Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Completed Endoscopy


jemms

Recommended Posts

jemms Apprentice

Had my endo done today and the photos of the stomach and esophagus came back normal. the doctor said that it looked good. I am waiting to see what the biopsy shows. Is it normal to have the stomach look good but the biopsy show damaged villi?

Also, he said that since I have the antibodies for Celiac's to start with the gluten free diet and see a dietician. I want a definitive yes or no. This is driving me nuts!!Thanks so much!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

You have to wait for the microscopic report; damage is often not visible to the naked eye.

ravenwoodglass Mentor

Since you have antibodies you already have a definate yes even if the biopsies are normal. Damage can be patchy or can be in an area that is beyond the reach of the scope. Do follow your doctors advice and start the diet strictly as you do need to be on it.

jemms Apprentice

thanks so much for your replies!! I am so grateful for this forum!

maximoo Enthusiast

Jemms: How was it? How long were you under? Was your throat sore afterwards? How was the anesthesia administered, pill, mask, shot?

raven: What is the point then of having an endoscope then? just to see if villi is damaged? but then Dr might snip an undamaged section. With over 20 feet to choose from as you say its quite possible not to get an accurate sample. I am more on the side now of not having my kids get the endoscopy. I don't think its worth the risk and the time the more I learn.

jemms Apprentice

Maximoo,

It was painless and an overall good experience. I had an IV put into my hand and they administered the anesthesia when I got wheeled into the procedure room via the IV. I think I was only out for about 35 minutes. I had no problems afterward with a sore throat. All went well. :D

ravenwoodglass Mentor

raven: What is the point then of having an endoscope then? just to see if villi is damaged? but then Dr might snip an undamaged section. With over 20 feet to choose from as you say its quite possible not to get an accurate sample. I am more on the side now of not having my kids get the endoscopy. I don't think its worth the risk and the time the more I learn.

For a long time the only way to diagnose was the endo and some doctors still see it as the 'gold standard'. More doctors are starting to diagnose with just positive bloodwork and response to the diet. Sometimes a ped or GP will give the diagnosis once the persons health has returned as they usually see the full effects of the impact over the years whereas a GI doctor may only see the person once before the endo and once afterwards. Personally with positive bloods I would just consider myself diagnosed. However the endo can be useful as a 'baseline' with doctors able to check if damage is still present after a few months on the diet. Although with positive blood work healing on the diet can also be checked by seeing if the antibody levels have gone down. IMHO it is up to the person to decide if they want to have the procedure done. There are downsides and upsides to it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,035
    • Most Online (within 30 mins)
      7,748

    bostonbell
    Newest Member
    bostonbell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.