Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Darn Near Narcoleptic, Glutened Symptom?


Aphreal

Recommended Posts

Aphreal Contributor

I confess that Sunday I snuck a piece of regular pizza because it smelled SO GOOD and I was weak. figured... how bad could it be right? The next morning I could NOT manage out of bed. I was beyond exhausted and literally can not keep my eyes opened, every moment able, I would go back to sleep. I blew it off.

Last night I got up in the middle of the night and ate a bowl of life cereal. I thought it was a dream, I mean I remember doing it but not fully conscience of doing it.. I have heard of sleep eating but this was just odd. So today, I am dealing with the same symptom. I can't keep my eyes open, I am so out of it.

Is this a glutened symptom? I just want to sleep and do nothing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nutzieone Newbie

Oh dear! I dont know if I could knowingly do that to myself! poor you though! I've been glutened a few times accidentally and the symptoms range from what you have explained to mildish with just some bloating and nausea. I am chronically fatigued and exhausted. Most days I cant keep my eyes open so for me this is just nomral day to day stuff! I unfortunately also have Rheumatoid Arthritis so that also slams me with the fatigue, etc.

I've also had sleep eating episodes! I once got up in the middle of the night and ate some sweets my husband was keeping on his desk! I remembered it the next morning as a dream but when he asked where his candy was I had to own up!

Good luck!

IrishHeart Veteran

I confess that Sunday I snuck a piece of regular pizza because it smelled SO GOOD and I was weak. figured... how bad could it be right? The next morning I could NOT manage out of bed. I was beyond exhausted and literally can not keep my eyes opened, every moment able, I would go back to sleep. I blew it off.

Last night I got up in the middle of the night and ate a bowl of life cereal. I thought it was a dream, I mean I remember doing it but not fully conscience of doing it.. I have heard of sleep eating but this was just odd. So today, I am dealing with the same symptom. I can't keep my eyes open, I am so out of it.

Is this a glutened symptom? I just want to sleep and do nothing.

It is for me! I feel as if I have been drugged and can barely make a sentence.

I am just wondering... why you would eat gluten NOW after being gluten-free for so long?

lynnelise Apprentice

I will be extremely fatigued for a week or so after a glutening incident. I have never consumed an entire slice of pizza or a bowl of cereal though...just CC. Hope you feel better soon and get over your gluten cravings! I wonder why you are having cravings all the sudden? Is this your first cheat since July?

Looking for answers Contributor

Many people with gluten intolerance share the same gene that puts you at higher risk of narcolepsy, so research is beginning to link the two. Of couse, it could just be an auto-immune reaction as well. But, just thought you might find that interesting.

glutenfreeresistant Newbie

Many people with gluten intolerance share the same gene that puts you at higher risk of narcolepsy, so research is beginning to link the two. Of couse, it could just be an auto-immune reaction as well. But, just thought you might find that interesting.

This is interesting to read. Besides Lactose intolerance, fatigue seems to be my only other physical symptom. (I also suspect depression and anxiety, but have not been able to prove that.)My entire life I have been a very tired person. It was all difficult to figure out because I have also worked the nightshift for the past 5 years. I would be so tired intermittently.So because of this, I got tested. Now that I have been attempting to be gluten-free I notice more of the connection.

LivesIntheSun Apprentice

Gluten makes me 'sleep for England'. In the years before I found out I would wake up in the morning, have breakfast (toast...) then intend to just lie back down for a few minutes (I'd always sleep right through til lunchtime), get up and have lunch (a sandwich), then sleep again til 4 or 5pm. I'd go back to bed at 10pm and sleep til morning. What a waste.

And when I was working I'd drag myself through the morning with lots of strong tea and on my lunchbreak lie down on a bench or anywhere and set the alarm on my mobile phone for when I had to be back on my shift, and fall asleep with dreams and everything.

Now if I find myself wanting a nap in the morning after sleeping all night I know I've been glutened.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bella001 Explorer

I confess that Sunday I snuck a piece of regular pizza because it smelled SO GOOD and I was weak. figured... how bad could it be right? The next morning I could NOT manage out of bed. I was beyond exhausted and literally can not keep my eyes opened, every moment able, I would go back to sleep. I blew it off.

Last night I got up in the middle of the night and ate a bowl of life cereal. I thought it was a dream, I mean I remember doing it but not fully conscience of doing it.. I have heard of sleep eating but this was just odd. So today, I am dealing with the same symptom. I can't keep my eyes open, I am so out of it.

Is this a glutened symptom? I just want to sleep and do nothing.

I had extreme fatigue before I went gluten free. I couldn't stay awake past 8-8:30 and no matter how much sleep I got, I was tired all the time and had a hard time getting out of bed. Within a week of getting rid of the gluten, my energy came back full force.

Jestgar Rising Star

Many people with gluten intolerance share the same gene that puts you at higher risk of narcolepsy, so research is beginning to link the two.

Where did you see this?

Looking for answers Contributor

Where did you see this?

I have two copies of the 0602 gene

Open Original Shared Link

glutenfreesavvy Rookie

Wow...you are so not alone. I have several symptoms that hit me hard after a glutening & severe exhaustion & sleepiness is one of them. There have been a few times that I felt "drugged" & that was just from CC. I'm scared to think what would happen if I ate a piece of gluten-filled pizza. Yikes! :o

I hope you're feeling better... :)

warmly,

Faydra

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,020
    • Most Online (within 30 mins)
      7,748

    Healthyone
    Newest Member
    Healthyone
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.