Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lack Of B12 Responsible For Low Energy?


speedy2056

Recommended Posts

speedy2056 Apprentice

Well, as I've always said in my posts, my blood test came back negative so I diagnosed myself as gluten or wheat intolerant.

Anyway, I've noticed that every time I drank a glass of milk in the past few days my energy levels had risen soon after. I studied on Google about the importance of B12 and how it can give people energy. In fact, B12 is given to the elderly to give their energy levels a boost! I learnt that food such as steaks contain lots of B12. I had some steak and milk, and today I had the energy to clean my whole house as well as do many other things. Is it a coincidence?

One symptom of low B12 is being manic. There were times when I displayed manic behaviour and I was talking fast to people, and I was writing articles (I'm an editor for some news websites) at ungodly hours of the morning. In a way I wish that kind of feeling would come back as it gave me great motivation, and it inspired me to write fresh material. People looked at me like I was crazy during those periods, but they were fun!

Anyway, after the manic periods would pass I began to think I was, perhaps, bipolar, but with the pieces of the puzzle I have been putting together in the past few days, it's making sense.

I know that "Celiacs" have been known to have low B vitamin levels, but I also read that even if you were just wheat intolerant that B12 deficiency does frequently occur.

Looking back, I didn't include a lot of B12 foods in my diet at all. I ate eggs, but they do not contain enough B12 to treat deficiencies. I ate some small tins of fish, and that is about it.

Anyway, if you are feeling low or you do not have much motivation to do much in your life then try eating B12 foods. You may just be surprised!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Diane-in-FL Explorer

Well, as I've always said in my posts, my blood test came back negative so I diagnosed myself as gluten or wheat intolerant.

Anyway, I've noticed that every time I drank a glass of milk in the past few days my energy levels had risen soon after. I studied on Google about the importance of B12 and how it can give people energy. In fact, B12 is given to the elderly to give their energy levels a boost! I learnt that food such as steaks contain lots of B12. I had some steak and milk, and today I had the energy to clean my whole house as well as do many other things. Is it a coincidence?

One symptom of low B12 is being manic. There were times when I displayed manic behaviour and I was talking fast to people, and I was writing articles (I'm an editor for some news websites) at ungodly hours of the morning. In a way I wish that kind of feeling would come back as it gave me great motivation, and it inspired me to write fresh material. People looked at me like I was crazy during those periods, but they were fun!

Anyway, after the manic periods would pass I began to think I was, perhaps, bipolar, but with the pieces of the puzzle I have been putting together in the past few days, it's making sense.

I know that "Celiacs" have been known to have low B vitamin levels, but I also read that even if you were just wheat intolerant that B12 deficiency does frequently occur.

Looking back, I didn't include a lot of B12 foods in my diet at all. I ate eggs, but they do not contain enough B12 to treat deficiencies. I ate some small tins of fish, and that is about it.

Anyway, if you are feeling low or you do not have much motivation to do much in your life then try eating B12 foods. You may just be surprised!

Have you actually had your B12 levels checked? You may need supplements. Most of us do. The sublingual kind seem to work best. A deficiency in B12 can definitely cause low energy and if you still have intestinal damage and aren't absorbing vitamins from food well enough, you may need to add supplements. Good luck!

speedy2056 Apprentice

Have you actually had your B12 levels checked? You may need supplements. Most of us do. The sublingual kind seem to work best. A deficiency in B12 can definitely cause low energy and if you still have intestinal damage and aren't absorbing vitamins from food well enough, you may need to add supplements. Good luck!

Yeah, I knew about sometimes it being a necessity to have levels checked but I haven't so far. I may book an appointment with my doctor to confirm they are low. But I do think it's too much of a coincidence that I feel much better once I have had foods with B12. I have had sublingual B12 before. It may be time for me to purchase another bottle. Thanks!

modiddly16 Enthusiast

I get B12 shots and take suppliments, it took awhile to figure out but after 7 years being gluten free this year has been a hard one for me. I've been sick, as if I'm eating gluten, yet am not having issues with any other intolerences, it was almost like I was just always sick. Finally, my GI realized that my b12's were "freakishly low" which is why I was lethargic and having such terrible stomach issues (which also triggered anxiety issues). I'm going on half a year with the shots and my levels are still not in the normal range. The dr. is pretty convinced that I've had this deficiancy for quite a few years and it just wasn't looked for. I'd definitely get your levels checked and pick up some supplements!

Lori2 Contributor

Despite the fact that my blood levels of B12 are high, I seem to have some symptoms of B12 deficiency--such as neuropathy. I have read that your body may not use the vitamin efficiently and so blood levels may not always be a good indicator of your status. Is there any test that would show this?

From Wikipedia (not always 100% accurate) "serum levels do not necessarily correlate with efficient utilization of B12"

Pyro Enthusiast

Now that you've put it that way I should probably get it checked again and look into it. I've gone through MONTHS of spacey/cloudy thoughts, weakness, and fatigue that get interrupted by some "normal". I'll feel so much better that I'll wonder how I even put up with all that for so long. But the sublingual tabs don't really help much and lead me to think something else is wrong rather than B12.

speedy2056 Apprentice

I read on Google today that B12 is most easily absorbed by drinking milk. I think that's coincidental considering that in my original post I talked about feeling better after drinking milk!!

Open Original Shared Link

Open Original Shared Link

Yeah, I'll probably ask for an appointment to see my doctor next week about my vitamin levels. I think I may need some shots.

On a sidenote, I think I accidentally got glutened AGAIN. I drank yazoo milk shake, and even though it's officially gluten free, they are made in factories where cross contamination can happen. I feel sniffly and anxious again. Grrr.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WestyPDX Newbie

I think I may need some shots.

Interesting links. Something to think about before you go for B-12 shots:

When I had an untypical bad reaction to thyroid medication some years ago, my doctor ran a battery of tests. After finding my B-12 levels were "dangerously" low (I think the reading was 90), I started going in for weekly, then monthly B-12 shots. But the shots barely moved the test results beyond 120, this was after he declared that I'd been shot up with "enough B-12 to last 5 years."

He then had me go in for a Schilling's Test at one of the local hospitals. What the test does is put radioactive markers on B-12 with and without Intrinsic Factor attached to it. I absorbed more without IF, to everyone's complete surprise. The radiology lab even had me come in to re-run the test for free just to make sure of the results.

Tired of forking out a $20 co-pay every month for a shot that was doing little good, I found that the cheap B-12 supplement under the Kroger stores in-house brand is derived from liver. I bought a bottle. Cost me all of 3 bucks. My B-12 levels shot up quickly to around 500 within the same period of time that shots only moved my numbers from 90 to 120.

My doctor said, "it's not supposed to work that way, but I can't argue with the numbers."

So before you resign yourself to paying for an office visit every time you get a shot of B-12, you might try a liver-based B-12 supplement first. The links you gave describing how B-12 is absorbed and processed, certainly point towards some credence for going this way.

You also need calcium to make the whole process work (probably why drinking milk works for you). I take a liquid form of triple calcium with fish oil from Applied Nutrition. It's expensive, about $10-15 for a 3-week supply at my local Walgreen's, but they don't sit in my stomach like a bunch of rocks like other calcium supplements can. The soft-gels also contain a fair amount of magnesium and 1000IU of Vitamin D per serving. I can't say enough good things about this product.

Skylark Collaborator

Low B12 can cause mania??? OMG. :blink:

  • 11 months later...
koz158 Apprentice

Has any one tried these B12 Energy Shots (drink type shots) by "1st step for energy"? I haven't been able to find anything saying that they are or are not gluten free but I wanted to see if it would be an option for getting thing jump started for my wife in the mornings.

Chad Sines Rising Star

Some docs will show you how to give the shots to yourself. It is extremely easy and cheap.

Skylark Collaborator

Has any one tried these B12 Energy Shots (drink type shots) by "1st step for energy"? I haven't been able to find anything saying that they are or are not gluten free but I wanted to see if it would be an option for getting thing jump started for my wife in the mornings.

They are talking about B12 injections, not "shots" in the sense of drinking it. In a B12 supplement you ideally want methylcobalamin, not the cyanocobalamin in the 1st Step B12. Methylcobalamin is a natural form of B12 your body can make better use of. Their Energy for Life product has only 9 mcg of B12, nowhere near enough to reverse a deficiency.

frieze Community Regular

Despite the fact that my blood levels of B12 are high, I seem to have some symptoms of B12 deficiency--such as neuropathy. I have read that your body may not use the vitamin efficiently and so blood levels may not always be a good indicator of your status. Is there any test that would show this?

From Wikipedia (not always 100% accurate) "serum levels do not necessarily correlate with efficient utilization of B12"

the test measures B12 and B12 analog. If you want a better measure of sufficiency, get a MMA or homocysteine level done, if either is elevated, you need B12.

cavernio Enthusiast

I didn't know B12 deficiency causes mania, but I'd bet that it could. (I've got some mentally ill relatives one with bi-polar and one with mania, and recently the daughter finds she does better avoiding gluten and dairy, so she prolly has low b12, and her dad might also be celiac.)

About the intrinsic factor and absorption WestyPDX, that kinda makes sense seeing as you're a celiac. B12 with IF is better absorption because your body actively picks up the B12. This means the intestines react to it and make something to pick it up and then transport it across your intestines. B12 just straight up just gets passively absorbed, ie: it can pass through the intestinal solely based on diffusion/chance.

2 things: 1. celiacs intestines are damaged so whatever mechanism required for the active absorption of IF B12 is probably still damaged in you WestyPDX, and 2. Celiacs have larger gaps between for more passive absorption in your intestines, and so it makes sense for to passively absorb more B12 without the IF than a non-celiac.

B12 bound to IF will, like everything else, be able to be passively absorbed too, but it will also be a larger molecule and so is less likely to get passively absorbed.

I'm not doctor or anatomy expert, but it logically makes sense from the tibits of information I've learned for myself. I'd love for you to run it by your doctor and see what they say!

LeahBanicki Rookie

I also use sublinguals. The swallow only pills sometimes make me SOOO sick. <_<

I don't seem to have any adverse reaction to the sublinguals, I keep them in my purse so I know I can get to them if I am feeling drained.

Lisa Mentor

I also use sublinguals. The swallow only pills sometimes make me SOOO sick. <_<

I don't seem to have any adverse reaction to the sublinguals, I keep them in my purse so I know I can get to them if I am feeling drained.

Be careful. You might want to pop a red bull, instead of popping a B-12. Better yet, go to a doctor and find out why you're low and medicate appropriately.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

    2. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    3. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,416
    • Most Online (within 30 mins)
      7,748

    Heather8280
    Newest Member
    Heather8280
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.