Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease ?

tennisman

Recommended Posts

tennisman Contributor
tennisman
Posted

So the other day when talking about Celiac Disease I was interrupted . The person said Celiac Disease that's not a disease and they said it in a nasty way . This person doesn't have Celiac Disease and doesn't know much about it . Yet they told me Celiac Disease is not a disease and acted like it wasn's even an illness and wasn't bad as they eat gluten foods in front of me and said how nice it was . I felt angry at this comment I mean wtf does a non Celiac know about living with Celiac Disease. I feel Celiac Disease is so underated :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RL2011 Rookie
RL2011
Posted

So the other day when talking about Celiac Disease I was interrupted . The person said Celiac Disease that's not a disease and they said it in a nasty way . This person doesn't have Celiac Disease and doesn't know much about it . Yet they told me Celiac Disease is not a disease and acted like it wasn's even an illness and wasn't bad as they eat gluten foods in front of me and said how nice it was . I felt angry at this comment I mean wtf does a non Celiac know about living with Celiac Disease. I feel Celiac Disease is so underated :(

Looks like I have to start a celiac disease fight club. Let me know who wants to fight me about celiac disease.

mbrookes Community Regular
mbrookes
Posted

I don't think I would be much good at fighting, but I am an excellent cheer leader!

As with many things in life, we sometimes have to just consider the source and walk away. If you can't walk away, have a few good one line zingers ready.

Diane-in-FL Explorer
Diane-in-FL
Posted

So the other day when talking about Celiac Disease I was interrupted . The person said Celiac Disease that's not a disease and they said it in a nasty way . This person doesn't have Celiac Disease and doesn't know much about it . Yet they told me Celiac Disease is not a disease and acted like it wasn's even an illness and wasn't bad as they eat gluten foods in front of me and said how nice it was . I felt angry at this comment I mean wtf does a non Celiac know about living with Celiac Disease. I feel Celiac Disease is so underated :(

That is rude beyond belief. Ugh! Ignorance is rampant.

ravenwoodglass Mentor
ravenwoodglass
Posted

People can be real idiots. Sorry this person was such a jerk to you.

IrishHeart Veteran
IrishHeart
Posted

Celiac is greatly misunderstood--even in the medical community. :blink: So, the "average joe" is clueless. Is this person a friend, co-worker, family? if so, maybe they need to be educated about celiac disease?

OR---

we could send Richard over to kick some butt :) )

OR-- :)

You COULD say...."Celiac IS a disease, but I know how to treat it by eating gluten-free....unfortunately, I think your stupidity is incurable." <_<

That should do it. ;)

ravenwoodglass Mentor
ravenwoodglass
Posted

You COULD say...."Celiac IS a disease, but I know how to treat it by eating gluten-free....unfortunately, I think your stupidity is incurable." <_<

:lol::lol::lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GlutenFreeManna Rising Star
GlutenFreeManna
Posted

So the other day when talking about Celiac Disease I was interrupted . The person said Celiac Disease that's not a disease and they said it in a nasty way . This person doesn't have Celiac Disease and doesn't know much about it . Yet they told me Celiac Disease is not a disease and acted like it wasn's even an illness and wasn't bad as they eat gluten foods in front of me and said how nice it was . I felt angry at this comment I mean wtf does a non Celiac know about living with Celiac Disease. I feel Celiac Disease is so underated :(

I would have replied, "Oh really? When did you go to Medical school?"

Not that drs. know a lot about it but I'm assuming this person is not your dr since they are eating in front of you. Tennisman, did you ever find any relief from your symptoms? Or are they still thinking it's refractory celiac? If I were you and these people lived with me I would suspect my food was being tampered with. It has happened to other people here.

tennisman Contributor
tennisman
Posted
  • Author

Thanks everyone for the replies and advice :)

tennisman Contributor
tennisman
Posted
  • Author

Celiac is greatly misunderstood--even in the medical community. :blink: So, the "average joe" is clueless. Is this person a friend, co-worker, family? if so, maybe they need to be educated about celiac disease?

OR---

we could send Richard over to kick some butt :) )

OR-- :)

You COULD say...."Celiac IS a disease, but I know how to treat it by eating gluten-free....unfortunately, I think your stupidity is incurable." <_<

That should do it. ;)

I like "Celiac IS a disease, but I know how to treat it by eating gluten-free....unfortunately, I think your stupidity is incurable." if anyone says anything bad too me about celiac disease again I will reply with this :D

tennisman Contributor
tennisman
Posted
  • Author

I would have replied, "Oh really? When did you go to Medical school?"

Not that drs. know a lot about it but I'm assuming this person is not your dr since they are eating in front of you. Tennisman, did you ever find any relief from your symptoms? Or are they still thinking it's refractory celiac? If I were you and these people lived with me I would suspect my food was being tampered with. It has happened to other people here.

That would be a great reply :)

I still have stomach problems , I have to have a small bowel mri scan and some blood tests . But since refractory was mentioned I have taken advice from here :) And cut out a lot of processed foods. Also I have not eaten out anywhere , but had no real improvements. I tried cutting dairy out again for a few weeks and think I have improved a little. But I had some dairy this week and it didn't really make the pain worse. I don't normally eat with this person it's just a one off. That's terrible people have had there food tampered with :(

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

That would be a great reply :)

I still have stomach problems , I have to have a small bowel mri scan and some blood tests . But since refractory was mentioned I have taken advice from here :) And cut out a lot of processed foods. Also I have not eaten out anywhere , but had no real improvements. I tried cutting dairy out again for a few weeks and think I have improved a little. But I had some dairy this week and it didn't really make the pain worse. I don't normally eat with this person it's just a one off. That's terrible people have had there food tampered with :(

I hope your testing turns up something. And even if you are not feeling better yet maybe you will turn a corner soon. Just avoid the idiot that doesn't know what celiac disease is. ;)

tennisman Contributor
tennisman
Posted
  • Author

I hope your testing turns up something. And even if you are not feeling better yet maybe you will turn a corner soon. Just avoid the idiot that doesn't know what celiac disease is. ;)

Thanks , hopefully things improve soon :) I will do :D

cahill Collaborator
cahill
Posted

Celiac is greatly misunderstood--even in the medical community. :blink: So, the "average joe" is clueless. Is this person a friend, co-worker, family? if so, maybe they need to be educated about celiac disease?

OR---

we could send Richard over to kick some butt :) )

OR-- :)

You COULD say...."Celiac IS a disease, but I know how to treat it by eating gluten-free....unfortunately, I think your stupidity is incurable." <_<

That should do it. ;)

Priceless :D:lol:

I will keep these suggestion in mind :D

cahill Collaborator
cahill
Posted

That would be a great reply :)

I still have stomach problems , I have to have a small bowel mri scan and some blood tests . But since refractory was mentioned I have taken advice from here :) And cut out a lot of processed foods. Also I have not eaten out anywhere , but had no real improvements. I tried cutting dairy out again for a few weeks and think I have improved a little. But I had some dairy this week and it didn't really make the pain worse. I don't normally eat with this person it's just a one off. That's terrible people have had there food tampered with :(

Have you tried cutting soy out of your diet?? It made such a difference for me when I eliminated soy from my diet .

Hope your feeling better soon :)

tennisman Contributor
tennisman
Posted
  • Author

Have you tried cutting soy out of your diet?? It made such a difference for me when I eliminated soy from my diet .

Hope your feeling better soon :)

I was advised on here to cut soy out , but when I checked all the foods I eat only 1 product had soy in and I very rarely ate that product so don't really have any soy to cut out. I'm glad eliminating soy helped you :)

Thanks :)

Kimbalou Enthusiast
Kimbalou
Posted

So the other day when talking about Celiac Disease I was interrupted . The person said Celiac Disease that's not a disease and they said it in a nasty way . This person doesn't have Celiac Disease and doesn't know much about it . Yet they told me Celiac Disease is not a disease and acted like it wasn's even an illness and wasn't bad as they eat gluten foods in front of me and said how nice it was . I felt angry at this comment I mean wtf does a non Celiac know about living with Celiac Disease. I feel Celiac Disease is so underated :(

That's just awful!! It is not recognized like it should be. I think people just think it's a food allergy and that's it. Let me know who it was and I'll kick some butt too!!

IrishHeart Veteran
IrishHeart
Posted

That's just awful!! It is not recognized like it should be. I think people just think it's a food allergy and that's it. Let me know who it was and I'll kick some butt too!!

Looks like Richard has another recruit for his "fight club" :lol: ...go, kimbalou!!!

tennisman Contributor
tennisman
Posted
  • Author

That's just awful!! It is not recognized like it should be. I think people just think it's a food allergy and that's it. Let me know who it was and I'll kick some butt too!!

It's a shame celiac disease is not recognized like it should be :( I have had more than 1 doctor say all you have is a food allergy . Hopefully one day people will understand celiac disease better , Thanks :)

Mummyto3 Contributor
Mummyto3
Posted

I think if people knew the health risks if you are coeliac and don't cut out gluten, then they'd realise just how serious it is!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products...
    2. Matthias
      - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing...
    3. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    4. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    5. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748
    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.