Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Headache Survey

Newtoitall

Recommended Posts

Newtoitall Enthusiast
Newtoitall
Posted

I'd like for anyone willing to contribute by copy pasting with their answers.

What causes your headaches.

What are they like? How long do they last?

What do you Trust above all else to help get rid of the headaches.

Have you had trouble with any headache medications? (I.e contains gluten, soy, ect.)

When you take something, how long do you find it takes to help? does it totally elivate the headache?

Thanks again to anyone who can contribute, Please have others you know fill it out, the more the better for any future new members looking for quick easy info on something to take.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


srall Contributor
srall
Posted

Since going gluten/dairy/corn free my headaches have really abated. It used to be I could have a migraine for days. Now I will get a headache if I need to eat. Unfortunately if I don't eat in time the headache might last the rest of the day. But it's usually gone by morning. They are not like migraines. Just tightness usually or sometimes just in my forehead. Does that make sense?

Mother of a Celiac Rookie
Mother of a Celiac
Posted

My daughter, with Celiac, who is now gluten, grain and corn, dairy, and chocolate free, gets headaches when she has something that she has an intolerance to. They usually last as long as that food is in her system. Most of the time they are also accompanied by stomachaches too, if not then sometimes they are caused by an on coming sickness. She has been getting a lot of headaches lately that we are trying to figure out...

eatmeat4good Enthusiast
eatmeat4good
Posted

Had daily migraine headaches for years and years. Sometimes unable to get out of bed 2 or 3 days.

Gluten free 6 months...now I only get a migraine with my menstrual cycle.

Susie M. Newbie
Susie M.
Posted

I'd like for anyone willing to contribute by copy pasting with their answers.

What causes your headaches.

What are they like? How long do they last?

What do you Trust above all else to help get rid of the headaches.

Have you had trouble with any headache medications? (I.e contains gluten, soy, ect.)

When you take something, how long do you find it takes to help? does it totally elivate the headache?

Thanks again to anyone who can contribute, Please have others you know fill it out, the more the better for any future new members looking for quick easy info on something to take.

I've been suffering from chronic migraines constantly for the last two years, and was really hoping when I found out that I had celiac disease that going gluten free would help. I was diagnosed and went gluten free last June. I've tried going Dairy free for two weeks, but that didn't seem to make much of a difference. If anyone has any suggestions, I'd definitely appreciate it.

As for my medications, my Walgreen's pharmacist has been really good about calling the manufacturer's and making sure everything is gluten free, and she has been able to find alternatives that are. The Imitrex does seem to help the pain, but it never goes completely away.

CarolinaKip Community Regular
CarolinaKip
Posted

I use to have 9 plus migraines a month until I went gluten-free. I'd go through so much migraine meds! Now I only get a dull headache when I get into some gluten. I have not had a migraine in 10 months gluten-free! A lot cheaper on meds now!

etta694 Explorer
etta694
Posted

Something.. I think dairy and acidic foods but I'm not sure, starts a whole series of sick feeling and an awful headache with sharp pain. I have taken acetaminophen but.. I was not thinking at all and didn't even look to see if it had gluten in it... but it killed the pain for 3 hours. It came back with a vengeance when I ate gluten free spaghetti sauce and rice pasta...and a gluten free peanut butter cookie. All acidic foods.

I hope there are some more posts here because this is a question for me too.

And now, from another thread, I think it may be SA (salicylic acid sensitivity! Ureka!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 weeks later...
ilikepie Apprentice
ilikepie
Posted

A lot of foods I am intolerant to cause me headaches. The biggest offenders are sugars and alcohol. I can eat most whole raw fruits, but ANYTHING else sweet gives me major headaches. It usually depends on how much of it I eat. If I take a sip of alcohol or eat less than a teaspoon of cane sugar, I will have a severe throbbing headache for at least 4 or 5 days, day and night. It's best if I lay still and not talk or move. I used to take ibuprofen, which helped minimally, but, it's so hard on the stomach...not something I want to further aggravate. I usually just try to drink lots of water because it feels like it dehydrates me, or like all the water has been sucked out of my brain.

Kate79 Apprentice
Kate79
Posted

I've been suffering from chronic migraines constantly for the last two years, and was really hoping when I found out that I had celiac disease that going gluten free would help. I was diagnosed and went gluten free last June. I've tried going Dairy free for two weeks, but that didn't seem to make much of a difference. If anyone has any suggestions, I'd definitely appreciate it.

As for my medications, my Walgreen's pharmacist has been really good about calling the manufacturer's and making sure everything is gluten free, and she has been able to find alternatives that are. The Imitrex does seem to help the pain, but it never goes completely away.

Just wondering if you've been tested for vitamin deficiency. Low levels of magnesium and vitamin d, among other things, can contribute to migraines.

Kate79 Apprentice
Kate79
Posted

Going gluten free seems to have resolved most of my migraines. I still get them with my monthly cycle and if I accidentally have gluten. They vary in severity - before going gluten free I had low-level headaches that would last for several days as well as very severe migraines with nausea and vomiting that would keep me in bed for 1-2 days. I never found any regular or prescription medications that worked for me, so I just try to sleep it off when I get one.

Evangeline Explorer
Evangeline
Posted

Gluten causes me to get headaches. But after avoiding all grains for 2 months, I tried to eat corn again. It felt like my head was about to explode. My brain felt bigger than my skull.

I now believe I am part of those 45% of Celiacs who are intolerant to the gluten in corn as well and have begun a grain-free diet.

I don't take anything when I have a headache. I write down the foods I ate the day and that day and try to start noticing patterns.

T.H. Community Regular
T.H.
Posted

I get very sudden, skull pounding headaches from some of my allergens, like sugar-cane, coffee (just inhaling near the stupid stuff), and soy.

I get a dizzying pounding headache that leads to vertigo when I get gluten. So far, all grains have given me the same headache, except that when I have tried some of these grains in the wild (some grow native, near me), I get no headache, so gluten cc is what I believe is the issue. I am growing some of these grains in my yard, as well, to determine if there are any grains that are actual problems, or if it's all gluten cc.

The biggest issue with this has been with corn in medication, so at the moment, ALL medication has given me a horrible headache, so I can't take any meds that help - they just make it worse. :-(

Sometimes a warm shower helps, sometimes a cold compress on my forehead, but usually, I just do something to distract myself and suffer for a while, unfortunately.

  • 3 weeks later...
jstwnttbhealthy Newbie
jstwnttbhealthy
Posted

what gives me a headache or a migraine (depending on the amount ingested) is msg. it's in so many food under disguise: Open Original Shared Link

lizard00 Enthusiast
lizard00
Posted

What causes your headaches.

Gluten and soy

What are they like? How long do they last?

migraine level, make me nauseaous

What do you Trust above all else to help get rid of the headaches.

nothing works except for time and rest

Have you had trouble with any headache medications? (I.e contains gluten, soy, ect.)

nope

When you take something, how long do you find it takes to help? does it totally elivate the headache?

it usually doesn't help at all (if it's gluten or soy related)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      @rei.b, I understand how frustrating starting a new way of eating can be. I tried all sorts of gluten-free processed foods and just kept feeling worse. My health didn't improve until I started the low histamine AIP diet. It makes a big difference. Gluten fits into opioid receptors in our bodies. So, removing gluten can cause withdrawal symptoms...
    2. captaincrab55
      - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal. My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet. I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
    4. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
    5. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,132
    • Most Online (within 30 mins)
      7,748
    Exhausted-momma
    Newest Member
    Exhausted-momma
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.