mainly at Publix since I live in Florida,......do they carry any gluten free bread?

I only use bread for my lunch sandwiches, but it's kind of a bummer eating rolled up meat and cheese with no bread.

Thanks for any input to a newbie.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cahill Collaborator

Due to a positive gene test on 1/19 I am now preparing to go gluten free for a period of time to see if it helps me.

I do not eat a lot of bread, so this will not be that difficult for me I don't believe. What will be my biggest problem though is pasta, and pizza dough for my occasional treat!

Does anyone know of a good brand of pasta, and/or pizza dough that is pre-made like a Boboli crust, or a mix if I have to go that way?

I figure it is easier to ask folks that have been dealing with this previously than to try umpteen different products blindly.

Also I think I read that Borden fat-free American cheese single were OK, but I would like to verify that also if possible.

May as well throw in another while I am at it!

I shop mainly at Publix since I live in Florida,......do they carry any gluten free bread?

I only use bread for my lunch sandwiches, but it's kind of a bummer eating rolled up meat and cheese with no bread.

Thanks for any input to a newbie.

do you eat processed foods? or do you eat natural foods only?

if you eat processed foods( if it comes in a box,bag or can) you may want to take a look at this link

https://www.celiac.com/celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/

and this

https://www.celiac.com/articles/183/1/Additional-Things-to-Beware-of-to-Maintain-a-100-Gluten-Free-Diet/Page1.html

Marc49 Explorer

do you eat processed foods? or do you eat natural foods only?

Mainly natural foods.

I am in process of trying to clear anything that is processed per se.

Lots of meat, vegetables and fruit in my diet.

I DO use Boars Head deli meat and need to check on that as well.

ravenwoodglass Mentor

A lot of folks like the Tinkyada pasta although my favorite is Thai Kitchen rice pasta (found in the oriental food aisle). Do start to check the pasta about half way through the cooking time as sometimes for me it seems to cook much faster than the box says.

I like Kinnickinnick pizza crusts at 4 to a box for about $9. Their bread is also okay in a pinch but my favorites are Udi's and Grainless Baker.

Everyone has different tastes though so my faves may not be yours.

cassP Contributor

i couldnt survive without my Tinkyada Brown Rice Pasta!

Judy3 Contributor

Mainly natural foods.

I am in process of trying to clear anything that is processed per se.

Lots of meat, vegetables and fruit in my diet.

I DO use Boars Head deli meat and need to check on that as well.

Boar's Head is listed on my gluten free list. I buy Hormel Natural deli meats which say gluten free on the package. I was buying that before going gluten free because I can't get Boar's head here in WI. So far in my 2 1/2 month journey gluten free I've found that Tinkyada brown rice pasta is the best (of what's available to me) It tastes good and it's got a texture just like regular pasta. I like the spirals myself. Otherwise, whole, all natural foods are the way to go. I buy beef by the 1/4 from an organic farm here and it's less expensive than in the store ($2.25 a lb for everything from ground beef to porterhouse steaks!!!) I did that before as my son and I tried to go to whole foods, organic when we can a long time ago to try to get me to feel better. Who knew it was the wheat, barley and rye??? It hasn't been so hard for me seeing as we did that a few years ago already. The hard part is eating at someone else's house where you don't know if they are the boxed/packaged food users... Good Luck and hopefully it works well for you.

:)

Judy3 Contributor

i couldnt survive without my Tinkyada Brown Rice Pasta!

TOTALLY AGREED!!! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marc49 Explorer

TOTALLY AGREED!!! :D

Thanks for the comments folks!

I replaced beef a couple of years ago with grass fed bison. It is fed no grains at all, and no hormones or anti-biotics are used as well.

My problem it seems is going to be finding bread, pasta and the like around here.

The Publix I shop at carries very little specific gluten-free products.

I make my own spaghetti sauce so that isn't an issue, and the pizza sauce I get is labelled gluten-free.

I can't seem to find any bread at all, so I am thinking of getting white corn tortillas to make wraps with for my lunch sandwiches. I think they carry those at least. I can't see ordering bread over the internet to be honest.

Soups seem to be a tough one also. Fortunately I don't care for soup much unless I make homemade vegetable soup. No more elbow macaroni in it though!

Dixiebell Contributor

Hi Marc49.

I live in GA and buy my son's Udi's bread at our local Publix. I find it in the freezer section with a few other gluten-free items. I usually have to ask if they have any in stock because the shelf is almost always empty and they always find some for me. I have found that Publix is a good company and will probably order it for you if you ask. I have also found that some of the stores have small gluten-free sections. I have seen some Tinkyada pastas and some Glutino brand items there before. I even found a Publix brochure on gluten-free at the front of the store. The best thing to do would be to talk to someone there and ask what they have available and if they can order some items for you.

Do you have a Whole Foods store nearby? They carry a lot of gluten-free pasta and breads.

Marlie Apprentice

So far I've had good luck with Quinoa Pasta. Honestly I never liked wheat bread or wheat pasta but prefer the bad white flour based products. With Quinoa I cannot taste a discernable difference based on my preferences.

Marc49 Explorer

All I could find at Publix yesterday was some Van's gluten-free waffles, Udi's bagels, and some Mission white corn tortillas to use for Mexican and for sandwich wraps.

The big manager was off, so I will have to find out about ordering next time.

The pasta comment sounds good as I also never cared for whole wheat pasta either.

I am in process of scanning and making calls for my most commonly used items that are not whole foods per se.

I bet this was quite an ordeal years ago!

Unfortunately we do not have a Whole Foods where I live yet. I figured they would carry a lot of stuff.

MelindaLee Contributor

I found Ancient Harvest pasta online at Amazon. It was a decent price and free shipping. I love the Van's waffles and Udi's Bagel. I think they are some of the best you will find. Hope you enjoy!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    2. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    4. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?

    5. - Scott Adams replied to ElenaM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      I think I am gluten intolerant


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,906
    • Most Online (within 30 mins)
      7,748

    Dakota4
    Newest Member
    Dakota4
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.