Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can You Educate Me?

Marilyn R

By Marilyn R
in Dermatitis Herpetiformis

Recommended Posts

Marilyn R Community Regular
Marilyn R
Posted

I think I've had every symptom possibly connected to celiac disease. The latest is a patch of dry scaly skin on my ear lobe. It itches the bejesus out of me. I saw a dermatoligist about it. He ignored my question and focused on a red spot on my nose which he said looked cancerous. That was a month ago. The nose biopsy is benign. My ear still itches, and I look like Rudolph. I wash my face with Cetaphil and use a locally available cream which includes: aloe vera gel, saflower oil, purified water, Vitamin E, Vitamin A Pro-Vitamin B, Ginseng, Native American Herbal Mixture.

Or I use Vanicream from Wallgreens.

I'd be so greatful if anyone has a suggestion about that scaly, itchy skin on my ear. It is driving me cookoo.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Roda Rising Star
Roda
Posted

I have something similar. I have a dry scaly patch just under my eyebrow. It will itch, get dry and scaly, slough off and the skin be red. Then the process starts all over again. I also get red and irritated behind my ear in the crease and on the back of the earlobe. It will do the same thing as the patch on my face. I tried everything immaginable to get it to clear up. One day the itching was driving me crazy so I put some anti-itch cream on it. It happened to be benedryl cream. I noticed that it was helping, so I continued to apply it. It went away! It works for the area behind my ear too. So I think in my case that it is some kind of allergy, but to what I do not know. For now it seems to be staying away, but when it does flare back up I just put benedryl cream on it for a few days and it takes care of it.

mushroom Proficient
mushroom
Posted

For me, scaling, flaking, itchy ears that are red are psoriasis.

Jestgar Rising Star
Jestgar
Posted

For me, scaling, flaking, itchy ears that are red are psoriasis.

me too.

GFinDC Veteran
GFinDC
Posted

I have a dry, itchy, scaly spot on the front of my right ankle. Slightly raised elevation and oval shaped. I got the idea to try putting triple ani-bacterial ointment on it the other day. One brand name is Neosporin. It is too early to tell if it will go away, But it feels better, less itchy and looks better with the ointment on it.

Marilyn R Community Regular
Marilyn R
Posted
  • Author

So why is it that the guy gets it on his ankle and the girl gets it on her ear and nose? Thanks for your advice. I bought some benadryl cream today, had been using triple antibiotic ointment on the nose. I really appreciate your advice. And I bought some silicone anti scar stuff for my cheek. That's where the derm biopsied me 2 years ago and I developed an open wound bed. I went to a plastic surgeon, and his work hasn't healed either. (That's been a year, so I'm not optimistic.) All of the sites show white flakes and redness. I set an appointment with a new derm last week. His office called and told me they were very sorry but the biopsy done on by leg was positive for squamous cell skin cancer. I asked what number they were trying to call, and they gave me me cell number. I told them I merely had an appt. and hadn't actually seen the Dr. yet.

They asked me if I was sure. Can you imagine? So I went sort of quiet and then said, if you'll tell me where on the leg that biopsy was done, I'll check my leg if I won't have to take my pants off while driving.

I called to confirm my appt two days later because I didn't receive a reminder call. They told me I had no appt, but they'd make me one. I declined.

That's when I decided to do a free consult with the forum. Thanks, everybody! Better advice, no wait, no co-pay. I'm happy!

celiac-mommy Collaborator
celiac-mommy
Posted

me too.

Me 3 <_<

I'm using an apple cider vinegar rinse once a day for my scalp. Works WONDERS!!

Last I looked, Cetaphil had gluten...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

my sister and one of my boys had a weird scaly itchy place on their arms. Athletes foot spray worked for one and Head and Shoulders for another. I think you have to see if something works,& if it doesn't, try something else.

eatmeat4good Enthusiast
eatmeat4good
Posted

I think I've had every symptom possibly connected to celiac disease. The latest is a patch of dry scaly skin on my ear lobe. It itches the bejesus out of me. I saw a dermatoligist about it. He ignored my question and focused on a red spot on my nose which he said looked cancerous. That was a month ago. The nose biopsy is benign. My ear still itches, and I look like Rudolph. I wash my face with Cetaphil and use a locally available cream which includes: aloe vera gel, saflower oil, purified water, Vitamin E, Vitamin A Pro-Vitamin B, Ginseng, Native American Herbal Mixture.

Or I use Vanicream from Wallgreens.

I'd be so greatful if anyone has a suggestion about that scaly, itchy skin on my ear. It is driving me cookoo.

Oh dear, I didn't see your post until now.

Cetaphil is not gluten free.

If your rash is related to gluten or is actually DH it might be the Cetaphil.

There are posts on here discussing Cetaphil by others who thought it was for sensitive skin and liked it...but it isn't safe for Celiacs.

The have one product that is ok, but it isn't the regular Cetaphil.

Marilyn R Community Regular
Marilyn R
Posted
  • Author

Yikes.

I'm just using the cetaphil gentle cleanser soap, which I thought was safe. Should I 86 the cetaphil?

The derm. told me I didn't have DH, and mentioned he's only seen it about four times. Thanks for all of the great advice.

IfI shouldn't use cetaphil as a facial cleanser, I'd be grateful for recommendations on something safer.

Thanks eb.

eatmeat4good Enthusiast
eatmeat4good
Posted

This post is old but it says the gentle cleanser is the one that is gluten free.

Perhaps that is the one you are using??

pricklypear1971 Community Regular
pricklypear1971
Posted

I use Vanicream. I usually find their products next to Cetaphil.

Marilyn R Community Regular
Marilyn R
Posted
  • Author

I checked every ingredient in the Cetaphil Gentle Cleanser again today and it appears to be gluten-free.

Jenniferxgfx Contributor
Jenniferxgfx
Posted

Cetaphil makes me break out in the same way gluten does. I'm not convinced it's gluten-free enough for me.

Marilyn R Community Regular
Marilyn R
Posted
  • Author

Cetaphil makes me break out in the same way gluten does. I'm not convinced it's gluten-free enough for me.

Thanks for letting me know. Do you recommend anyting for a mild facial wash?

(When I researched the ingredients in Cetaphil, I was kind of surprised.)

Jenniferxgfx Contributor
Jenniferxgfx
Posted

I use really dilute Dr. Bronner's liquid baby soap On my face if I feel greasy but mostly I just use lots and lots of water. I try not to use much because I'm so sensitive and do better without it. I use the dr b's as a body wash, too. Sorry I don't have better suggestions!

GFinDC Veteran
GFinDC
Posted

I use real home made soap that my cousin makes for me. Real soap doesn't have detergent in it so it is not as harsh on your skin. It's just nicer IMHO. Plus my cousin made it so that's a plus. She's a nut job and like to do that stuff. :D

Jenniferxgfx Contributor
Jenniferxgfx
Posted

Oh I Forgot! I also like Queen Helene's Mint Julep face masque once in awhile. :)

Marilyn R Community Regular
Marilyn R
Posted
  • Author

So I switched to Vanicream soap (have used Dr. Bonner's in the past, great product, but I'm older and need something with an emmolient for my skin, and don't have any soap making cousins) and it's been amazing. Not necessarily with my skin yet, but I used to have a runny nose and my eyes would tear up after washing my face and taking a shower. I bouoght the benadryl cream too, and have used it. I do believe I'll re-coop the extra cost of the soap with the savings in facial tissues used. :D

Using the Vanicream soap has improved my mornings immensely. Thanks again for your words of wisdom...

M

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. NanceK
      - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      9

      My only proof

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get cal...
    2. knitty kitty
      - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms. The tTg IgA antibodies are made in the intestines. While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten...
    3. Trish G
      - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

      Thanks, that's a great addition that I hadn't thought of.
    4. trents
      - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    5. trents
      - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,355
    • Most Online (within 30 mins)
      7,748
    tealangel09
    Newest Member
    tealangel09
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      Is this celiac?

      By knitty kitty · Posted

      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Is this celiac?

      By trents · Posted

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.