Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Endoscopy Today

goodnews

Recommended Posts

goodnews Apprentice
goodnews
Posted

So I had my second endoscopy today. I asked for the report when I left to see what was going on since I never can remember anything when I leave the place. For my first endoscopy they said that visually everything looked fine. They took 3 samples (esophagus, stomach and duodenum). The one of the intestine (duodenum) showed inflammation that they said could be from celiac so they wanted to do another endoscopy with more samples. (In the meantime I had gene testing that showed high risk of celiac...and found out my gallbladder is functioning at 26%)

Today (one month later) my endoscopy visually showed minimal esophagitis in the lower third of the esophagus and mild gastritis in the gastric antrum, and the duodenum appeared normal. They took 6 biopsies of the duodenum and some of the other areas as well (not sure how many). So I am wondering about the change that occurred in one short month. Is the inflammation more a predictor of the gallbladder failure they already know about, or of celiac? Anyone else have results of visual inflammation like this...and what happened with you?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Inflammation is the companion of celiac - everywhere he goes it goes. My inflammation tests (CRP and sed rate) were both off the charts for a long, long time, partly from the gut and partly from the RA - it was hard to distinguish the two. It came down a bit (from the gut) and then a lot after I went on RA meds. Inflammation is the body's standard method of attack, what produces fevers and redness and swelling from infection, etc., etc. So it is very nonspecific. All the things that end in -itis (tonsillitis, arthritis, pneumonitis, iritis) involve inflammation. No, celiac doesn't have an -itis on the end (but it produces inflammation anyway) because inflammation is not its primary symptom.

amypie Newbie
amypie
Posted

What I know is that one day you can not be allergic to something and the next day you can so I think that it could change within a month.

I had my first endoscopy yesterday. I left there with the diagnosis of hiatal hernia, gastritis and mild duodenitis. I knew I would forget what the nurse told me so i remembered I kept asking her to repeat the hernia informaiton. He went in to look for an ulcer, bacteria and take 3 biopsy's of the small bowel to test for Celiac. I won't know for 2 weeks any other results. From reading forums tonight all of these symptoms seem to be related. I'm at a loss. I've gained weight, my stoamch won't go unbloated and I'm always nauseated. I cannot remember the question I was going to ask you now.....

i'm hoping I don't have to go in for a second endo. My allergist thought Celiac from my symptoms so she sent me to a gastroenterologist. I thought I was just going in for food allergy testing. I cut wheat out of my diet, accidently had it one night and got sick. That happened again for another week. I thought for sure I was going to have Celiac. Then I read that I wasn't supposed to go gluten free with the diagnosis because it could mess up the test results so I added it back in and it hasn't been bad now. I don't know what's going on with me!

I hope your 2nd endo doesn't come back worse.

goodnews Apprentice
goodnews
Posted
  • Author

Yes, those symptoms definitely could be from Celiac...

Funny what you said about not remembering things. As I spoke with my husband last night I was asking him what the doctor said. He told me that the doctor told him that they did the procedure and then after wheeling me out they decided to take more biopsies and since I was already under they brought me back in and did the procedure again and took more samples. This is a little annoying because I had an endoscopy last month and they only took 3 samples (one from the small intestine). the whole purpose of doing this endoscopy was to take more samples to test for Celiac. I wonder if they forgot. But the good news was I don't remember any of it and I am glad they got the samples.

fozbery Rookie
fozbery
Posted

Yes, those symptoms definitely could be from Celiac...

Funny what you said about not remembering things. As I spoke with my husband last night I was asking him what the doctor said. He told me that the doctor told him that they did the procedure and then after wheeling me out they decided to take more biopsies and since I was already under they brought me back in and did the procedure again and took more samples. This is a little annoying because I had an endoscopy last month and they only took 3 samples (one from the small intestine). the whole purpose of doing this endoscopy was to take more samples to test for Celiac. I wonder if they forgot. But the good news was I don't remember any of it and I am glad they got the samples.

Hi there

I just thought I should let you know that my biopsy and claprotectin stool test both showed signs of inflammation. In the stomach, duodenum and intestines. But my biopsy was negative.

It sounds like inflammation can be caused buy celiac and I still think I have problems with Gluten. I have been gluen free for about 3 or 4 weeks now and am slightly better. I would really like a diagnosis though.

goodnews Apprentice
goodnews
Posted
  • Author

Hi there

I just thought I should let you know that my biopsy and claprotectin stool test both showed signs of inflammation. In the stomach, duodenum and intestines. But my biopsy was negative.

It sounds like inflammation can be caused buy celiac and I still think I have problems with Gluten. I have been gluen free for about 3 or 4 weeks now and am slightly better. I would really like a diagnosis though.

I can understand wanting a diagnosis. I think that since my blood test was negative that I am not going to get one either. I go back and forth. Sometimes I want one, but at this point I am going to try gluten free for a while anyhow. If I don't ever get a diagnosis I may try to introduce a little gluten back in and see how I feel. But obviously if I am sick again I will be staying gluten free. So sometimes I don't really want a diagnosis because without one at least someday in the future I may be able to have gluten again. I am trying not to think too far ahead yet or else it would be very depressing. One day at a time.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate...
    2. MogwaiStripe
      - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks...
    3. knitty kitty
      - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine. Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes. HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc. Thiamine deficiency inside a cell triggers a...
    4. knitty kitty
      - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten! Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten. I can get glutened from the bakery section at the grocery store. The nose and mouth drain into the digestive system and can trigger systemic reactions. I find the histamine release...
    5. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Guinness, can you drink it?

      This article may be helpful:
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,246
    • Most Online (within 30 mins)
      7,748
    IRENEG6
    Newest Member
    IRENEG6
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      Related issues

      By Mari · Posted

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      Airborne Gluten?

      By MogwaiStripe · Posted

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Gluten Issues and Vitamin D

      By knitty kitty · Posted

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Airborne Gluten?

      By knitty kitty · Posted

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.