Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coffee Ugh!


GFreeMO

Recommended Posts

GFreeMO Proficient

After eliminating dairy, soy and most processed gluten free items, I am still feeling very gassy and uncomfortable. This morning I felt pretty good when I got up, that is until I had my cup of coffee. I am not tolerating coffee anymore. It leaves me feeling very similar to how I feel when I have been glutened. I don't get D with it but I get very bad gas pains and a trapped gas feeling. It's apparent that I need to go off coffee and switch to decaf tea now. I was just wondering if anyone else has similar issues with coffee.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Coffee is one of those things your body may "see" as gluten. Some people have the same issue with tea, or decaf tea. Try it and see.

I almost freaked giving up coffee (I was in the try anything stage). I dont think coffee is a problem, but strangely enough I lost my taste for it. But oh wow do I have a chai habit now!!

GFreeMO Proficient

I just read a few articles about how coffee can be cross reactive for celiacs. I think that means that the body will have a reaction because it is recognizing coffee (or soy, casein,) whatever it may be as gluten even though it's gluten free. Interesting.

AMom2010 Explorer

I have never been able to tolerate coffee. Even when I sneaked it when I was little it made me sick to my stomach. Now I feel terrible all over when I drink it.

T.H. Community Regular

Do you have any issues with corn? I just found out the other day that coffee is often polished with cornstarch - wacky crazy stuff.

Poppi Enthusiast

Pricklypear, I could have written your post!

When I have coffee now I feel glutened for a few hours. Brain fog, nausea, major fatigue and headaches. I was heartbroken to give up coffee, I love coffee.

I've replaced with with Chai. I drink a lot of it. I find it more satisfying than other teas because it has such a complex flavour. I have at least 6 varieties of chai in my cupboard.

pricklypear1971 Community Regular

Pricklypear, I could have written your post!

When I have coffee now I feel glutened for a few hours. Brain fog, nausea, major fatigue and headaches. I was heartbroken to give up coffee, I love coffee.

I've replaced with with Chai. I drink a lot of it. I find it more

satisfying than other teas because it has such a complex flavour. I have at least 6 varieties of chai in my cupboard.

It's so good, isn't it???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cait Apprentice

Yes! I'd been off coffee for a bit, then started drinking it again recently. Can't tolerate it anymore. Am also a chai junkie now. What are your favorite kinds?

pricklypear1971 Community Regular

Yes! I'd been off coffee for a bit, then started drinking it again recently. Can't tolerate it anymore. Am also a chai junkie now. What are your favorite kinds?

I've tried Oregon Chai less sweet and Tazo. I prefer Tazo.

I like brewing by the bag, but it's only "tea" - not strong or spicy enough for milk. I'd love to maker own but have hesitated to commit with all the food weirdness.

RollingAlong Explorer

Has anyone seen any research that supports the idea of coffee crossreacting with gluten. I've seen this idea, but not any research.

pricklypear1971 Community Regular

Has anyone seen any research that supports the idea of coffee crossreacting with gluten. I've seen this idea, but not any research.

Cyrex Labs is who I see referenced regarding this. I can't find the research, but there are articles EVERYWHERE. too many to sift through to find the research. I haven't worried much about it since I figured out it doesn't bother me, and developed the chai habit.

Here's a kink to the test:

Open Original Shared Link

pricklypear1971 Community Regular

This might be helpful.

Open Original Shared Link

dilettantesteph Collaborator

That gluten cross reactivity stuff seems to be unsubstantiated. I spent a lot of time checking references and none of them seemed to substantiate it.

I have problems with a lot of coffee, but do fine with Wegmans organic, washed whole beans.

Coffee is one of my treats.

pricklypear1971 Community Regular

That gluten cross reactivity stuff seems to be unsubstantiated. I spent a lot of time checking references and none of them seemed to substantiate it.

I have problems with a lot of coffee, but do fine with Wegmans organic, washed whole beans.

Coffee is one of my treats.

We always buy organic, too. Perhaps that helps. I've heard of people having coffee issues. - not gluten related, usually caffeine or chemical.

Poppi Enthusiast

We always buy organic, too. Perhaps that helps. I've heard of people having coffee issues. - not gluten related, usually caffeine or chemical.

I have tried coffee from a variety of sources, caffienated, decaf, organic, regular, locally roasted, factory roasted... it all makes me feel like I've been glutened. I know that anectodes are not data but my experience is definitely that my body sees coffee, thinks gluten and takes a few hours to sort out the mistake.

thleensd Enthusiast

Do you have any issues with corn? I just found out the other day that coffee is often polished with cornstarch - wacky crazy stuff.

Wait, what? Ugh, this is not good. Do you have a link or any more info? Would it rinse off?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlorietaKaro's topic in Super Sensitive People
      2

      Am I nuts?

    2. - lalan45 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      29

      My journey is it gluten or fiber?

    3. - Russ H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Anti-endomysial Antibody (EMA) Testing

    4. - Scott Adams replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Just diagnosed today

    5. - Scott Adams replied to GlorietaKaro's topic in Super Sensitive People
      2

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,805
    • Most Online (within 30 mins)
      7,748

    lalan45
    Newest Member
    lalan45
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
    • Russ H
      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation from one autoimmune condition can sometimes be linked to or trigger other inflammatory responses in the body. MP, which involves inflammation of the fat tissue in the mesentery (the membrane that holds your intestines in place), is often discovered incidentally on scans, exactly as in your case. The fact that your medical team is already planning follow-up with a DEXA scan (to check bone density, common after a celiac diagnosis) and a repeat CT is a very proactive and prudent approach to monitoring your health. Many find that adhering strictly to the gluten-free diet for celiac disease helps manage overall inflammation, which may positively impact MP over time. It's completely normal to feel uncertain right now. Your next steps are to take this one day at a time, focus on the gluten-free diet as your primary treatment for celiac, and use your upcoming appointments to ask all your questions about MP and what the monitoring plan entails. This dual diagnosis is a lot to process, but it is also the starting point for a managed path forward to better health. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Your experience is absolutely valid, and you are not "nuts" or a "complete weirdo." What you are describing aligns with severe neurological manifestations of gluten sensitivity, which is a recognized, though less common, presentation. Conditions like gluten ataxia and peripheral neuropathy are documented in medical literature, where gluten triggers an autoimmune response that attacks the nervous system, leading to symptoms precisely like yours—loss of coordination, muscle weakness, fasciculations, and even numbness. The reaction you had from inhaling flour is a powerful testament to your extreme sensitivity. While celiac disease is commonly tested, non-celiac gluten sensitivity with neurological involvement is harder to diagnose, especially since many standard tests require ongoing gluten consumption, which you rightly fear could be dangerous. Seeking out a neurologist or gastroenterologist familiar with gluten-related disorders, or consulting a specialist at a major celiac research center, could provide more validation and possibly explore diagnostic options like specific antibody tests (e.g., anti-gliadin or transglutaminase 6 antibodies) that don't always require a gluten challenge. You are not alone; many individuals with severe reactivity navigate a world of invisible illness where their strict avoidance is a medical necessity, not a choice. Trust your body's signals—it has given you the most important diagnosis already.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.