Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Spouse Is Nonsupportive


heyteacher

Recommended Posts

heyteacher Newbie

Ollie's Mom---you made me smile :rolleyes: Thanks for your reply!

Maybe I should apologize for my post causing some feathers to get ruffled. Maybe I shouldn't have given info regarding my husband, I should have kept it about me and my issues.

I don't need his permission to go see a Dr. That being said, I can't hide the fact that I went to the Dr either. We are limited, actually quite limited financially. I am sure there are plenty of people who are members of this group who can identify with that. I am not suggesting that I am "special" when it comes to finances. We (my hubs and I)are very conservative when it comes to spending.

I want to say thanks again for all of your wonderful suggestions. We have had a good conversation about my "issues" without fighting, so that is progress. I don't know if I would had as much success without reading your supportive comments/replies. He still does not think a Dr appointment is in order, but we did have a good discussion.

I have never posted a question on a forum/discussion group so I'm not sure exactly what you consider appropriate/applicable to your discussions about celiac disease. Maybe I should have left the husband out of it? Anywhoo---I appreciate your support, this is the first time I have experienced any support (regarding by health) in a long time. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kitgordon Explorer

HeyTeacher - you don't owe anyone an apology! There was absolutely NOTHING inappropriate in your post, and you are not responsible when people disagree with each other's advice to you. It's fine to mention your husband's lack of support; we get a lot of similar posts.

I think you should tell your husband you absolutely need his support in either going to a doctor, or implementing a strict gluten-free diet - one or the other. Use the "in sickness and in health" line. And in the meantime, if you are too sick to function... DON'T! Let the kids miss some activities, let him pick up some slack in whatever your responsibilities are - let him SEE how ill you are. As long as you suck it up and keep a stiff upper lip and he is not inconvenienced by your illness, he is going to maintain the status quo because it is comfortable for him. Don't let anyone maintain their comfort at the cost of your own health. Good luck!

ravenwoodglass Mentor

HeyTeacher - you don't owe anyone an apology! There was absolutely NOTHING inappropriate in your post, and you are not responsible when people disagree with each other's advice to you. It's fine to mention your husband's lack of support; we get a lot of similar posts.

This was very well said. Heyteacher do feel free to post whatever you need to post and ask any questions you need to. This is a great place to vent or to ask for or give advice. You did nothing wrong.

GlutenFreeManna Rising Star

HeyTeacher - you don't owe anyone an apology! There was absolutely NOTHING inappropriate in your post, and you are not responsible when people disagree with each other's advice to you. It's fine to mention your husband's lack of support; we get a lot of similar posts.

I think you should tell your husband you absolutely need his support in either going to a doctor, or implementing a strict gluten-free diet - one or the other. Use the "in sickness and in health" line. And in the meantime, if you are too sick to function... DON'T! Let the kids miss some activities, let him pick up some slack in whatever your responsibilities are - let him SEE how ill you are. As long as you suck it up and keep a stiff upper lip and he is not inconvenienced by your illness, he is going to maintain the status quo because it is comfortable for him. Don't let anyone maintain their comfort at the cost of your own health. Good luck!

Exactly! Thank you for saying so well what I was trying to say. Heyteacher don't worry about us--I've seen much worse ruffled feathers before. I'm glad you are having good discussions with your husband. Mentioning him was important and maybe it helped you get it off your chest so you can deal with talking to him more about this. Please feel free to ask more questions here in the future! :)

gailc Newbie

I have found the gluten-free diet to be traumatic, not the diet itself but searching for foods. In order not to go thru this again when I eventually get diabetes I decided to do that diet now too. (DIET=the food we eat and the liquids we eat).

The diabetic diet is pretty much gluten-free except for substituting gluten-free bread, but I'd rather have rice.

One raw food like a tomato, fruit veggies and protein and salad. Where's the gluten in that? I think this is easier than focusing on what I cannot have. I have not baked for 7 months. Soon.

Food when I am out alone is a trip to the grocery produce dept. for an apple or banana, or now since my gluten intolerance went away some yogurt which I count as a dessert.

Try to cook meals that you can eat JUST the gluten-free parts.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,207
    • Most Online (within 30 mins)
      7,748

    WAB19
    Newest Member
    WAB19
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.