Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sciatic Nerve Pain

GlutenGladi8or

By GlutenGladi8or
in Sports and Fitness

Recommended Posts

GlutenGladi8or Apprentice
GlutenGladi8or
Posted

Last week, I bought a "gluten-free" chicken sausage out of a full service meatcase. The next day, I was glutened beyond belief! Low and behold, I dug through the garbage and found the parchment paper wrapper... and there were bread crumbs in it. Shortly thereafter, I got Sciatic Nerve pain from my glute all the way down to my toe. It progressively got worse over the past 5 days. In fact, I just came from the doctor (it was THAT bad)

One of my near and dear friends (also a Celiac) just called me and asked how I was doing. When I "fessed up" about my ailment, he said that when he gets glutened he immediately gets sciatic issues that lasts for a week.

Does this happen to any of you? In the past, I just had the usually gluten symptoms (diarrhea, fatigue, etc.) NEVER pain. And, this is the most pain I have ever had in my life.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GlutenGladi8or Apprentice
GlutenGladi8or
Posted
  • Author

UPDATE: Thank goodness for my health insurance, as I have already been referred to a physical therapist at 9a.m. tomorrow. I told her about my "theory" and she substantiated it... even elaborated about how we Celiacs get so much more inflamed when we are glutened.

Just one more thing we Celiacs have to look forward to when we get glutened. :(

pricklypear1971 Community Regular
pricklypear1971
Posted

In my late teens/ 20's I would get lower back pain. To the point I couldn't lay flat. This coincides with when I had GI symptoms (probably from gluten).

I found a very good masseuse that worked me over, pressure points, stretching, etc. Felt like I'd been caned but it worked. She said my nerves were tangled in muscles, and there were giant knots (this is my best recall after 10+ years).

Good luck, I know it's terrible.

JillianLindsay Enthusiast
JillianLindsay
Posted

I have chronic knee pain from years of playing competitive soccer. With physio and strengthening exercises, the pain is greatly decreased, however if I get glutened the pain comes back in full force. I hope you called the place where you got the not-so-gluten-free sausage! Feel better soon

GlutenGladi8or Apprentice
GlutenGladi8or
Posted
  • Author

Physically, I feel terrible right now. But, I feel GOOD knowing that there was a direct correlation between being glutened and the muscle pain.

And talk about a double whammy... trying to go to the bathroom with a leg that doesn't work. It isn't pretty. LOL.

GlutenGladi8or Apprentice
GlutenGladi8or
Posted
  • Author

I had my first physical therapy session in my life this morning. My therapist was remarkable and her mother-in-law was a Celiac as well. The stories that she told of other Celiacs making a visit right after a gluten encounter! Just when I thought I saw the last of the side effects related to gluten, another issue rears its ugly head.

If you have the same issue, you can most likely related it back to being glutened.

kmag Rookie
kmag
Posted

I also experience joint pain after getting glutened. It always affects the knuckles in my left hand the worst and lasts about 10 days. It makes working really unpleasant since I'm a massage therapist. I haven't dared eat out since the last time a few months back, it's just way too iffy.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GlutenGladi8or Apprentice
GlutenGladi8or
Posted
  • Author

I have learned SO much from this past gluten-ing experience. (As has my doctor, physical therapist, and massage therapist.)

All of this joint, nerve, and muscle pain can be directly related to gluten. And the more I look back at history, I remember sciatic pain just shortly after being glutened.

At least the above professionals, will be able to make un-diagnosed people aware that they might have a gluten intolerance.

GlutenGladi8or Apprentice
GlutenGladi8or
Posted
  • Author

UPDATE: For the first time in my life, I went to an acupuncturist this morning for the pain. Literally, 80% of the pain is gone after just one 90 minutes session.

I have a follow up session on Monday. If you have ANY type of pain, you really should consider acupuncture as an option. I'm a believer.

  • 9 months later...
LauraB0927 Apprentice
LauraB0927
Posted

Before I was diagnosed (which was recently), I always battled with sciatic pain and I saw a chiropractor for YEARS with little relief. I couldn't make long drives and had a hard time sitting through college classes. Since going gluten free, I haven't noticed any sciatic pain. Since swelling is a normal reaction for us when we get glutened, it doesn't sound far fetched that there could be some swelling in that area that could put pressure on the sciatic nerve - its a pretty large nerve after all!!

P.S. I am a HUGE fan of acupuncture - I had it done a couple of times and I never slept better in my life! If I wasn't on such a tight budget, that would be the first thing I'd be making appointments for again!!

Best of luck on your recovery from that unfortunate glutening experience...

Kate79 Apprentice
Kate79
Posted

I had really bad sciatic pain that coincided with a glutening last winter/spring. Lasted for about a week. Only time I've had that symptom, so I don't know for sure if it was gluten or something else that just occurred at the same time. Glad the acupuncture is working and hope you're feeling better soon!

  • 1 month later...
kristenloeh Community Regular
kristenloeh
Posted

Yep, my sciatica always gets worse when I get glutened. It's already pretty crappy on a regular basis, but it sure as hell gets about 10 times worse when I get contaminated. Glad to see you got into an acupuncturist and are feeling better :}

Celiac Ninja Enthusiast
Celiac Ninja
Posted

Last week, I bought a "gluten-free" chicken sausage out of a full service meatcase. The next day, I was glutened beyond belief! Low and behold, I dug through the garbage and found the parchment paper wrapper... and there were bread crumbs in it. Shortly thereafter, I got Sciatic Nerve pain from my glute all the way down to my toe. It progressively got worse over the past 5 days. In fact, I just came from the doctor (it was THAT bad)

One of my near and dear friends (also a Celiac) just called me and asked how I was doing. When I "fessed up" about my ailment, he said that when he gets glutened he immediately gets sciatic issues that lasts for a week.

Does this happen to any of you? In the past, I just had the usually gluten symptoms (diarrhea, fatigue, etc.) NEVER pain. And, this is the most pain I have ever had in my life.

I've got celiac and am a licensed massage therapist for 6+ years with scoliosis. From your first post I can say muscles are affected by glutn reactins (spasms, cramps, locing up especially after work outs due to the lack of absorption of necessary nutrients, minerals and water absorption). Sometimes the stress (mentral and physical) of having a gluten reaction can trigger severe muscle cramps which obviously cramp nerve and blood flow. Gentle maasage/excersises (which ever you feel comfortable with) and tons of water (like 4x 32 oz.) will help flush the muscles and your body can begin recovery. This is based on my experience and clients experience, hope its helpful.

gatita Enthusiast
gatita
Posted

I know this is an old thread, but this is very helpful to me. I've been having all kinds of bad joint pains (Sciatica and shoulder/arm pain) that are even worse than the D.

My physical therapist looked at me like I was looney tunes when I mentioned I'd been diagnosed by my MD as gluten intolerant and I thought there might be a connection!

Sigh...Glad to hear I wasn't imagining it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especia...
    2. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can t...
    3. Scott Adams
      - Scott Adams commented on knitty kitty's blog entry in Thiamine Thiamine Thiamine
      1

      About Celiac Remission

      This idea comes up often, but it’s important to separate theory from what’s actually supported by evidence. In celiac disease, the immune system does not “forget” gluten in a permanent or reliable way, even after long periods of avoidance, and the celiac genes do not turn off. While antibody levels (like tTG IgA) can normalize on a strict gluten-free diet an...
    4. Scott Adams
      - Scott Adams replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      need help understanding testing result for Naked Nutrition Creatine please

      Gluten testing is normally reported in ppm (parts per million), which is equivalent to mg/kg, not micrograms by itself. A result of <0.025 mcg only becomes meaningful if you know the sample size tested (for example, mcg per gram or per kg). If that value represents <0.025 mcg per gram, that would equal <25 ppm, which is above the gluten-free threshold...
    5. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Medications

      Medication sensitivity is very real for many people with celiac and other autoimmune conditions, and it’s frustrating when that’s brushed off. Even when a medication is technically gluten-free, fillers, dose changes, or how your nervous system reacts—especially with things like gabapentin—can cause paradoxical effects like feeling wired but exhausted. The fa...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,189
    • Most Online (within 30 mins)
      7,748
    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
    • Scott Adams
      need help understanding testing result for Naked Nutrition Creatine please

      By Scott Adams · Posted

      Gluten testing is normally reported in ppm (parts per million), which is equivalent to mg/kg, not micrograms by itself. A result of <0.025 mcg only becomes meaningful if you know the sample size tested (for example, mcg per gram or per kg). If that value represents <0.025 mcg per gram, that would equal <25 ppm, which is above the gluten-free threshold; if it’s <0.025 mcg per kilogram, it would be extremely low and well within GF limits. Without the denominator, the result is incomplete. It’s reasonable to follow up with the company and ask them to confirm the result in ppm using a validated method (like ELISA R5)—that’s the standard used to assess gluten safety.
    • Scott Adams
      Medications

      By Scott Adams · Posted

      Medication sensitivity is very real for many people with celiac and other autoimmune conditions, and it’s frustrating when that’s brushed off. Even when a medication is technically gluten-free, fillers, dose changes, or how your nervous system reacts—especially with things like gabapentin—can cause paradoxical effects like feeling wired but exhausted. The fact that it helped bloating suggests it may be affecting gut–nerve signaling, which makes sense in the context of SIBO, but that doesn’t mean the side effects should be ignored. You’re carrying a heavy load right now with ongoing skin, eye, and neurological uncertainty, and living in that kind of limbo is exhausting on its own. It’s understandable to feel overwhelmed and discouraged when systems and providers don’t meet you where you are—your experience is valid, and continuing to advocate for yourself, even when it’s hard, really does matter. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Gluten tester

      By Scott Adams · Posted

      I am not aware of an air detector for gluten, but Nima Partners sells a device that can detect gluten in minutes in a small sample of a meal or food that you eat. They are also a sponsor here for full disclosure: https://nimanow.com
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.