Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gallbladder Woes


shadowicewolf

Recommended Posts

shadowicewolf Proficient

So apperently... we found out what was wrong with me (despite the celiac diagnosis). My gallbladder is only working at 5% of what it should be. This was found after i had the blood test to check it (normal), the ultrasound for it (normal), and was found with the HIDA scan (a hellish scan that makes you lay still for a hour and a half). My GI doctor wants it out, however since i am not "acute" and only "chronic" i cannot get in sooner to have it done (i consult on the 11th and go back to school on the 18th <.<). Bahumbug.

My mom and i were thinking about it. Between getting a really bad case of the flu, having an allergic reaction to an antibiotic, and ultimently this, we think thats what triggered it.

Yay, for finding out whats been causing my hellish indigestion and ibs and side pain (i've been very very careful with what i eat so i know its not gluten related).

So has this happened to you guys before?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

Yup. It happened to me after being gluten free for about 6 years. Get the gallbladder out and you will feel so much better.

Roda Rising Star

A lot of people have gallbladder issues before and after celiac diagnosis. I developed gallbladder issues after I was gluten free. Mine is functioning slightly above the threshold of appx. 35% so I wasn't a surgical canidate. It bothers me once in awhile if I consume to much fat, but otherwise I am fine right now with it. Glad you found out what was bothering you and feel better soon!

lynnelise Apprentice

I had my gallbladder out 5 and half years ago. It was very frustrating because it hurt for years and the doctors kept ordering ultrasounds and saying it was fine, no gallstones. Finally I switched doctors and the first thing he ordered after seeing no stones on the ultrasound was a HIDA scan and sure enough it wasn't functioning! I only wish someone had been smart enough to have suggested that before I underwent years of pain and indigestion!

Gfreeatx Apprentice

Same here! I had pain for years on my side and kept getting ultrasounds which showed no gallstones. Finally I went to another doctor in so much pain and he asked if I ever had a Hidascan which of course none of the doctors before mentioned. I had the Hidascan in 09 and my gallbladder was only functioning at 13%. I had it out in Oct of that year and I don't miss it one bit. I was diagnosed with Celiac Disease the next year and based on the damage to my villi my doctor suspects I've had it for 10-15 years. It's amazing how many of us have had GB problems or have had to have them out.

Coleslawcat Contributor

I had my gallbladder out a few months ago. I had a lot of stones and during my last pregnancy I had some very severe attacks. They can't remove it during pregnancy without significant risks so I just dealt with it. After the pregnancy the attacks stopped but I had it out on my OB's recommendation because I plan to have another child someday. I have no idea what percent it was working or anything like that. The only testing I had done was the u/s which showed significant inflammation and huge number of stones. The recovery has been very easy, the first 2 days were hard, but after that I felt back to normal quickly. The only side effect is if I eat too much fat I sometimes get the big D and have to run to the bathroom. After dealing with undiagnosed celiac for years I'm pretty much already used to that.

zentex Newbie

I had mine out in emergency surgery about 4 years ago. It "failed" in the "on" positon--that is it over-filled(and attempted to continue filling)but would not empty. I had no stones and never had an issue with it prior to it failing. I had an 8 hour ultrasound to determine that it was broken and needed to come out.

It's an easy surgery. Even though mine was emergency I was able to have it done laparoscopicly and was back to work in three days. I had it out on a Friday and went to work the following Monday. The doctor suggested I take a week off of work, but I didn't need to. Admittedly, I was quite sore the first couple of days back.

I can only tolerate fried and spicy foods in moderation. I don't eat too many fried foods, so no biggie there but I dearly love my spicy foods. This weekend I ate a really, really hot pepper and immediately threw it up. It was so good going down, but my body immediately revolted <sigh>.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

    2. - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

    3. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,107
    • Most Online (within 30 mins)
      7,748

    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.