Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Darn Near Narcoleptic, Glutened Symptom?


Aphreal

Recommended Posts

Aphreal Contributor

I confess that Sunday I snuck a piece of regular pizza because it smelled SO GOOD and I was weak. figured... how bad could it be right? The next morning I could NOT manage out of bed. I was beyond exhausted and literally can not keep my eyes opened, every moment able, I would go back to sleep. I blew it off.

Last night I got up in the middle of the night and ate a bowl of life cereal. I thought it was a dream, I mean I remember doing it but not fully conscience of doing it.. I have heard of sleep eating but this was just odd. So today, I am dealing with the same symptom. I can't keep my eyes open, I am so out of it.

Is this a glutened symptom? I just want to sleep and do nothing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nutzieone Newbie

Oh dear! I dont know if I could knowingly do that to myself! poor you though! I've been glutened a few times accidentally and the symptoms range from what you have explained to mildish with just some bloating and nausea. I am chronically fatigued and exhausted. Most days I cant keep my eyes open so for me this is just nomral day to day stuff! I unfortunately also have Rheumatoid Arthritis so that also slams me with the fatigue, etc.

I've also had sleep eating episodes! I once got up in the middle of the night and ate some sweets my husband was keeping on his desk! I remembered it the next morning as a dream but when he asked where his candy was I had to own up!

Good luck!

IrishHeart Veteran

I confess that Sunday I snuck a piece of regular pizza because it smelled SO GOOD and I was weak. figured... how bad could it be right? The next morning I could NOT manage out of bed. I was beyond exhausted and literally can not keep my eyes opened, every moment able, I would go back to sleep. I blew it off.

Last night I got up in the middle of the night and ate a bowl of life cereal. I thought it was a dream, I mean I remember doing it but not fully conscience of doing it.. I have heard of sleep eating but this was just odd. So today, I am dealing with the same symptom. I can't keep my eyes open, I am so out of it.

Is this a glutened symptom? I just want to sleep and do nothing.

It is for me! I feel as if I have been drugged and can barely make a sentence.

I am just wondering... why you would eat gluten NOW after being gluten-free for so long?

lynnelise Apprentice

I will be extremely fatigued for a week or so after a glutening incident. I have never consumed an entire slice of pizza or a bowl of cereal though...just CC. Hope you feel better soon and get over your gluten cravings! I wonder why you are having cravings all the sudden? Is this your first cheat since July?

Looking for answers Contributor

Many people with gluten intolerance share the same gene that puts you at higher risk of narcolepsy, so research is beginning to link the two. Of couse, it could just be an auto-immune reaction as well. But, just thought you might find that interesting.

glutenfreeresistant Newbie

Many people with gluten intolerance share the same gene that puts you at higher risk of narcolepsy, so research is beginning to link the two. Of couse, it could just be an auto-immune reaction as well. But, just thought you might find that interesting.

This is interesting to read. Besides Lactose intolerance, fatigue seems to be my only other physical symptom. (I also suspect depression and anxiety, but have not been able to prove that.)My entire life I have been a very tired person. It was all difficult to figure out because I have also worked the nightshift for the past 5 years. I would be so tired intermittently.So because of this, I got tested. Now that I have been attempting to be gluten-free I notice more of the connection.

LivesIntheSun Apprentice

Gluten makes me 'sleep for England'. In the years before I found out I would wake up in the morning, have breakfast (toast...) then intend to just lie back down for a few minutes (I'd always sleep right through til lunchtime), get up and have lunch (a sandwich), then sleep again til 4 or 5pm. I'd go back to bed at 10pm and sleep til morning. What a waste.

And when I was working I'd drag myself through the morning with lots of strong tea and on my lunchbreak lie down on a bench or anywhere and set the alarm on my mobile phone for when I had to be back on my shift, and fall asleep with dreams and everything.

Now if I find myself wanting a nap in the morning after sleeping all night I know I've been glutened.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bella001 Explorer

I confess that Sunday I snuck a piece of regular pizza because it smelled SO GOOD and I was weak. figured... how bad could it be right? The next morning I could NOT manage out of bed. I was beyond exhausted and literally can not keep my eyes opened, every moment able, I would go back to sleep. I blew it off.

Last night I got up in the middle of the night and ate a bowl of life cereal. I thought it was a dream, I mean I remember doing it but not fully conscience of doing it.. I have heard of sleep eating but this was just odd. So today, I am dealing with the same symptom. I can't keep my eyes open, I am so out of it.

Is this a glutened symptom? I just want to sleep and do nothing.

I had extreme fatigue before I went gluten free. I couldn't stay awake past 8-8:30 and no matter how much sleep I got, I was tired all the time and had a hard time getting out of bed. Within a week of getting rid of the gluten, my energy came back full force.

Jestgar Rising Star

Many people with gluten intolerance share the same gene that puts you at higher risk of narcolepsy, so research is beginning to link the two.

Where did you see this?

Looking for answers Contributor

Where did you see this?

I have two copies of the 0602 gene

Open Original Shared Link

glutenfreesavvy Rookie

Wow...you are so not alone. I have several symptoms that hit me hard after a glutening & severe exhaustion & sleepiness is one of them. There have been a few times that I felt "drugged" & that was just from CC. I'm scared to think what would happen if I ate a piece of gluten-filled pizza. Yikes! :o

I hope you're feeling better... :)

warmly,

Faydra

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

    2. - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

    3. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,107
    • Most Online (within 30 mins)
      7,748

    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.