Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Have You Ever Gone All The Way Once You Realize You've Been Glutened?


zus888

Recommended Posts

zus888 Contributor

Have you ever eaten something and then (almost immediately) realize that it had gluten in it? I've taken great care to make sure that I'm not eating gluten. The one time I did accidentally ingest it, I didn't figure out what had happened until about 3 days after the fact.

I am seriously missing pizza, angelfood cake, and dinner rolls.

I have these dreams where I eat something and immediately realize that I've just consumed something with lots of gluten, and freak out. And, I'm thinking, if that ever happens in real life (where I discover immediately that I've consumed something with gluten), I'm going to make a day of it and gorge on gluten-filled foods that I miss so much, starting with the above. I figure, if I'm going to suffer the consequences, I might as well enjoy the action and make it worth my while.

Has anyone done this???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sa1937 Community Regular

Suzanna, I can't imagine myself doing that...I am absolutely too chicken to even think what my reactions would be.

That said, there's no reason you can't have pizza, angel food cake and dinner rolls (gluten-free, of course). Do you cook? I made a really good pizza last weekend and that is one thing I really craved when I first went gluten-free. Haven't tried angel food cake yet.

mamaw Community Regular

I agree with Sylvia totally!!!!

zus888 Contributor

I haven't tried angel food cake because I can't even make a decent pie crust, tollhouse chocolate chip cookie or cake using Better Batter Flour, which cost an arm and leg and came highly recommended. I'm sick of using an expensive flour only to come up with a subpar end product. I'm still fairly new to the gluten-free diet, so my standards are still high. I've had a couple of different pizzas: Glutino crust (gag - not even my kids and DH would eat it), a pizza from a local shop (98% toppings and 2% crust), and a pizza made by a friend (which was the best of all of them).

None of them stand up to a glutenous pizza crust. I like a nice soft thick crust. That was my favorite part was eating the edge of the pizza. Now, I have to be subjected to thin crusts that taste like cardboard, where the only way to mask their craptastic taste and texture is to pile on the toppings so that the crust only serves as a way to hold them.

So, I dream longingly of eating a pizza. But I won't dare do it unless there's been an accidental glutening on my part. I have been only glutened once and it took me 3 days to figure out that I had been glutened. I don't seem to suffer the digestive effects. I got depressed and completely fatigued, and it was pretty bad. I just feel if I have to go through that with a small amount of gluten that I probably didn't enjoy, I might as well make the suffering worth my while if I'm gonna go through it anyway.

I wanted to try Pamela's pizza crust, but I don't have a stand mixer, which it states is required for mixing in bold letters.

GlutenFreeManna Rising Star

I understand that you are having cravings. When I get glutened I have those weird cravings too but I just eat gluten-free stuff that will make me feel better instead. After the one experience I had about 6 months ago I would not chance eating large amounts of gluten no matter how bad the cc got me. I ordered gluten-free pasta at a restaurant with a gluten-free menu and they brought me regular gluten-filled pasta instead. I ate about two or three bites and realized it was not the gluten-free stuff. I was SO sick from those 2-3 bites of pasta that I ended up developing brochitis, which turned into pnuemonia and put me the hospital. 3 months of sickness was not worth those three bites and it wouldn't have made me any better off had I eaten the whole plate and some breadsticks too. To be clear, I'm not saying the gluten gave me pnuemonia but I have no doubt that it made me more suseptible because my immune system was trying to deal with the large amount of gluten attacking it. Even if you have very mild glutening symptoms, there are dire consequences down the line if you don't stick to the diet. I just think of my grandmother, an intestinal cancer survivor, suffering with hashi's and dementia right now and I know I don't want to end up like her. Pick a disease, any disease, that is related to un-treated celiac (which ever one scares you the most) and use the desire to avoid getting it to keep you focused on staying strictly gluten-free.

gfkikamonster Newbie

Yeah, I would be afraid of how much worse my reaction would be if I ate that much. I haven't made angel food cake, but I make homemade pizza all the time (Chebe is an easy option). Also, a few years ago some friends were willing to have a gluten-free Thanksgiving and we made all the hard stuff (gravy, rolls, etc).. we used Pamela's Products Bread mix and this recipe: Open Original Shared Link My friend that had never eaten gluten-free bread in her life asked me for the recipe because she loved them so much. I've had other good gluten-free dinner rolls in my life but those were the biggest success. A little extra work to make the cloverleaf style but they are so good. :-)

Basically, instead of craving things and torturing yourself by eating the gluten versions, take a leap and try making things for yourself. I bet you'll find you can satisfy most of your cravings, without making yourself sick!!

Kika

kwylee Apprentice

I'm thinking, if that ever happens in real life (where I discover immediately that I've consumed something with gluten), I'm going to make a day of it and gorge on gluten-filled foods that I miss so much, starting with the above. I figure, if I'm going to suffer the consequences, I might as well enjoy the action and make it worth my while.

I certainly understand where your angst comes from but (I think you know what's coming here...) you might sorely regret the notion to make a day of overdosing on gluten after an accidental ingestion. There are so many stories out there of slow painful recovery from even cross contamination for some folks - consider the idea of symptoms commensurate with the amount eaten, not to mention the damage to your system. I've found so many wonderful things to eat since I cannot eat gluten, including my best friend, black bean brownies!!! 5 minutes to prepare, 15 minutes to bake. Ever so often I'll make a tray of those, and since they are gluten/casein/soy free, fabulous, and the best brownies I have ever eaten, I don't feel deprived.

I like the suggestion above about making your own treats and comforts. Decide what you feel deprived of and find a way to perfect it. I've never been much for cooking or baking before now, and I can do it, anybody can.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

I haven't tried angel food cake because I can't even make a decent pie crust, tollhouse chocolate chip cookie or cake using Better Batter Flour, which cost an arm and leg and came highly recommended. I'm sick of using an expensive flour only to come up with a subpar end product. I'm still fairly new to the gluten-free diet, so my standards are still high. I've had a couple of different pizzas: Glutino crust (gag - not even my kids and DH would eat it), a pizza from a local shop (98% toppings and 2% crust), and a pizza made by a friend (which was the best of all of them).

None of them stand up to a glutenous pizza crust. I like a nice soft thick crust. That was my favorite part was eating the edge of the pizza. Now, I have to be subjected to thin crusts that taste like cardboard, where the only way to mask their craptastic taste and texture is to pile on the toppings so that the crust only serves as a way to hold them.

So, I dream longingly of eating a pizza. But I won't dare do it unless there's been an accidental glutening on my part. I have been only glutened once and it took me 3 days to figure out that I had been glutened. I don't seem to suffer the digestive effects. I got depressed and completely fatigued, and it was pretty bad. I just feel if I have to go through that with a small amount of gluten that I probably didn't enjoy, I might as well make the suffering worth my while if I'm gonna go through it anyway.

I wanted to try Pamela's pizza crust, but I don't have a stand mixer, which it states is required for mixing in bold letters.

Try this recipe: Open Original Shared Link

It's the best I have found so far. The crust comes out thick and fluffy almost like a pizza hut pizza. It does require a mixer but I just use my little hand mixer instead of a stand mixer.

For cakes--pamela's cake mix is the best I have found. Betty crocker is just okay--the chocolate is good but the yellow is too dry unless you make cup cakes or add something else to the better to make it more moist.

Pie crust is probably one of the harder things to make. I have not found one that works for me. I make crumb type crusts with chopped dates and nuts pressed into the pie plate instead.

Cookies are not as hard but you can't usually just sub any flour mix for a recipe for gluten cookies and get a good result. Try using a recipe that was written specifically for the flour mix you bought instead.

Once you get a hang of baking gluten-free you can play with subbing different flours and may be able to re-create some of your old favorites, but gluten-free flours and doughs really behave differently than glutne flours. It take a lot of expereince to know what will work as a sub in a recipe. I don't yet have that experience and I've been at this for 20 months now. I don't bake very much however.

PadmeMaster Apprentice

None of them stand up to a glutenous pizza crust. I like a nice soft thick crust. That was my favorite part was eating the edge of the pizza. Now, I have to be subjected to thin crusts that taste like cardboard, where the only way to mask their craptastic taste and texture is to pile on the toppings so that the crust only serves as a way to hold them.

Look for a BJ's Brewhouse near you. Their gluten free pizza is AWESOME. Also, Bob's Red Mill Pizza crust is good. I'm a total fail at making pizza crust (always have been, even though I can cook almost anything else at least to some degree) and the Bob's Red Mill turned out really good. You just need one packet (as opposed to the two I used of gluten-filled packets) and I only used olives and cheese and like a 1/4 pound of hamburger meat. Come to think of it, once I find some dairy free cheese (at all >.>) I should do that again.. My pizza was better than the rest of the family's was ;) Everyone wanted mine! :o

Edit:

Cookies are not as hard but you can't usually just sub any flour mix for a recipe for gluten cookies and get a good result.

While I've found that to be generally true, you CAN just take a basic sugar cookie recipe, add whatever you want (removing baking powder and adding soda instead), and then add some sorghum (I forget if it has a flour in the name). Use any sort of Gluten Free flour otherwise. Sorghum is an excellent thickener. It does have a taste though. My mom didn't like it. The Bob's Red Mill "All purpose" has it premixed and I've foudn that that works for any recipe except pancakes (where it's still too lose, but that's because I don't truly measure.)

PadmeMaster Apprentice

including my best friend, black bean brownies!!! 5 minutes to prepare, 15 minutes to bake. Ever so often I'll make a tray of those, and since they are gluten/casein/soy free, fabulous, and the best brownies I have ever eaten, I don't feel deprived.

Sorry to double post but PLEASSEEEE give that recipe away? :)

kwylee Apprentice

Sorry to double post but PLEASSEEEE give that recipe away? :)

Oops! Here you go! Link to recipe for black bean brownies!! I use the Enjoy Life chocolate chips on top but not even necessary if you can't find them.

Open Original Shared Link

sa1937 Community Regular

For pizza, I'm generally using Jules Shepard's recipe found Open Original Shared Link. I prefer a thinner crust and use a 14" pan instead of the 12" recommended. I don't know how I'd manage though if I didn't have a stand mixer. While I do have her flour, here's a recipe for her Open Original Shared Link, which I think is probably pretty much the same. She also recommends saut

ERR Apprentice

Have you ever eaten something and then (almost immediately) realize that it had gluten in it? I've taken great care to make sure that I'm not eating gluten. The one time I did accidentally ingest it, I didn't figure out what had happened until about 3 days after the fact.

I am seriously missing pizza, angelfood cake, and dinner rolls.

I have these dreams where I eat something and immediately realize that I've just consumed something with lots of gluten, and freak out. And, I'm thinking, if that ever happens in real life (where I discover immediately that I've consumed something with gluten), I'm going to make a day of it and gorge on gluten-filled foods that I miss so much, starting with the above. I figure, if I'm going to suffer the consequences, I might as well enjoy the action and make it worth my while.

Has anyone done this???

I haven't done it, but I have had the exact same thought process. I appreciate everyone being positive and focusing on what you can have, but I miss exactly the pizza crust you describe. Man.

love2travel Mentor

I can understand what you mean about going all the way if you've becomed glutened anyway, but I just could not do it. When I ate gluten (on my challenge) it did not make me sick at all. I've been gluten-free six months now and back in March was accidentally glutened but did not get sick. So, since the I have no idea whether I have been or not but am incredibly strict. Just those few bites would not be worth the potential internal damage and months of hard work.

Believe me, I hear you on the pizza. I've had the best on the planet (many times in Naples, Florence, etc.) and no matter how good the gluten-free version is (and there are a few pretty decent ones) they just do not come close. We were in Venice in May and are returning October; it is not a simple thing to stroll by pizzarias with the gorgeous scents emanating from within! I consider myself an excellent and very creative cook and have a very hard time settling for something that is second best. When I think of something I want I simply create it and very rarely purchase any gluten-free drywall snacks, mixes, blends, etc. In addition to awesome pizza crust I mourn proper buttery croissants, puff pastry, beignets, ciabatta bread and fabulous homemade pasta. Sure, there are sort of almost ok substitutes, but face it - there just is no substitute for gluten-y breads, buns and pizza. It just cannot happen because you need the gluten for stretch, chew and structure.

But cookies, brownies, cakes, pancakes, focaccia, naan, quick breads and pastries are all easy to make gluten-free thankfully. So, I use my creativity to create awesome things that do not include croissants et. al. I mentioned above. I would rather not have them at all than to have an icky imperfect version.

T.H. Community Regular

Oh man, yes I have had that thought. It doesn't happen when I'm eating normal food and get gluten contamination, though. I just feel miserable, then.

But a few times when I'm being very careful, often in a social situation, and I have blech food only and I STILL get sick - the urge hits me. For me, though, the urge usually involves wanting to eat foods I'm mildly allergic to.

I react with sore throat, headache, stomach ick, and flu-like symptoms to most of my food allergies. So when I'm suddenly dizzy and sick, from food I didn't even LIKE? Yeah, I have given in and eaten a couple foods I'm allergic to that taste good at that point.

And then usually regret it pretty much by the time it hits my stomach, if not before. And feel even more terrible and can't imagine why I thought this wouldn't be worse than just gluten sick.

:rolleyes:

zus888 Contributor

Well, one craving is gone. I just ate half a package of Kinni-Toos (gluten-free oreos). I feel a bit better now. And, really, I could eat the rest of the package. Nevertheless, I sure would like to sink my teeth into some gluten-filled stuff!

PadmeMaster Apprentice

Well, one craving is gone. I just ate half a package of Kinni-Toos (gluten-free oreos). I feel a bit better now. And, really, I could eat the rest of the package. Nevertheless, I sure would like to sink my teeth into some gluten-filled stuff!

you managed to stop at half?! I have to bag them when I get home (and by then a third of the package is gone anyway) to make them last! :)

Just take the gluten-free version. It's typically better anyway ;) I look at a regular oreo and think "that looks interesting, but mine is better!" :)

zus888 Contributor

Except you get more for your money. Yeah, the bag is gone. I ate all of it in one day except the one cookie my DH grabbed. That's 1000 calories of cookies right there. Yet, still can't stop thinking of pizza crust, angel food cake, and soft dinner rolls. I really need to try the Bob's Red Mill crust and Chebe rolls I have here.

Monael Apprentice

I know exactly what you mean. I took my kids to a local Pizza place that also serves gluten-free pizza and it just was not the same! Pizza is the #1 thing I just can't replace with a gluten free option.

HOWEVER, I am too scared to eat gluten filled food. I haven't even been formally diagnosed, but my symptoms are almost completely gone, and I don't want to go back to that ever again! A few moments pleasure - for me - is just not worth it. There are too many yummy things to eat that I can't in good conscience complain about not being able to eat gluten anymore.

sa1937 Community Regular

Except you get more for your money. Yeah, the bag is gone. I ate all of it in one day except the one cookie my DH grabbed. That's 1000 calories of cookies right there. Yet, still can't stop thinking of pizza crust, angel food cake, and soft dinner rolls. I really need to try the Bob's Red Mill crust and Chebe rolls I have here.

Well, at least you got that craving out of the way!!! :D

And if for some reason you don't care for Bob's Red Mill pizza crust, don't give up. There are a lot of recipes and mixes available.

zus888 Contributor

I know exactly what you mean. I took my kids to a local Pizza place that also serves gluten-free pizza and it just was not the same! Pizza is the #1 thing I just can't replace with a gluten free option.

HOWEVER, I am too scared to eat gluten filled food. I haven't even been formally diagnosed, but my symptoms are almost completely gone, and I don't want to go back to that ever again! A few moments pleasure - for me - is just not worth it. There are too many yummy things to eat that I can't in good conscience complain about not being able to eat gluten anymore.

Well, I wouldn't deliberately gluten myself...UNLESS I was ALREADY glutened and knew it in enough advance (like, immediately). I'm just thinking if I'm already going to suffer the consequences of getting accidentally glutened I might as well go whole hog and make it worth my while to deal with 4-5 days of misery. At least I could take some comfort in enjoying what made me sick as opposed to dealing with 4 days of depression and fatigue over drinking contaminated water!

zus888 Contributor

Had a dream last night that during my meal I realized that I had just consumed gluten after I had already eaten 1/2 a large corn muffin. I freaked out and called my DH, but upon realizing that there was nothing I could do at that point, I decided that we were going to order pizza for dinner, and I was going to make an angelfood cake! I woke up before I had a chance to eat any of it though. If this ever does happen in real life, I'm going to go into a glutenous frenzy. It's all I think about lately.

LuvGems Newbie

Yes I've done it. It started me back eating gluten again about once a week. I'm not sure I have the strength to cut gluten out completely again even though I hurt a lot.

My recommendation? Don't do it even once.

zus888 Contributor

Yes I've done it. It started me back eating gluten again about once a week. I'm not sure I have the strength to cut gluten out completely again even though I hurt a lot.

My recommendation? Don't do it even once.

Ack. I didn't want to hear this at all. Yet, I do need to hear it because that could easily be me, especially since I don't have digestive issues as much as the depression and fatigue. *le sigh*

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,248
    • Most Online (within 30 mins)
      7,748

    Tc clark
    Newest Member
    Tc clark
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.