Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Body Aches


GFreeMO

Recommended Posts

GFreeMO Proficient

Does anyone else deal with all over body achyness? I just would like to experience a day without feeling achy all over.

This is not gluten related or nightshade or dairy etc. I know that aches and pains are a symptom of celiac. Just wondering if anyone else feels this way and how do you cope with it? I think it has something to do with inflammation due to celiac but not directly related to gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Poppi Enthusiast

For me the muscle cramps and achiness is my first symptom that flares up with even the tiniest contamination - I know you were looking for experiences with every day soreness but I did have to learn with the daily pain for many years before I went gluten free. It's really hard to cope with.

For me it usually means just riding it out for the week or so that it takes to subside but there are a few things that help:

- advil takes the edge off

- an over the counter muscle relaxant like robaxicet before bed can help the muscles relax through the night and I often feel less sore the next day.

- swimming and a soak in the hot tub at the rec centre

- stretching and yoga or even higher intensity exercise if you can manage it, working the muscles does help.

- massage therapy if you can afford it or have medical coverage. I get six 45-minute massages a year through my insurance which isn't much but they definitely help when things get bad.

For me it gets worse throughout the day so I try to get all my hard work like laundry, vacuuming and cooking done in the morning so I can take it easy in the evening. A hot soak in the bathtub when my hubby comes home from work helps me get through the evening as well.

Mari Contributor

My aches and pains, rigid cramping muscles improved on the gluten-free diet but I also had Lyme disease and my body was too acid instead of slightly alkaline. Since I have problems after taking antibiotics, for the Lyme infection I took homeopathic drops and used Hulda Clark's Zapper. The acidity I control with diet and eat more alkaline forming foods than acid forming foods. I did a variety of cleanses to clear out toxins and pollutants from my body and toned up my kidneys and liver to help get the toxins out.

GlutenFreeManna Rising Star

I get achy from gluten but I also get it from soy. Have you had your thyroid tested or been tested for other autoimmune diseases like lupus, RA, etc.?

GFreeMO Proficient

I get achy from gluten but I also get it from soy. Have you had your thyroid tested or been tested for other autoimmune diseases like lupus, RA, etc.?

I have been. I do have another autoimmune disease and took some powerful med. to control it about 10 years ago. There is a "name of the med" victims network. One of the side effects is bone and muscle pain and/or fibromyalgia, arthritis. Apparently this med. strips the body of calcium. Not good for someone with celiac! I also lived in a house with toxic mold for 2 years. (I got celiac) after this...so I guess it's a combo of all of those things.

Thanks for the advice. I am trying to cut most if not all soy out too. What do you use for salad dressing? I use Wishbone and soybean oil is the first ingredient. I live in the middle of no where so it has to be something that I can easily get at walmart. ty

cahill Collaborator
I am trying to cut most if not all soy out too. What do you use for salad dressing? I use Wishbone and soybean oil is the first ingredient. I live in the middle of no where so it has to be something that I can easily get at walmart. ty

I make my own dressing using olive oil.This recipe site has some great dressing recipes

Open Original Shared Link

GlutenFreeManna Rising Star

I have been. I do have another autoimmune disease and took some powerful med. to control it about 10 years ago. There is a "name of the med" victims network. One of the side effects is bone and muscle pain and/or fibromyalgia, arthritis. Apparently this med. strips the body of calcium. Not good for someone with celiac! I also lived in a house with toxic mold for 2 years. (I got celiac) after this...so I guess it's a combo of all of those things.

Thanks for the advice. I am trying to cut most if not all soy out too. What do you use for salad dressing? I use Wishbone and soybean oil is the first ingredient. I live in the middle of no where so it has to be something that I can easily get at walmart. ty

That is very interesting that you lived in a house with mold. I was very, very sick from living in one with black mold for 10 months. That was about the time I started having unexplained seizures and other really bad neuro symptoms. I never would have found out about celiac disease if I had not been desperate and reading about diets to help people exposed to toxic mold. I did a major elimination diet, cutting out all the major allergens, all grains, all sources of sugar except berries and honey and all types of fungus like mushrooms. When I started to add thigns back in one at a time, wheat was the worst response of everything I tried to add. I got to reading and my symptoms fit for celiac or gltuen intolerance perfectly. After talking with an allergist last month however he told me it is possible living in the house with mold messed up my immune system and that's why I keep developing new allergies and intolerances.

For salad dressing I make my own with light olive oil and different types of vinegar. If you can't have vinegar you can also do olive oil and a squirt of lemon or lime.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,743
    • Most Online (within 30 mins)
      7,748

    MistyMoon
    Newest Member
    MistyMoon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.