Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brain Fog


Gluten Free Traveller

Recommended Posts

Gluten Free Traveller Newbie

Hi everyone,

I know there have been posts on brain fog before but nothing too recently so I wanted to ask if anyone could help me..

I was diagnosed as celiac a little over 2 years ago and have been completely gluten free ever since. I am extremely careful about what I eat and have been feeling great since all my horrible symptoms left.

Recently however I've been getting really bad brain fog. It makes it difficult to concentrate and I feel as though I'm only half here. I feel spacey and out of it. I have no idea whats causing it. Could it be stress? Something I'm lacking from what I eat? I was at my doctor for a physical less than 4 weeks ago where they did lots of blood tests and everything came back normal except that I have low iron. I'm not anemic as my red blood count is fine but it was suggested I take multi vitamins which I do now.

Has anyone experienced something similar? Any tips on how to get rid of it would be greatly appreciated!

Thanks,

Laura


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenDude Newbie

Hi Traveller. Brain fog is a big symptom for me and really hard to explain to other people, but I totally understand it. While it certainly could be something non-celiac related, my assumption is that it is not. Whenever it happens to me now, and especially if I am also really tired, it means I've been glutened somehow. I'm as careful as they get, but I can only assume some gluten sneaks in at times, whether thru cross contamination or some other innocuous way.

saintmaybe Collaborator

Hi everyone,

I know there have been posts on brain fog before but nothing too recently so I wanted to ask if anyone could help me..

I was diagnosed as celiac a little over 2 years ago and have been completely gluten free ever since. I am extremely careful about what I eat and have been feeling great since all my horrible symptoms left.

Recently however I've been getting really bad brain fog. It makes it difficult to concentrate and I feel as though I'm only half here. I feel spacey and out of it. I have no idea whats causing it. Could it be stress? Something I'm lacking from what I eat? I was at my doctor for a physical less than 4 weeks ago where they did lots of blood tests and everything came back normal except that I have low iron. I'm not anemic as my red blood count is fine but it was suggested I take multi vitamins which I do now.

Has anyone experienced something similar? Any tips on how to get rid of it would be greatly appreciated!

Thanks,

Laura

Have you started using any new skin or hair products recently? Many times, a sudden change can be as a result not of diet, but of the beauty regimen. I would recommend throwing away any gluten-containing conditioners, lotions, soaps, lip balms, makeups, etc. Major, major source of overlooked cross contamination.

pricklypear1971 Community Regular

I've been going round and round with iron and vit d - blood work shows im low on both.

I noticed a big increase in energy and clarity and "wanna go go go" when I started taking higher doses of them. So maybe the iron will help??

Btw - iron does make me a bit sick at my stomach but it improves every day.

Gluten Free Traveller Newbie

Hi Traveller. Brain fog is a big symptom for me and really hard to explain to other people, but I totally understand it. While it certainly could be something non-celiac related, my assumption is that it is not. Whenever it happens to me now, and especially if I am also really tired, it means I've been glutened somehow. I'm as careful as they get, but I can only assume some gluten sneaks in at times, whether thru cross contamination or some other innocuous way.

Interesting. Yes, it really is difficult to explain to others who don't experience it. How long does your brain fog usually last? For me it's currently been over a week but at certain times it's worse than others...not sure why. A lot of people have been suggesting that it could be that I'm not getting enough fatty acids like omega 3. I'm going to try to incorporate more salmon, etc and see if it makes a difference.

Gluten Free Traveller Newbie

Have you started using any new skin or hair products recently? Many times, a sudden change can be as a result not of diet, but of the beauty regimen. I would recommend throwing away any gluten-containing conditioners, lotions, soaps, lip balms, makeups, etc. Major, major source of overlooked cross contamination.

I haven't started using anything new as far as I can remember. I'm not a big make-up wearing person and I've been using the same type of shampoo for a long time.

srall Contributor

The vitamins B and D, plus iron supplements help me a lot. A few weeks ago I was trying to give up coffee. So I switched to tea. I noticed that I was having brain fog, not terrible, but feeling a little "drunk" and out of it. So I switched back to coffee and I feel better. I don't think it was caffeine withdrawal b/c my coffee is mostly decaf. I believe the tea bags were a problem.

I hate that feeling and I really hope you get it figured out quickly.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenDude Newbie

Interesting. Yes, it really is difficult to explain to others who don't experience it. How long does your brain fog usually last? For me it's currently been over a week but at certain times it's worse than others...not sure why. A lot of people have been suggesting that it could be that I'm not getting enough fatty acids like omega 3. I'm going to try to incorporate more salmon, etc and see if it makes a difference.

It really varies, and I'm pretty sure it all depends on how much gluten I ingested. It's been five years and I still can't figure this crazy disease out.

o2guy Rookie

I seem to have more brain fog when my B12 levels are low I have been on B12 injections for over 10 years and that's one of the symptoms I have when I'm low

dilettantesteph Collaborator

I get brain fog as an indication of contamination. I've recently been doing a bunch of eliminations to get rid of mine. I eliminated stuff one thing at a time for a few days each to see if it went away. I finally figured it out. It was my tea. Glad I did. I need a clear head for my work.

Leper Messiah Apprentice

Hi Traveller. Brain fog is a big symptom for me and really hard to explain to other people, but I totally understand it. While it certainly could be something non-celiac related, my assumption is that it is not. Whenever it happens to me now, and especially if I am also really tired, it means I've been glutened somehow. I'm as careful as they get, but I can only assume some gluten sneaks in at times, whether thru cross contamination or some other innocuous way.

I agree with GlutenDude, this is a surefire sign for me that I've been glutened. It's never actually eating gluten so to speak for me - avoiding directly eating gluten is generally the easy part of my daily gluten fight, it's always CC, I have to be uber careful with food and food preparation areas. Hope this helps you start avoiding the fog - oh and I generally correlate brain fog with having just been glutened (as opposed to a delayed reaction caused by a historic glutening) my reactions last for 2 weeks so this distinction is vital for me, it might be that your reactions are shorter/different though.

Katrala Contributor

and I generally correlate brain fog with having just been glutened (as opposed to a delayed reaction caused by a historic glutening)

I'm the same way. I get brain fog and usually pinpoint it to a recent CC.

The best thing I've found that helps me is lots of water. I've tried caffeine, etc. but nothing else seems to help. The water thing could be completely mental, but it does seem to make a little bit of a difference.

cyberprof Enthusiast

Hi everyone,

I know there have been posts on brain fog before but nothing too recently so I wanted to ask if anyone could help me..

I was diagnosed as celiac a little over 2 years ago and have been completely gluten free ever since. I am extremely careful about what I eat and have been feeling great since all my horrible symptoms left.

Recently however I've been getting really bad brain fog. It makes it difficult to concentrate and I feel as though I'm only half here. I feel spacey and out of it. I have no idea whats causing it. Could it be stress? Something I'm lacking from what I eat? I was at my doctor for a physical less than 4 weeks ago where they did lots of blood tests and everything came back normal except that I have low iron. I'm not anemic as my red blood count is fine but it was suggested I take multi vitamins which I do now.

Has anyone experienced something similar? Any tips on how to get rid of it would be greatly appreciated!

Thanks,

Laura

Others may be right about the CC but some sub-lingual B12 couldn't hurt. The tested levels may not be accurate. Magnesium is another one that I take that could be helpful.

Leper Messiah Apprentice

I'm the same way. I get brain fog and usually pinpoint it to a recent CC.

The best thing I've found that helps me is lots of water. I've tried caffeine, etc. but nothing else seems to help. The water thing could be completely mental, but it does seem to make a little bit of a difference.

Yeah water helps me too, takes the edge off it, although need to be near a loo :)

George Knighton Apprentice

Have you tried eating more foods with iron in them?

Gfresh404 Enthusiast

It's a little scary how much you sound like me. I'm having the same exact issues and people were suggesting that it might have been my thyroid but all tests came back normal except my iron was low. I've started taking iron supplements and i can't tell yet if they're working or it's just placebo effect.

For me mild brain fog is not CC. Severe brain fog is when I am glutened.

I really don't KNOW what causes it - I think it's just from having a slightly damaged gut - I know that's really vague but I am sorta out of ideas at this point

Gluten Free Traveller Newbie

Have you tried eating more foods with iron in them?

I'm eating a huge spinach salad right now. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    2. - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    3. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    5. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,494
    • Most Online (within 30 mins)
      7,748

    Fswilliamson
    Newest Member
    Fswilliamson
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.