Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease ?

tennisman

Recommended Posts

tennisman Contributor
tennisman
Posted

So the other day when talking about Celiac Disease I was interrupted . The person said Celiac Disease that's not a disease and they said it in a nasty way . This person doesn't have Celiac Disease and doesn't know much about it . Yet they told me Celiac Disease is not a disease and acted like it wasn's even an illness and wasn't bad as they eat gluten foods in front of me and said how nice it was . I felt angry at this comment I mean wtf does a non Celiac know about living with Celiac Disease. I feel Celiac Disease is so underated :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RL2011 Rookie
RL2011
Posted

So the other day when talking about Celiac Disease I was interrupted . The person said Celiac Disease that's not a disease and they said it in a nasty way . This person doesn't have Celiac Disease and doesn't know much about it . Yet they told me Celiac Disease is not a disease and acted like it wasn's even an illness and wasn't bad as they eat gluten foods in front of me and said how nice it was . I felt angry at this comment I mean wtf does a non Celiac know about living with Celiac Disease. I feel Celiac Disease is so underated :(

Looks like I have to start a celiac disease fight club. Let me know who wants to fight me about celiac disease.

mbrookes Community Regular
mbrookes
Posted

I don't think I would be much good at fighting, but I am an excellent cheer leader!

As with many things in life, we sometimes have to just consider the source and walk away. If you can't walk away, have a few good one line zingers ready.

Diane-in-FL Explorer
Diane-in-FL
Posted

So the other day when talking about Celiac Disease I was interrupted . The person said Celiac Disease that's not a disease and they said it in a nasty way . This person doesn't have Celiac Disease and doesn't know much about it . Yet they told me Celiac Disease is not a disease and acted like it wasn's even an illness and wasn't bad as they eat gluten foods in front of me and said how nice it was . I felt angry at this comment I mean wtf does a non Celiac know about living with Celiac Disease. I feel Celiac Disease is so underated :(

That is rude beyond belief. Ugh! Ignorance is rampant.

ravenwoodglass Mentor
ravenwoodglass
Posted

People can be real idiots. Sorry this person was such a jerk to you.

IrishHeart Veteran
IrishHeart
Posted

Celiac is greatly misunderstood--even in the medical community. :blink: So, the "average joe" is clueless. Is this person a friend, co-worker, family? if so, maybe they need to be educated about celiac disease?

OR---

we could send Richard over to kick some butt :) )

OR-- :)

You COULD say...."Celiac IS a disease, but I know how to treat it by eating gluten-free....unfortunately, I think your stupidity is incurable." <_<

That should do it. ;)

ravenwoodglass Mentor
ravenwoodglass
Posted

You COULD say...."Celiac IS a disease, but I know how to treat it by eating gluten-free....unfortunately, I think your stupidity is incurable." <_<

:lol::lol::lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GlutenFreeManna Rising Star
GlutenFreeManna
Posted

So the other day when talking about Celiac Disease I was interrupted . The person said Celiac Disease that's not a disease and they said it in a nasty way . This person doesn't have Celiac Disease and doesn't know much about it . Yet they told me Celiac Disease is not a disease and acted like it wasn's even an illness and wasn't bad as they eat gluten foods in front of me and said how nice it was . I felt angry at this comment I mean wtf does a non Celiac know about living with Celiac Disease. I feel Celiac Disease is so underated :(

I would have replied, "Oh really? When did you go to Medical school?"

Not that drs. know a lot about it but I'm assuming this person is not your dr since they are eating in front of you. Tennisman, did you ever find any relief from your symptoms? Or are they still thinking it's refractory celiac? If I were you and these people lived with me I would suspect my food was being tampered with. It has happened to other people here.

tennisman Contributor
tennisman
Posted
  • Author

Thanks everyone for the replies and advice :)

tennisman Contributor
tennisman
Posted
  • Author

Celiac is greatly misunderstood--even in the medical community. :blink: So, the "average joe" is clueless. Is this person a friend, co-worker, family? if so, maybe they need to be educated about celiac disease?

OR---

we could send Richard over to kick some butt :) )

OR-- :)

You COULD say...."Celiac IS a disease, but I know how to treat it by eating gluten-free....unfortunately, I think your stupidity is incurable." <_<

That should do it. ;)

I like "Celiac IS a disease, but I know how to treat it by eating gluten-free....unfortunately, I think your stupidity is incurable." if anyone says anything bad too me about celiac disease again I will reply with this :D

tennisman Contributor
tennisman
Posted
  • Author

I would have replied, "Oh really? When did you go to Medical school?"

Not that drs. know a lot about it but I'm assuming this person is not your dr since they are eating in front of you. Tennisman, did you ever find any relief from your symptoms? Or are they still thinking it's refractory celiac? If I were you and these people lived with me I would suspect my food was being tampered with. It has happened to other people here.

That would be a great reply :)

I still have stomach problems , I have to have a small bowel mri scan and some blood tests . But since refractory was mentioned I have taken advice from here :) And cut out a lot of processed foods. Also I have not eaten out anywhere , but had no real improvements. I tried cutting dairy out again for a few weeks and think I have improved a little. But I had some dairy this week and it didn't really make the pain worse. I don't normally eat with this person it's just a one off. That's terrible people have had there food tampered with :(

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

That would be a great reply :)

I still have stomach problems , I have to have a small bowel mri scan and some blood tests . But since refractory was mentioned I have taken advice from here :) And cut out a lot of processed foods. Also I have not eaten out anywhere , but had no real improvements. I tried cutting dairy out again for a few weeks and think I have improved a little. But I had some dairy this week and it didn't really make the pain worse. I don't normally eat with this person it's just a one off. That's terrible people have had there food tampered with :(

I hope your testing turns up something. And even if you are not feeling better yet maybe you will turn a corner soon. Just avoid the idiot that doesn't know what celiac disease is. ;)

tennisman Contributor
tennisman
Posted
  • Author

I hope your testing turns up something. And even if you are not feeling better yet maybe you will turn a corner soon. Just avoid the idiot that doesn't know what celiac disease is. ;)

Thanks , hopefully things improve soon :) I will do :D

cahill Collaborator
cahill
Posted

Celiac is greatly misunderstood--even in the medical community. :blink: So, the "average joe" is clueless. Is this person a friend, co-worker, family? if so, maybe they need to be educated about celiac disease?

OR---

we could send Richard over to kick some butt :) )

OR-- :)

You COULD say...."Celiac IS a disease, but I know how to treat it by eating gluten-free....unfortunately, I think your stupidity is incurable." <_<

That should do it. ;)

Priceless :D:lol:

I will keep these suggestion in mind :D

cahill Collaborator
cahill
Posted

That would be a great reply :)

I still have stomach problems , I have to have a small bowel mri scan and some blood tests . But since refractory was mentioned I have taken advice from here :) And cut out a lot of processed foods. Also I have not eaten out anywhere , but had no real improvements. I tried cutting dairy out again for a few weeks and think I have improved a little. But I had some dairy this week and it didn't really make the pain worse. I don't normally eat with this person it's just a one off. That's terrible people have had there food tampered with :(

Have you tried cutting soy out of your diet?? It made such a difference for me when I eliminated soy from my diet .

Hope your feeling better soon :)

tennisman Contributor
tennisman
Posted
  • Author

Have you tried cutting soy out of your diet?? It made such a difference for me when I eliminated soy from my diet .

Hope your feeling better soon :)

I was advised on here to cut soy out , but when I checked all the foods I eat only 1 product had soy in and I very rarely ate that product so don't really have any soy to cut out. I'm glad eliminating soy helped you :)

Thanks :)

Kimbalou Enthusiast
Kimbalou
Posted

So the other day when talking about Celiac Disease I was interrupted . The person said Celiac Disease that's not a disease and they said it in a nasty way . This person doesn't have Celiac Disease and doesn't know much about it . Yet they told me Celiac Disease is not a disease and acted like it wasn's even an illness and wasn't bad as they eat gluten foods in front of me and said how nice it was . I felt angry at this comment I mean wtf does a non Celiac know about living with Celiac Disease. I feel Celiac Disease is so underated :(

That's just awful!! It is not recognized like it should be. I think people just think it's a food allergy and that's it. Let me know who it was and I'll kick some butt too!!

IrishHeart Veteran
IrishHeart
Posted

That's just awful!! It is not recognized like it should be. I think people just think it's a food allergy and that's it. Let me know who it was and I'll kick some butt too!!

Looks like Richard has another recruit for his "fight club" :lol: ...go, kimbalou!!!

tennisman Contributor
tennisman
Posted
  • Author

That's just awful!! It is not recognized like it should be. I think people just think it's a food allergy and that's it. Let me know who it was and I'll kick some butt too!!

It's a shame celiac disease is not recognized like it should be :( I have had more than 1 doctor say all you have is a food allergy . Hopefully one day people will understand celiac disease better , Thanks :)

Mummyto3 Contributor
Mummyto3
Posted

I think if people knew the health risks if you are coeliac and don't cut out gluten, then they'd realise just how serious it is!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    2. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    3. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
    4. trents
      - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

      What kind of practitioner did the blood test? Was this a medical doctor, a naturopathic doctor, a GI doc? I would certainly follow up with them and ask why they advised you not to eat red meat. I mean, it could be something like they, themselves, are a vegetarian and give that advice to everyone. Have you had an endoscopy with biopsy of the small bowel...
    5. knitty kitty
      - knitty kitty replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      2

      Dizziness after eating green beans?

      @EndlessSummer, You said you had an allergy to trees. People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits. Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease. Switching to a low histamine diet for a while can give your body time to rid itself of...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,692
    • Most Online (within 30 mins)
      7,748
    Ali Zaib
    Newest Member
    Ali Zaib
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      Issues before diagnosis

      By sha1091a · Posted

      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Dizziness after eating green beans?

      By trents · Posted

      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.