Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Determined To Try Gluten Relief


alicewa

Recommended Posts

GFinDC Veteran

BG Before Grain here too. And Muffin the cat head stopped throwing up when she went gluten-free. She really likes here gluten filled cat treats and doesn't even eat the gluten-free cat treats. But when I give her the gluten treats she gets sick every time. So she no get those anymore.

@ALicewa,

Hi Alice,

The thing to understand about celiac is it is an autoimmune condition. Your body isn't dumb and it will automatically start cranking out antibodies when you eat gluten. Think what would happen if it didn't. If our immune systems took their bloody time getting busy we would all die of infectious disease in no time flat. So even if you had a pill that digested gluten, it would be too late, because your body reacts to the gluten real quick. Celiac's not the same as lactose intolerance which is not autoimmune. You can take lactaid enzyme pills for lactose intolerance and it helps. But there is no immune reaction in lactose intolerance so not a big problem. it doesn't matter if it takes a couple hours for the lactase pills to digest the gluten. That is a major difference between celiac and treatments with pills and other non-autoimmune conditions.

You know how people get sick once and then they are immune to that disease right? That's because their immune systems have adapted to fight that disease and they don't forget. That's really helpful as we don't have thousands of people dying all around us with polio and measles and etc, etc everyday.

Thanks for the blog link about cheating on the gluten-free diet. That is a nicely written article there.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



alicewa Contributor

Perhaps the autoimmunity is caused by this though?

kareng Grand Master

Perhaps the autoimmunity is caused by this though?

Once again.... Who is writing this? Are they a Celiac researcher from one of the Celiac Centers? A random guy on the internet who writes well? Are they selling something?

I don't have the patience to search the website to try to see if they have any valid credentials. I would think If its Columbia or Mayo, that would be listed & easy to find.

The writing (grammer) isn't what one would expect from a serious medical article or website. I would be leery of anything written there.

IrishHeart Veteran

Perhaps the autoimmunity is caused by this though?

Really?.....Are you kidding me? :blink:

They state on the site:

"CureZone started as a personal homepage in Norway."

Does this sound like someone who can give you solid medical advice? :blink:

Geesh, hun....it's time to give it up. :rolleyes:

You're just wasting your time searching for a "cure" on the internet.

And you would be very ill-advised to do a "bowel cleanse"--as Ravenwoodglass already told you on the other thread.

IF THERE WAS A CURE, WE'D KNOW ABOUT IT!!!!!!!!!!!

We have given you our best and honest advice. But you keep ignoring it.

Why do you keep posting about these "scam cures"?????

In my humble opinion, it would serve you best--and give you peace of mind-- if you would spend your time learning about celiac disease and how to cope and live with it.

alicewa Contributor

Ok, I'm getting the idea. That's why I'm asking you. I had no intention of getting the product from CureZone, I was just interested in what caused this problem in case I someday have kids. I know there's not a whole lot that can be done or prevented. Should stop living with regret. :unsure:

IrishHeart Veteran

Alice,

Read about celiac disease from a REPUTABLE SITE. From the nature of your queries, it is obvious you have no real understanding of it.

Knowledge is power. And with that knowledge, acceptance will come. Be healthy and be happy!

Open Original Shared Link

Best wishes,

IH

jswog Contributor

We use Merrick's BG--Before Grain.

A 100% RAW natural diet is the way to go!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

A 100% RAW natural diet is the way to go!

What are you feeding your cat? Raw chicken? Got a funny image of you letting some mice loose in the laundry room and putting the cat in. :D

jswog Contributor

What are you feeding your cat? Raw chicken? Got a funny image of you letting some mice loose in the laundry room and putting the cat in. :D

I don't have a cat, but I did raise a couple of generations of winning show dogs on a raw diet. The lady I bought much of hard to find foods from had several cats whom she fed a fully raw natural diet. She died of pancreatic cancer a few years back, but I believe her husband kept the business going. If you google 'My Pet Carnivore' you will see many articles she wrote about feeding her cats and dog raw.

Jen

  • 4 months later...
alicewa Contributor

I've ordered Gluten Relief! After hearing from 2 others who tried and said they did really well with it I couldn't resist. I took the first 6 today. I also got another thyroid product with it for Vitamin B12 absorption, so I'll let you know of my results. :)

If I were to run tests afterward which would you recommend?

Skylark Collaborator

Damnit, Alice. Get it through you head that THERE IS NO CURE FOR CELIAC. The people who say gluten relief works are most likely shills or slightly intolerant people getting placebo effects. Their so-called clinical trial was a joke with completely incorrect statistics and their data actually failed to show an effect.

You've got to get over this denial before you give yourself neuropathy or another autoimmune disease from eating gluten. I really think you need counseling.

kareng Grand Master

Damnit, Alice. Get it through you head that THERE IS NO CURE FOR CELIAC. The people who say gluten relief works are most likely shills or slightly intolerant people getting placebo effects. Their so-called clinical trial was a joke with completely incorrect statistics and their data actually failed to show an effect.

You've got to get over this denial before you give yourself neuropathy or another autoimmune disease from eating gluten. I really think you need counseling.

Skylark - I wasn't even going to comment. Sadly, there is no point.

Skylark Collaborator

Skylark - I wasn't even going to comment. Sadly, there is no point.

I keep hoping to get through to her... :(

Kamma Explorer

Yes, Alice, listen to Skylark.

Also, really think about this:

If Gluten relief enzymes actually worked, don't you think that they would be mass marketed to all the celiacs out there just dying to conveniently eat bread, buns, cookies, cereals, trips to MacDonalds and so on?

Don't you think that if these things actually worked, the manufacturer would be trying to make millions off them by marketing them via doctors, health care centers and so on?

You have been had twice, Alice:

1. Through your money.

2. Through your trust.

There's good, decent people on here who have been around the celiac block many times over and can offer good, sound support. It would really benefit you if you gave them some credence.

IrishHeart Veteran

If I were to run tests afterward which would you recommend?

I WOULD RECOMMEND THAT maybe you should HAVE YOUR HEAD EXAMINED. :blink:

Alice, I have the patience of a saint, but you've pushed even me to the wall with your silliness. I have begged you to get counseling for this denial you are in, haven't I? Haven't we all?

There is no cure or magic pill for celiac. You cannot keep risking your life by eating gluten and expecting a miracle cure to "wash it out". How many threads have you started with this nonsense? I saw your "poll" about giving your hypothetical children gluten. What was that all about anyway?

YOU NEED COUNSELING.

YOU ARE IN SERIOUS DENIAL.

YOU HAVE A POTENTIALLY LIFE-THREATENING AUTOIMMUNE DISEASE.

Do you even read what we write back to you on all these threads you start? I think you just post this nonsense and then laugh at us all working so hard to help you.

No matter what we say, you do the opposite. Just like a little kid would do. Last time, it was you threatening to eat a cupcake and we all tried to stop you and you ate it anyway. Then, against our advice, did a "salt water cleanse" that is dangerous. <_<

Do you think this is a joke? I do not find you funny.

Honestly, I am beginning to think you are just screwing around with us --and frankly, I am wondering what your purpose here is.

GET HELP.

Bubba's Mom Enthusiast

I ditto what SkyLark and Irish Heart have said..except I would have sworn some too! I'm beginning to wonder if you're just a shill trying to sell this rediculous product? SURELY you can't be that thick headed? :blink:

I'm just not going to respond any more to this nonsense!

alicewa Contributor

I'm sorry I wasn't trying to get everyone worked up. :(

I asked my MD what his thoughts were and he said sure, but be absolutely sure that I watch my symptoms closely and if I'm having none then I should redo the celiac panel periodically. Of course, he figured the chances of something working were slim.

I just wasn't sure if you'd have any additional ones like Cyrex Labs with Arrays that should be performed.

psawyer Proficient

Alice, you have heard from so many people who care about you and want you to know the truth about celiac disease.

"Of course, he figured the chances of something working were slim." Well, actually slimmer than that. Zero, based on current scientific knowledge.

This discussion is going nowhere, and is wasting the time of everyone involved.

Good luck with your quest, Alice. If it doesn't work, we will all still be here for you.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Accuracy of testing concerns

    2. - McKinleyWY posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Accuracy of testing concerns

    3. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    4. - Peace lily replied to AristotlesCat's topic in Super Sensitive People
      118

      Gluten Free Coffee

    5. - Teaganwhowantsanexpltion replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,237
    • Most Online (within 30 mins)
      7,748

    Nancy MacManus
    Newest Member
    Nancy MacManus
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
    • Teaganwhowantsanexpltion
      Thank you I will i have been on a strict gluten free diet ever since I got diagnosed but sometimes places lie about there food so there r some things that do get contaminated which causes me to throw up on end for several hours until I can't hold myself up anymore 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.