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Hopeful1950

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Hopeful1950 Explorer

I recently had a breakout. Just a few blisters in a couple of places, but one alarming new place.

Has anyone ever gotten a breakout on their genital area?

I went to the gynecologist and she ruled out everything else and said the thinks it is probably DH.

This is really disturbing, not to mention extremely uncomfotable. Why did I think this area was safe? :o

If anyone has had this experience, any suggestions for relief would be much appreciated.

  • 2 weeks later...

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Jenniferxgfx Contributor

I get spots absolutely everywhere. Nothing is sacred :/

ravenwoodglass Mentor

Yea that is to me the most uncomfortable place for the breakouts. It is not like we can scratch there when it itches. :(

I found cool compresses to be the most helpful when that happens. I also stopped using scented panty liners for that reason as I seemed to get blisters from some of them.

Newsy Rookie

I have to watch out for any G containg (paper) products, even one placed "down there"!

One might think a paper product would be safe but apparantly not, as I broke out all over from changing dryer sheets recently...made by the following co...

Here is a quote from their manufacturers site:

Our(maxi) pads are made of a combination of absorbent materials, polyolefins, adhesives, and a silicone-coated paper. The top layer is a non-woven polyolefin cover sheet. The absorbent materials consist of chlorine free wood pulp, and Lysorb, an absorbent gel. Lysorb, also known as SNAP (super absorbent natural polymer), is a polysaccharide derived from wheat. Polysaccharides are complex sugars found in many natural substances, like the fibers of cotton, wood, and wheat.

I don't care who says G can't be absorbed thru the skin. I know I have Celiac and DH, and I can't be in the same ZIPCODE as gluten. :angry:

salexander421 Enthusiast

I have to watch out for any G containg (paper) products, even one placed "down there"!

One might think a paper product would be safe but apparantly not, as I broke out all over from changing dryer sheets recently...made by the following co...

Here is a quote from their manufacturers site:

Our(maxi) pads are made of a combination of absorbent materials, polyolefins, adhesives, and a silicone-coated paper. The top layer is a non-woven polyolefin cover sheet. The absorbent materials consist of chlorine free wood pulp, and Lysorb, an absorbent gel. Lysorb, also known as SNAP (super absorbent natural polymer), is a polysaccharide derived from wheat. Polysaccharides are complex sugars found in many natural substances, like the fibers of cotton, wood, and wheat.

I don't care who says G can't be absorbed thru the skin. I know I have Celiac and DH, and I can't be in the same ZIPCODE as gluten. :angry:

That's so crazy! I used to get really itchy from using pads, I started using cloth pads about a year ago and they don't make me itchy at all. Kinda makes me wonder! Thanks for sharing :)

  • 1 month later...
schelbo Newbie

OH YEAH! I have it from front to back. What's worse is I have a chronic cough (diagnosed as asthma, not so sure now)and a very weak bladder. Imagine peeing on yourself every few minutes and now I'm finding the reason it's so bad down there is because of the PADS!!!!!!! OMG!!!!! It literally hurts to use the bathroom. Can this get any worse?

I'm embarrassed to go to my OBGYN! And I'm not gonna let my Derm look at my girlie parts. I won't even let my husband look. HELL, I DON"T WANNA LOOK MYSELF!!!!!

Is GOD trying me? I have contemplated suicide in the past, but I have a 10 yr old daughter and I would NEVER leave her!

I was self diagnosed a few days ago. Decided to use a flush from the health foods and stay away from G as best I can.

Looking back, I think I've had this since I was about 13. I'm now 40 and just figuring it out. My Derm diagnosed me with DH a few years ago but she didn't explain it. Went home, googled it and saw that it mentioned iodine, which is in all shellfish and I knew I was allergic to that, so I fugured I would stay away from seafood. NOT WORKING! A few nights ago it was so bad, I got up and googled the DH again and read in depth. A lightbulb went off when I found this site.

So many of my symptoms matched the test.

Two miscarriages in the past 8 month, gas (all my life), DH, fatigue, irritability (who wouldn't be?), constipation and unexplained sudden bouts of joint pain.

There should be laws demanding gluten be labeled as such!

Good luck to you. Please wish me luck too.

pricklypear1971 Community Regular

Sorry to hear you have it down there Schelbo. My suspected DH (supposed to have it biopsied but doubting my strength to purposely gluten myself) is under my arms - so my lymph glands swell, i get pit b/o when the scans form, I can't wear a bra without aggravating it and causing pain...and since I'm a D cup that limits my life quite a bit during flares.

Do you notice that friction aggravates your DH? I've just gotten to the point where I know what it is and got it into remission and then accidentally glutened myself...so I haven't been able to test the friction theory.


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    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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