Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking Forward To A New Life!


momofthree75

Recommended Posts

momofthree75 Newbie

I don't have confirmation from a Dr. but I went gluten free in mid January. I'm tired of going back to the doctors and being told we don't know what's wrong with you your test are fine. Most all of my symptoms began aggressively 4 years ago after I had my daughter. My mother had severe IBS issues her whole life along with a list of other symptoms that were never diagnosed. I have a coworker who went gluten free and I saw the improvement in her so thought I would give it try. I believe I have other intolerances as well and will be checked for those next week. My most bothersome symptoms are shoulder/neck pain and tightness, IBS symptoms, anxiety/depression, vitamin d deficiency and anemia. When I asked my doctor about gluten intolerance she brushed it off and told me to cut down on my gluten intake. So frustrated! Anyway week 3 of gluten-free I found myself to be more energtic and having a clearer mind, but then I went right back to where I was. I'm trying to be very strict with my diet but it is a learning process. I'm hoping this new doctor will help me with other food intolerances. I'm only 34 but some days I feel so much older in regards to pain and fatigue. I'm hoping I'm on the right track here and will get my life back. Thanks for all the inspiration you give on this site.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



healinginprogress Enthusiast

I'm turning 29 in a week and a half, but feel MUCH older physically a lot of the time as well :( I'm a little over 4 weeks gluten-free, and on the weekend I felt amazing! Since I tried to reintroduce soy I haven't felt great, but I'm optimistic that it will return, and I applaud your optimism!

I hope this works out for you, and these boards are extremely helpful!

snifter Apprentice

I like seeing your positive attitude! I feel ya, I'm 33 but feel much older

IrishHeart Veteran

I'm 54 and feel like 90.... :lol:

Seriously, though, since going gluten-free, I am seeing a reduction in the 50+ horrible symptoms I have had for years. I KNEW this was what it was, but no one else seemed to agree. Misdiagnosed for YEARS. They were wrong.

The excruciating pain is the worst, but the hair loss, anxiety, weight loss, insomnia and severe brain fog...well, they suck pretty good, too. I have so many symptoms, you might not believe me, but among them--the VERY ones you have listed.

Tests are not always correct and doctors are often WRONG--what they know about celiac and gluten intolerancee would fit in a tiny paper cup...they are clueless. To tell you to "reduce your intake of gluten" is the same as telling you to reduce your intake of rat poison. :blink:

If gluten is making you ill, NO amount of gluten is good.

Do what YOU think is best. If you feel better after a few weeks without it, you have your answer!!

Hang in there!! Be your own best advocate!! :)

We've all been there and are here to help. I know I couldn't have done this without all these great people!! ;)

momofthree75 Newbie

Thank you for the support. I am going today to see a different doc who will do sensitivity testing along with a detox program and try to figure out what supplements will help. I'm hoping I will be able to get back to my yoga and walking soon, I'm sure that will help some.

IrishHeart Veteran

Thank you for the support. I am going today to see a different doc who will do sensitivity testing along with a detox program and try to figure out what supplements will help. I'm hoping I will be able to get back to my yoga and walking soon, I'm sure that will help some.

Good luck--and yes, walking and yoga will help!! Anything to keep things moving--detox the system. Keep us posted!!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,106
    • Most Online (within 30 mins)
      7,748

    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.