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winenstuff

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winenstuff Newbie

Just saying hi. :)


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kareng Grand Master

Hi! Welcome to the forum.

cahill Collaborator

Hi, your going to love the people here :D

mamaw Community Regular

Hello & welcome.

Let us know if we can help you in any way....

love2travel Mentor

Welcome here! You're going to find this quite a special group, I'm sure! :P It is reassuring to know that there are so many going through the same sort of thing. Don't forget you are not alone in this! :)

psawyer Proficient

Just saying hi. :)

Welcome to our community.

PURRFECTCRAFT Newbie

Just saying hi. :)

Thanks new to Forums


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PURRFECTCRAFT Newbie

What do I do???

GFinDC Veteran

What do I do???

Hi, welcome to you also! Take a look around and ask questions if you want. There is lots of info in the pre-diagnosis forum and the coping with forums. you can use the search option to find threads on topics you want to read about.

You can also use the find new content link at the top right of the forums t see threads with new posts.

josh052980 Enthusiast

Hey all! I'm new to the forum. I haven't been diagnosed with Celiac, but I am gluten sensitive. Hoping to meet some new people. If you live in Michigan, or just wanna chat, drop me a line!

  • 4 weeks later...
Beachbaby Newbie

New to this, but I have been reading the forums for quite sometime. It's been a blessing to know that there are other people out there going through the same thing

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  • Posts

    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
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