Biopsy Results Are In...

[Shashi]

...and my doctor says it's not Celiac. He thinks my GI problems are caused by IBS. (Does IBS cause vomiting?)

I was sure I was on the right track and was hoping Celiac would explain the odd neurological problems I've had for the past five years that my doctors have thought were MS, and which obviously aren't since the brain lesions I have are in the wrong areas. But I guess I'm back to square one again in trying to find a diagnosis for those problems.

Unless...can gluten intolerance itself cause neurological problems? Should I try going gluten free for awhile, just to see if it helps?

[ravenwoodglass]

Yes do try going gluten for a few months to see if it helps. You will likely get relief from the 'IBS' symptoms before you get relief from the neurological ones. The lesions in the brain from celiac, called UBO's, are very similiar to the ones from MS but as your doctor stated are not in the same place. It took me about six months before I had obvious relief from my MS type symptoms which were actually gluten ataxia. I was really far advanced though so you may see relief sooner. I also had to be really strict with the diet and avoid gluten derived ingredients in alcohol and vinegar as well as toiletries. Sublingual B12 may also be helpful in healing the nerves and it won't hurt.

[cahill]

Unless...can gluten intolerance itself cause neurological problems? Should I try going gluten free for awhile, just to see if it helps?

Most of my symptoms were/are neurological.I was diagnosed with IBS while in my 20's.... I was tested for MS (spinal tap)in my 40's, not MS..probably gluten ataxia, I am not diagnosed..

I would encourage you to try a gluten free diet ,,It truly has helped me I can walk with out falling down(most of the time ) and I dont run into wall very often any more

[Jestgar]

Unless...can gluten intolerance itself cause neurological problems? Should I try going gluten free for awhile, just to see if it helps?

Yes. Give the diet a good six months since neuro stuff can take longer to clear up.

[ravenwoodglass]

It truly has helped me I can walk with out falling down(most of the time ) and I dont run into wall very often any more

Boy can I identify with that.

The first time I ran up the stairs in over 10 years I sat at the top and cryed like a baby. That was nothing though compared to how I felt when I could dance again.

Glad your seeing such good results.