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Was Just Given A Short List Of Foods To Avoid

beadlavada

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beadlavada Newbie
beadlavada
Posted

Hey everyone,

I have been gluten free for nearly a year now. We're not sure if I actually have celiac disease or not, but regardless, I follow a very strict gluten free diet.

I have mitochondrial disease. It is messing with my GI tract and I have "leaky gut" (essentially) now. I have recently been feeling like nearly everything I'm eating I'm reacting to, which I guess wasn't too far from the truth.

I saw my mito specialist today and my IgG blood work came back insanely elevated for corn, soy and dairy. He told me my body is exhibiting autoimmune responses to these foods because of my motility issues and I need to eliminate them from my diet for at least 6 months. If we can heal my gut, he thinks I can slowly start to add them back.

I'm feeling very overwhelmed right now regarding what I can and cannot eat. I am waiting to hear back from him regarding how strict I need to be with this. Two of my medications and my daily aspirin contain cornstarch. I didn't realize corn is in pretty much everything.

Part of the issue is that I have severe fatigue and energy issues from the mitochondrial disease. I need things that are quick and easy to eat. I cannot eat most raw fruits and vegetables due to food-pollen syndrome, but cooked they are ok.

Any suggestions? I am feeling really, really overwhelmed. :(

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cahill Collaborator
cahill
Posted

Hey everyone,

I have been gluten free for nearly a year now. We're not sure if I actually have celiac disease or not, but regardless, I follow a very strict gluten free diet.

I have mitochondrial disease. It is messing with my GI tract and I have "leaky gut" (essentially) now. I have recently been feeling like nearly everything I'm eating I'm reacting to, which I guess wasn't too far from the truth.

I saw my mito specialist today and my IgG blood work came back insanely elevated for corn, soy and dairy. He told me my body is exhibiting autoimmune responses to these foods because of my motility issues and I need to eliminate them from my diet for at least 6 months. If we can heal my gut, he thinks I can slowly start to add them back.

I'm feeling very overwhelmed right now regarding what I can and cannot eat. I am waiting to hear back from him regarding how strict I need to be with this. Two of my medications and my daily aspirin contain cornstarch. I didn't realize corn is in pretty much everything.

Part of the issue is that I have severe fatigue and energy issues from the mitochondrial disease. I need things that are quick and easy to eat. I cannot eat most raw fruits and vegetables due to food-pollen syndrome, but cooked they are ok.

Any suggestions? I am feeling really, really overwhelmed. :(

When are you suppost to hear back from him??

I am more than a bit overwhelmed my self.Know that you are not alone and that others do understand .

(( HUGS))

mushroom Proficient
mushroom
Posted

There are three things that are in pretty much all processed food - gluten, soy and corn. If you add in dairy, it makes it nearly impossible for people intolerant of those things to eat anything processed. Your best friend, I think, is going to be your crockpot - buy one if you don't already have one. You can toss in some meat, some chopped vegetables, some potatoes or rice, some gluten free stock or a tomato or two if you need it for moisture, turn it on in the morning and come home to a cooked dinner at night. All made from fresh foods. If you can do eggs they make for a good breakfast prepared quickly many ways. Also hardboiled eggs for lunch or leftover crockpot stuff.

There is cream of rice cereal (don't know how easy it is to prepare for breakfast) and you can stew up some fruit or open a can of fruit to have with it. Hemp and almond milk are delicious, coconut milk, rice milk provided it's not Rice Dream. These can make your sauces if you want them.

If you can stop thinking of processed foods it becomes a lot easier. Carry things like Larabars, nuts, trail mix for snacks. Just a few ideas.

beadlavada Newbie
beadlavada
Posted
  • Author

My doctor said the meds were ok because it's such a small amount of cornstarch. I'm thinking that the only way to fully heal my gut is to do an elimination diet, and honestly, cutting out corn is a great start. lol

I'm not sure which resources are good for advice though. I feel like none of my doctors really know enough about it to guide me through what exactly I need to do. It's not as if leaky gut is an actual diagnosis, perse.

So I guess I'm going to go down to the bare bones as far as diet goes and work up from there. I am reading that a pre/probiotic is essential too, but I don't even know where to start for that. I should probably be taking a multivitamin and calcium since dairy is out. I am just feeling really frustrated by this whole ordeal and I'm HUNGRY and that isn't helping because it's making me cranky. :(

missy'smom Collaborator
missy'smom
Posted

It can be done. I am free of casein and soy and mostly corn-free because my son is the corn-allergic one. I don't go so far as to eliminate citric acid, corn-syrup and such with him. My "convenience" is homemade things that I cook or prep ahead and make extra portions of so that it can be warmed up for another meal. I eat mostly simple meats and veggies and don't try to replicate dishes. I just focus on finding recipes that are made up of simple whole ingredients.

Here are some products we use:please verify for yourself that they are acceptable for your diet.

Costco turkey burker patties

Earthbalance soy-free spread "butter"

So Delicious coconut beverage

Wholesome Sweeteners powdered sugar(has tapioca instead of corn)

Coconut Secret Coconut aminos(tastes like a teriyaki sauce)

Kirkland tuna

Naked Nuggets(purchased from Costco)

Valley Fresh canned chicken breast, available at many stores but purchsed at WalMart(some canned chicken contains starch but this one doesn't)

Pamela's gluten-free bread mix

Applegate Farms hot dogs

missy'smom Collaborator
missy'smom
Posted

Enjoylife granola and maybe other products.

jenngolightly Contributor
jenngolightly
Posted

I follow the Specific Carb Diet which prohibits those foods - so if you search for recipes that follow the SCD diet, you'll find things that you can eat. There are whole websites devoted to recipes for the SCD. I don't eat anything processed. It's gotten expensive, but I feel wonderful! You can also make your own yogurt that's lactose free - it's the 24 hour yogurt you'll find in the SCD recipe areas. That way you can make smoothies.

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irisheyes13 Newbie
irisheyes13
Posted

You've had lots of great recommendations already. I am following a similar elimination diet although I also have eliminated eggs and yeast. It's hard but what I find helpful is cooking ahead and freezing smaller portions which can be pulled out and microwaved. I use the crockpot as well as the stove on weekends and don't really mess with much cooking during the week. Soups and stews are a mainstay for me. I make sure to load up on frozen bags of veggies which can be steamed. Also, I have a rice cooker and will cook up a big batch of white rice in advance and reheat it in the microwave. White rice (I use sushi rice and add extra water so that the consistency is soft and sticky) seems to sooth my gut and fill me up. I will sometimes eat it for breakfast with some almond milk, maple syrup and a bit of cinnamon.

The key is to always have food ready so that you don't slip up when you are hungry. I always keep Lara bars and fruit, especially bananas on hand with me too.

I'm sure it is hard to think about preparing everything from scratch when you are so tired but if you keep it simple and fresh, hopefully you won't feel too overwhelmed.

I hope you feel better soon!

ValeriaZ Rookie
ValeriaZ
Posted

I'm feeling very overwhelmed right now regarding what I can and cannot eat. I am waiting to hear back from him regarding how strict I need to be with this. Two of my medications and my daily aspirin contain cornstarch. I didn't realize corn is in pretty much everything.

Any suggestions? I am feeling really, really overwhelmed. :(

Hello,

I am very new to all it, but the first thing that I googled on the "leacky gut" is that it can be caused by aspirine...

Open Original Shared Link

Should you consider removing "daiy aspirine" - not because of corn, but because of salicilic acid???

kdonov2 Contributor
kdonov2
Posted

I am sorry. I too am gluten and dairy free and trying to stricly eliminate corn. It is so difficult it is absolutely ludicrous. I am still learning too, but the Delphi forum has been somewhat helpful. It is similar to this forum, but much less organized. I would also suggest googling "corn free" or something of the sort. I have slowly been calling manufacturers too to see what is safe. Here are a few other helpful links, the first of which I would say is the most useful as it is a list of all corn derived ingredients you should avoid.

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

  • 7 months later...
momof2peanutz Newbie
momof2peanutz
Posted

Hey everyone,

I have been gluten free for nearly a year now. We're not sure if I actually have celiac disease or not, but regardless, I follow a very strict gluten free diet.

I have mitochondrial disease. It is messing with my GI tract and I have "leaky gut" (essentially) now. I have recently been feeling like nearly everything I'm eating I'm reacting to, which I guess wasn't too far from the truth.

I saw my mito specialist today and my IgG blood work came back insanely elevated for corn, soy and dairy. He told me my body is exhibiting autoimmune responses to these foods because of my motility issues and I need to eliminate them from my diet for at least 6 months. If we can heal my gut, he thinks I can slowly start to add them back.

I'm feeling very overwhelmed right now regarding what I can and cannot eat. I am waiting to hear back from him regarding how strict I need to be with this. Two of my medications and my daily aspirin contain cornstarch. I didn't realize corn is in pretty much everything.

Part of the issue is that I have severe fatigue and energy issues from the mitochondrial disease. I need things that are quick and easy to eat. I cannot eat most raw fruits and vegetables due to food-pollen syndrome, but cooked they are ok.

Any suggestions? I am feeling really, really overwhelmed. :(

Do you happen to have any metal in your mouth? I developed celiac and several autoimmune issues (tho none diagnosed.. but I couldn't function without cutting gluten). Heavy metals (mercury, titanium, lead, cadmium, aluminum) are known to cause autoimmune dysfunction. Just google .. I just had my titanium dental tooth implant removed from my mouth and I'm feeling a ton ton toonnn better. Metals in your mouth also create a battery. And, I believe, create a toxic environment for our "friendly" bacteria, leading to overproduction of yeast, which becomes parasitic yeast - in our organs and growing roots in our digestive tract (leaky gut syndrome). These metals are also linked to autism for children who's mothers have these metals in their mouths during time of gestation (like my ASD son).

If anyone would like any more info. I've happened to stumble upon in my research, you're welcome to email me. morgan0123@ymail.com

(not a doctor, just trying to give good information)

It is my belief that the human body is simply phenomenal at healing itself and adapting. However, when it's being poisoned daily by the most toxic substances on earth.. which reside in it's mouth.. very bad things occur.

I'm feeling so much better. I have not incorporated gluten back in (and probably won't ever have a regular diet of it), but I finally don't feel like I'm being poisoned. Even my pics look different. My husband can't believe how much different and "alive" I look (now that the implant was removed, 6 days ago.)

bartfull Rising Star
bartfull
Posted

Kdonov,I can't thank you enough for the links! Some are sites I visit regularly,but some I had never heard of.

I found a list of foods that are OK if you have salicylate sensitivity, and when combining that with my gluten and corn and almond issues, there are still a surprising number of foods I can eat. :)

As someone who doesn't like to cook much, I find that keeping it simple and making enough for two or three days works well for me. Any meats are OK, and I usually do baked potato with the skin removed. The broccoli that I used to eat is now out - not only did I find out that sometimes grocery stores mix corn starch into the water they use to make that ice you see all over the broccoli in most stores (it's supposed to keep it from melting so soon), but now I know that broccoli is very high in salicylates.

But cauliflower, cabbage and asperagus are OK. So I just mix shredded meat with the crumbled up potato and finely chopped cauliflower, put it in one of those gallon size zip lock bags, and bring it to work. It's great microwaved.

Now, I don't have a problem with dairy so I can put butter on it. Seeing you can't have dairy, maybe use something else to moisten and flavor it?

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