Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Some Input

lizard00

Recommended Posts

lizard00 Enthusiast
lizard00
Posted

I thought I would pose this question here since you are some of the most knowledgable folks I know. My son's teacher emailed me a couple of weeks ago that he had been going to the bathroom a lot. So we talked about it, and a couple of days later when I asked him about it again, he said he went at the appropriate times.

There are some days where I think he goes to the BR alot, and then some where I don't notice it. So of course, my radar was up for diabetes. :( Recently, he's been saying he's cold. Today he wore a long sleeved shirt out it was 90 degrees out (and humid!).

And he's hungry ALL of the time! I figured it was cause he was a 6 yr old growing boy, but he is always looking for something to eat, and he loves, loves, loves starchy stuff.

Any thoughts? Even my husband, who is usually not the alarmist, is wondering if we should take him to the doc.

As a side note: he was tested for celiac about 3 yrs ago, and it was negative. I was ok with that, since he really wasn't experiencing any symptoms, he was growing fine, etc. I mainly had him tested because I had recently been diagnosed, and I knew he carried the gene.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


stanleymonkey Explorer
stanleymonkey
Posted

get himr retested, and for anemia, my SIL is aneamic and feels the cold

tests are unreliable in young kids so now he's a bit older it may give you a psoitive

or even just remove gluten and see what happens, unless you need a diagnosis for insurance reasons, or to get cooperation with his school for glutren free lifestyle

def go to the doc, and ask for retesting

kareng Grand Master
kareng
Posted

I had a 4-7 yr old who always went if he was given the opportunity, passed the house bathroom or got bored shopping.

I would go to the doc & see about the diabetes and a UTI. They tested mine for the UTI because they said it doesn't always bother boys like it does girls. Mine was all negative, just a quirky boy. My boys find the A/C cold when just sitting still. They spend a lot of time , 1 outside working & camping the other in a poorly cooled office & no A/C warehouse.

lizard00 Enthusiast
lizard00
Posted
  • Author

I had a 4-7 yr old who always went if he was given the opportunity, passed the house bathroom or got bored shopping.

I would go to the doc & see about the diabetes and a UTI. They tested mine for the UTI because they said it doesn't always bother boys like it does girls. Mine was all negative, just a quirky boy. My boys find the A/C cold when just sitting still. They spend a lot of time , 1 outside working & camping the other in a poorly cooled office & no A/C warehouse.

We were at my my mom's last night and she and her husband don't turn on the air... ever. He wanted a blanket. :ph34r: Last night was milder than it has been, but the house was by NO means cold. It's just odd that he's always so cold.

I'm thinking he needs to go. I just am unsure if the two are related. I emailed his teacher and asked how the bathroom situation was going... never heard back, but it is the end of the year. I'll see her on Tuesday so I'm going to ask her about it again.

kareng Grand Master
kareng
Posted

We were at my my mom's last night and she and her husband don't turn on the air... ever. He wanted a blanket. :ph34r: Last night was milder than it has been, but the house was by NO means cold. It's just odd that he's always so cold.

I'm thinking he needs to go. I just am unsure if the two are related. I emailed his teacher and asked how the bathroom situation was going... never heard back, but it is the end of the year. I'll see her on Tuesday so I'm going to ask her about it again.

The cold parts a bit odd. I had 2 6 yr old boys & bathroom stuff can be an issue. Maybe thyroid for the cold part? I hope it's about yearly check-up time. The 2 things may be separate things - lucky you! :unsure:

cassP Contributor
cassP
Posted

i agree with everyone above- get him retested- it could have been triggered since then... or maybe there's enough abs now to show up.

also- i often (towards the end of my gluten days) felt like i was getting a bladder infection. i HONESTLY think that if i had continued to eat gluten- i may have developed Interstitial Cystitis. it seems like some of the autoimmune people i know have this- i wonder if it's common in ai disease.

also- i know its more common in women, and not common in childhood- but thyroid disease is still possible- and is often in those with autoimmune genes in the family. i was not diagnosed till i was 38- BUT i had Beau's Lines on my thumbnails ever since i was 8!!! and they did not go away untill 30 years later- after being on meds for a month!! so may be a good idea to check his thyroid- (a complete panel- and maybe also TPO abs)

Mummyto3 Contributor
Mummyto3
Posted

A sensitivity to cold could be thryoid related. That's how I was, I'm now on medication. I'd also check for diabetes and anemia. Do see a dr and discuss whats been happening and if it isn't mentioned, then ask about possibilities of thyroid issues, diabetes and anemia x

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


domesticactivist Collaborator
domesticactivist
Posted

Definitely get him tested for celiac, diabetes and thyroid issues. Oh, and one kind of anecdotal thing about the bathroom visits - I always needed to pee a lot, and have always had problems regulating blood sugar, but diabetes screening came back negative. Once we switched to the GAPS diet I stopped needing to pee all the time and I don't have those big blood sugar spikes and crashes any more.

Cara in Boston Enthusiast
Cara in Boston
Posted

I was told that my negative son needs to be tested every two years regardless of symptoms. MD said bring him in earlier if he has any symptoms before that. (Younger son has celiac disease - biopsy and I had a positive blood test but negative biopsy)

Cara

Darn210 Enthusiast
Darn210
Posted

Just a story to share on bathroom visits . . . in first grade when my son starting going to school full time (Kindergarten was part time), I noticed my son started having to go to the bathroom quite often. I took him to the doc and had him checked for a UTI which was negative. She said it was common that kids have a tendancy to mess up their ability to tell when they need to go. It starts off by holding it too long . . . repeatedly . . . like not wanting to go to the bathroom in school. Then when they do go, they don't empty their bladders all the way because they've lost the ability/sensation to tell if it's empty. Stress on the stretched out bladder muscles from constant full bladders can also lead to muscle spasms that give them an urgency to go. This all resulted in my son having to go to the bathroom ALL the time.

There was a medication to help with the spasms but the doc wanted us to try some "retraining" first and that took care of it so no medication was required.

We were suppose to send him to the bathroom every hour whether he needed to go or not. When he went to the bathroom, he was suppose to empty his bladder, wait a couple of minutes, try to go again (since he couldn't actually tell if his bladder was empty), also try bending over to help empty the bladder. I can't remember how long we did this . . . a week maybe . . . then started letting the interval get a little longer and longer.

We also added mini lectures/reminders about waiting too long to "go".

Hope your situation is something as benign as this. I would check with the doc, though, too.

shayre Enthusiast
shayre
Posted

My son had a UTI too, but he was potty training at the time. And it was for the reason stated above, and he just had to quit holding it. I have 2 boys, and they are ALWAYS hot! The clothes come off as soon as they come in the door. I have a hard time keeping clothes on them! I find that to be odd for a little boy to be cold so much. I am cold all of the time, but then I'm a grown up with multiple autoimmune issues...thyroid being one of them. Although my thyroid has been testing normal. Not to throw this in the mix, but if he is genetically prone to autoimmune issues...Lupus people are cold a lot too. I recently joined their forum, and they all complain about being cold. I'm sure that's not an issue, but just throwing it out there. My Endo and GI doc both said that the positive gene testing for celiac disease just really meant...that i was prone to autoimmune diseases in general...no matter how they decide to manifest themselves. I'd definitely get him checked anyway. Little boys should be warm from all of their energy...I would think.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.