Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Were The Hardest Things To Find And Elminate?


Newtoitall

Recommended Posts

Newtoitall Enthusiast

what are the thing's I'm missing, I am sensitive to damn near everything, so it must mean that I am still taking in gluten somewhere, I don't know if it's improperly cleaned surfaces, or the wrong type of pots (all the right kind of metal, I think)

or maybe it's the soap the dishes are washed with? is that possible? what should I look for..

or can handsoap do the trick?

I'd have to be pretty sensitive cause I am so paranoid I hardly ever touch my food =/

tips, idea's or personal stories.. anything would help at this point, although I worry I'm just to lazy to see something obvious.

what were the CC's that when you found out made you go "wooooow, that of all thing's... never even thought about it"


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cahill Collaborator

what were the CC's that when you found out made you go "wooooow, that of all thing's... never even thought about it"

my dog and cats food,, they are now almost grain free.

sb2178 Enthusiast

Did you scrub out the silverware drawer/tray, and the drawer with spatulas, measuring cups, etc?

New sugar-- most people don't use fresh measuring cups between flour and sugar?

Lipstick/chapstick?

domesticactivist Collaborator

I made a post about how to make the house gluten-free. Maybe some of the things I listed in there will be a shift. You should also search for Shauna's post on the subject - I can't remember which one, but she had stuff I hadn't thought of.

As for pots and pans, we got rid of anything that wasn't in good shape and stainless steel. We stripped and reseasoned our cast iron. Baking sheets have got to go or be lined every time you use them.

Check all your medications and supplements. Actually call the pharmacy you get them from.

It could also be that you have trouble with cross contamination on "naturally gluten-free" foods. We had this problem with lentils. I called the company we bought them from and sure enough they were packaged in a building that they package wheat products in. We also had trouble with arrowroot powder. That one was hard to figure out.

We aren't having legumes right now, but when we reintroduce lentils we'll try to get a clean source, and we'll definitely rinse them, soak them and rinse them again thoroughly before using them. Same deal with nuts. (We dehydrate them after rinsing them and soaking in salt water).

Ditto on the animal feed - I should add that to my post!!! We did find wheat in our shampoo, but not every bottle we had. We ended up switching to using baking soda for shampoo and apple cider vinegar as a rinse. Our hair is nicer than ever!

If you are fairly sure you have eliminated cross contamination and products with gluten and are still having problems, you might look into whether you have additional issues. We have a problem with corn and it's even harder to eliminate because it is everywhere, but it's not labeled! Sigh.

sb2178 Enthusiast

Oh, and I found being single to be helpful. Maybe make everyone wash their hands when they come in the house and brush teeth etc.

laundry detergent?

dilettantesteph Collaborator

Write down everything that you eat and use and then when you are trying to figure things out you can go back and check. I'm way too lazy to follow my own advice, but I try to write down the important things. We went down to a very simple diet of just a few things to get a base level healthy place to start and then added things one at a time, one per week. It took a long time and eating was pretty boring for awhile. After a year I still haven't been able to retest everything, but I am much healthier.

Just about anything can do it, salt, spices, going into a bakery (airborne flour), shampoo, soap, dish soap, rinse aid. Get rid of anything that isn't essential while you are figuring things out. I used plain water for washing for a while to figure out if my cleaning supplies were a problem. Another good way to see if something might be bothering you is to eat more of it than usual. 3 or 4 times seems to work well. If it got me noticeably at 3 or 4 times the usual amount, I figured it was probably getting me before too. I brushed my teeth 10 times one day to make sure that my toothpaste was O.K.

The hardest thing for us was finding out that we had to peel our peaches when my son starting eating more of them. When he was eating one or two a day it wasn't a problem so I assumed they were safe and it took a long time to figure out that they were the problem.

Good Luck!

cahill Collaborator

The hardest thing for us was finding out that we had to peel our peaches when my son starting eating more of them. When he was eating one or two a day it wasn't a problem so I assumed they were safe and it took a long time to figure out that they were the problem.

Good Luck!

it is things like this that make me crazy :ph34r: ,,for me I can eat pears as long as they are canned,,fresh pears even if peeled are an issue((maybe I am not peeling deep enough )) :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

My husband kissing me after he had eaten gluten at work, but didn't tell me he had eaten anything with gluten. My husband driving my car and stoppong at a fast food place and eating in the drivers seat before driving home (since we have a gluten-free house). Then I drove after him and got glutened from the steering wheel. Now he has to brush his teeth before kissing me and wipe down the steering wheel/shifter if he eats in my car. Sometimes I even make him wash his hands as soon as he comes home just in case there is gluten residue on them.

T.H. Community Regular

Okay, stuff that seemed absolutely crazy when I considered it, but turned out to be an actual issue.

- salt, like Steph. A lot of salt had anti-caking agents that didn't work for me, or were processed in facilities that had wheat containing spice mixtures processed in the same place. Ugh.

- ALL my oils, sigh. I had all this great organic oil from spectrum, but always had this low level gluten issue until I figured out that every oil from them is run on the same line, and that line has wheat germ oil run on it, too. Stopped the oil and things improved some more. I use bariani olive oil now.

- definitely our dishsoap made a small difference. we use 7th generation now and it seems okay.

- ground meat of any kind. I found some once that was ground on a dedicated grinder, and then was getting sick off of it. Called up the company and found out they had started making sausages with wheat and sharing the grinder now. I'm still looking for safe ground meat, but haven't found any.

- unwashed produce has zapped me a number of times. Produce that is hard to wash and is grown covered with contaminated straw (like strawberries and mushrooms) has been an issue. Wax coatings (which can be on organic or inorganic produce) can have contaminants that get me. Especially citrus, apples, and pears. The top ten list of pesticide loads tends to correlate pretty heavily with my reactions, although I only found that out after I had noted the reactions, and then went and looked up the pesticides.

- I have done all right on new, stainless steel pans. My non-stick pans we bought new, and only used with gluten-free food for my kids, STILL gets me. :( I once thought I was reacting to a food, and happened to cook two batches of the same thing, one in my pan and one in the non-stick, and that's when I got the first clue that I reacted to the pan rather than the food! Tested it out and it was pretty darn clear. Pan=bad.

- spices are a no-go for me. Lots of preservatives involved in these. There are also a lot of exotic spices that are grown in places like India, and if they are grown by small farmers, it's pretty common to have wheat grown nearby for the farmer's own food.

- pesticides have turned out to be a big issue - a way to test this out is to try some of the same produce but from different farms. Get inorganic and organic, and maybe one or two from a local farmer who uses fewer fertilizers. There were a few fruits/veggies that are commonly given a particular gas/pesticide/coating that we tested this way and were able to narrow it down to the contamination rather than the food itself.

Sympathy on the paranoia! You react often enough, I think it's hard to avoid that feeling until you KNOW what's safe! Especially if your reaction is nasty enough.

GFinDC Veteran

Food for Life gluten-free bread. I hadn't eaten any bread in quite a while anad decioded to try a couple loaves. First one was fine, but the next time a I got one I got glutened right away. So, I guess that wasn't hard to find really, just the variability of it being ok and then not ok bugs me. I'll never buy their products again.

txplowgirl Enthusiast

I found I reacted to all gluten free processed foods, the ones on shared product lines even worse. Wheat in my shampoo, SO eating and and glutening the steering wheel, refirgerator door, cabinet handles. My cat's cat food. The toilet handle! Not cleaning the siverware drawer, the toaster sat right above it. Plastic containers, the collander. That's all I can think of at the moment.

  • 2 weeks later...
shayre Enthusiast

I started drinking rice milk when going gluten free. Then I stopped, and started again. I was going downhill each day. I found out that Rice Dream processes their rice milk with barley! They don't say that on the label of course, but it is on their website. I got better after I switched to almond milk.

bartfull Rising Star

Domesticactivist, how do you shampoo with baking soda? Do you mix it with water first or what? I'm thinking I'd like to try that. Thanks.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.