Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie Dumb Question


lexusca

Recommended Posts

lexusca Rookie

OK here it is, did anyone else feel worse when the wert gluten free. I was daignosed aweek ago have been gluten free since then. I feel nauseous after everytime I eat or drink something. A symptom I never had before, will this eventually go away or am I missing something?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

Some people feel worse before they start to feel better.

Sometimes it is cross contamination you are not aware of.

Sometimes it is eating too many gluten free products that are processed.

Your stomach needs time to heal.

Eat mostly meat, chicken, fish, vegetables, fruits and nuts and see if you feel better.

Do have a separate toaster? Scratched pans? Gluten eaters in your home? Do you kiss someone who eats gluten? Including the dog? These are potential sources of contamination.

I hope you feel better soon. I had terrible nausea before I went gluten free. It cleared up after.

But many others have noticed that too.

Welcome!

I'm sure others here will have some good information for you.

Oh yeah, and secondary intolerances like dairy, soy, nightshades could be surfacing too.

kareng Grand Master

For me, maybe not you, but you can decide: I would get nauseous when I started worrying about " is the food gluten-free?". " OMG! Did I check the label?"

This was just psychological and went away, mostly. I still have panic moments but I stop & think. I'm thinking of putting " Don't Panic" in large reassuring letters on the front of my recipe book.

(Any Hitchhiking through the galaxy fans?)

psawyer Proficient

(Any Hitchhiking through the galaxy fans?)

42.

kareng Grand Master

42.

I keep a towel with me at all times ( except in the shower).

T.H. Community Regular
I feel nauseous after everytime I eat or drink something. A symptom I never had before, will this eventually go away or am I missing something?

That was me, too. Never had nausea with eating, and then suddenly, I had it after going gluten free, within days.

For me, it turned out to be two things:

1 - I was more sensitive to gluten than average and reacted to many gluten free foods' level of gluten.

2 - Turns out I have food allergies and intolerances. No signs before this, no hives, no nothing. But after going gluten free, I started reacting to some other foods with headaches, or nausea, or a few other things. I had to drop my diet to very unprocessed foods - fruits, veggies, plain meat, etc... - and keep a food journal to get a start on finding these. Finally got allergy tests, but the food journal found the problem foods faster than I got the tests, and the tests actually pretty much confirmed much of what I'd found out with the journal. Some reactions that would include gas or inflammation of the intestines would then flare up every time I consumed something, for a few days following the 'bad' food.

Another problematic issue was that a couple of my allergies were foods that are in much higher concentrations in the processed gluten-free food.

Also...hmmm...have you been eating a lot of dairy or items with xanthan gum? Many celiacs are lactose intolerant until they heal. Also, a number of people are sensitive to xanthan gum and react with gut symptoms. That could be a problem. Again, sometimes those reactions pretty much wax and wane from the time the food goes in your belly until it comes out the other end (to be a bit too graphic).

mushroom Proficient

Yes, many of us get symptoms we never had before after going gluten free. Many of these symptoms are intolerances to other foods that were masked previously by the body being overwhelmed by the gluten. Once the gluten load is relieved we are able to hear the other voices piping up, "What about me?" :)

These foods for me were mainly soy and nightshades, but everyone is different and every reaction is different. My other foods made me itch like crazy with red rashes itching and hives; you may have whatever kind of response your body uses to deal with such problems. (I have always been a skin reaction type person; that is why I have psoriasis :lol: )


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lexusca Rookie

tks for all the feedback makes me feel not so narotic. Dumb question 2 what the heckis nightshades I have never heard of it.

psawyer Proficient

Nightshades are a plant family that includes potato, tomato, eggplant, tobacco, sweet pepper, and other plants.

MsCurious Enthusiast

Speaking of nightshades, if you're allergic to one or two for sure...are you allergic to the rest? Or is that a random thing too?

mushroom Proficient

I don't risk it, except for a little cayenne pepper. and paprika Tomatoes and potatoes were definite positives for me, and I had always kinda avoided green peppers, I guess for a reason.. Lurved eggplant, but I cut them all out until I hope my leaky gut is healed and then I will try them again, starting with eggplant. Since I have RA it is just not worth it to me right now.

lexusca Rookie

tks for all the info. It is a steep learning curve which I am sure I am getting slowly but surely. You guys are a great resource and I am glad your out here for all of us newbies. I am sure before long I will be 1 of you all(being able to give good knowledgeable advice that is)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,559
    • Most Online (within 30 mins)
      7,748

    Valerie Ensor
    Newest Member
    Valerie Ensor
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
    • knitty kitty
      Hi, @Ginger38, I've had shingles in the past.  I understand how miserable you're feeling.   Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten.  The virus lives dormant in the nerves on the left side of my face.  It causes Bell's Palsy (resulting in drooling).  The cold sore virus is also in my eye.  My eye swells up and my vision is diminished permanently whenever I have a flare, so it's of the utmost importance to keep flares away and treat them immediately if they do happen so I don't lose any more vision.   I take the amino acid supplement L-Lysine.  Lysine messes with the replication of viruses, which helps the body fight them off.   I haven't had an outbreak for several years until this year when exceptionally stressed and contaminated, it flared up again. Lysine has been shown to be beneficial in suppression of viruses like the cold sore virus (a herpetic virus), the chickenpox virus (also a herpetic virus), as well as the HIV virus, and even the Covid virus.   I also take additional Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) because Thiamine has antiviral properties as well.   For pain, a combination of Thiamine (like TTFD or Benfotiamine or Thiamine Hydrochloride), with B12 Cobalamine, and Pyridoxine B6 have been shown to have analgesic properties which relieve pain and neuropathy.    The combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 really does work to relieve pain.  I take it for back pain from crushed vertebrae in my back.  This combination also works on other pain and neuropathy.   I usually buy a supplement that combines all three and also Riboflavin B2 called EXPLUS online.  However, it's made in Japan and the price with the tariffs added makes it really expensive now.  But the combination of Thiamine B1, Pyridoxine B6 and B12 Cobalamine (and Riboflavin B2) still work even if taken separately.   I can't take Tylenol or ibuprofen because of stomach upsets.  But I can take the vitamin combination without side effects.  However, you can take the three vitamins at the same time as other pain relievers for added benefit.  The vitamins help other pain relievers work better. I hope you will try it.  Hopeful you'll feel better quickly. Interesting Reading: Thiamine, cobalamin, locally injected alone or combination for herpetic itching: a single-center randomized controlled trial https://pubmed.ncbi.nlm.nih.gov/23887347/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov/12799982/ A Narrative Review of Alternative Symptomatic Treatments for Herpes Simplex Virus https://pmc.ncbi.nlm.nih.gov/articles/PMC10301284/
    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.