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Feeling Better


Susan3

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Susan3 Rookie

I've been gluten-free for about two weeks. How long did it take for your cramps to quit? I do not have them all day like I used to. I still get them but not as bad and not for a long period of time. I'm sure everyone is different but ugh! I feel icky now.

Sus


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Carriefaith Enthusiast

Some people feel better in a few weeks and for other it takes up to 1 to 2 years. When I get an accidental gluten ingestion, my stomach pain can last for up to about 2 weeks.

happygirl Collaborator

I started seeing results in the first week, but it took me a solid 3-4 months to feel "normal" again. Like Carrie said, I think it varies a lot from person to person.

KaitiUSA Enthusiast

Yep, it varies from person to person. It took me 8 months to really get back to normal but I did see major improvement by the 3rd month. You really can't expect it to go away so soon. If you see any improvement at all that soon then you should be happy.

At first there are alot of accidents too because you are just learning and things you think may be gluten free may have hidden gluten(I was doing that for a while without knowing)

Everytime I get the slightest amount of gluten though, I get sick for a good 2 weeks.

Just make sure you are keeping 100% gluten free with foods and products you use and all you have to do is give it time then and keep positive. It WILL get better.

bluefin Newbie

hello

it all depends on each and every individual

in some it may take days to cure in others it may take months

well consult your doctor

he will help you in this

thanks

tarnalberry Community Regular
I've been gluten-free for about two weeks.  How long did it take for your cramps to quit?  I do not have them all day like I used to.  I still get them but not as bad and not for a long period of time.  I'm sure everyone is different but ugh!  I feel icky now.

Sus

<{POST_SNAPBACK}>

Definitely varies from person to person. If I get glutened, I have symptoms for about a week. When I first went gluten-free, I felt a fair amount better fairly quickly, but my symptoms were harder to notice at the beginning, and I hadn't had it (I think) for that long before I tried the gluten-free diet. Hopefully, you'll start getting better and better!

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
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      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
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      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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