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Sick? Celiac Disease Maybe?

queeniemikki

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queeniemikki Newbie
queeniemikki
Posted

For the last few months i've been getting really bloated. I'm constipated almost all of the time (and laxatives don't help). I've had random headaches for as long as i remember. Doctors at first thought it was my eyes but eventually just decided there was nothing wrong with me and i must have seasonal allergies (which all the tests came back negative for). Since June i've lost almost 20 pounds unintentionally (used to be 125 now 108) but it doesn't look like I lost any weight because for all the weight I lost from my stomach has been replaced by bloat. But ive never really had bad diarriah which seems like what most people with celiac disease seem to have. I'm also really short compared to the rest of my family (mom 5' 6" dad 5' 11" twin brother 5' 8" and me 5'3". I have super sensitive bones (I've broken 6 bones in 4 years). Lately whenever i stand up o sort of get a head rush and can't see right for a few seconds because these black dots swarm all over my vision. I've always had really thin hair and now I'm just remembering that when i was little i would get rashes that my doctors decided was eczema but now I'm thinking it might have been DH. I've also had reflux since i was 13.

For 4 days last week i stopped eating gluten without telling anyone (I'm 15) and i didn't notice any MAJOR improvements but on friday i started eating it again and since then i've been really bloated and constipated.

Tips on how i should ask my parents to have me tested? It can't have come from my mom's side because she has Chron's disease and before she was diagnosed they tested her for celiac and she was negative. That means she couldn't have given it to me, right? But i want to be tested because mostly all of the symptoms for celiac disease sound like mine.

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Posted

I'm new here, but I would just tell your mom what you told us. Say you have been researching it and you want to be tested. You can have it done with a simple blood test maybe at your physical. I can't imagine why she might object. IF she does you can take yourself of gluten and research as you already have done.

  • 2 weeks later...
Booghead Contributor
Booghead
Posted
:ph34r: Well I'm 5'0 and thats normal for my family B) I did lots of research and I was sure I had Crohns, I went to the doctor and they tested me for Celiacs which came back positive. So self-diagnosing doesn't always work. I didn't have much diarrhea either except once when I got really sick. Mostly it has been Constipation for me. Much better off of gluten, also Milk would really make me sick and bloat. Ask her for a blood test but if she says no ( I know how parents can be) then go off gluten and dairy, just try it. Be very careful not to eat any gluten in order to get results, and perhaps if you feel better after 3-4 weeks eat some gluten and see what happens. I'm new to this too. I'm 17, message me if you want to talk.
pricklypear1971 Community Regular
pricklypear1971
Posted

For the last few months i've been getting really bloated. I'm constipated almost all of the time (and laxatives don't help). I've had random headaches for as long as i remember. Doctors at first thought it was my eyes but eventually just decided there was nothing wrong with me and i must have seasonal allergies (which all the tests came back negative for). Since June i've lost almost 20 pounds unintentionally (used to be 125 now 108) but it doesn't look like I lost any weight because for all the weight I lost from my stomach has been replaced by bloat. But ive never really had bad diarriah which seems like what most people with celiac disease seem to have. I'm also really short compared to the rest of my family (mom 5' 6" dad 5' 11" twin brother 5' 8" and me 5'3". I have super sensitive bones (I've broken 6 bones in 4 years). Lately whenever i stand up o sort of get a head rush and can't see right for a few seconds because these black dots swarm all over my vision. I've always had really thin hair and now I'm just remembering that when i was little i would get rashes that my doctors decided was eczema but now I'm thinking it might have been DH. I've also had reflux since i was 13.

For 4 days last week i stopped eating gluten without telling anyone (I'm 15) and i didn't notice any MAJOR improvements but on friday i started eating it again and since then i've been really bloated and constipated.

Tips on how i should ask my parents to have me tested? It can't have come from my mom's side because she has Chron's disease and before she was diagnosed they tested her for celiac and she was negative. That means she couldn't have given it to me, right? But i want to be tested because mostly all of the symptoms for celiac disease sound like mine.

There's a 20% chance a Crohn's patient will be Celiac.

Both are autoimmune diseases. Both are genetic (Celiac has clearer markers than Crohn's).

You are at HIGHER risk with a dx'ed autoimmune disease in your parent.

Celiac can trigger at any time, and just because she had a negative test then doesn't mean she's negative now.

Btw gluten is inflammatory, and many Crohn's patients benefit from eliminating it (I believe even if they aren't Celiac).

Now, mom may not appreciate these facts....

Booghead Contributor
Booghead
Posted

There's a 20% chance a Crohn's patient will be Celiac.

Both are autoimmune diseases. Both are genetic (Celiac has clearer markers than Crohn's).

You are at HIGHER risk with a dx'ed autoimmune disease in your parent.

Celiac can trigger at any time, and just because she had a negative test then doesn't mean she's negative now.

Btw gluten is inflammatory, and many Crohn's patients benefit from eliminating it (I believe even if they aren't Celiac).

Now, mom may not appreciate these facts....

Well I didn't know those things. I do fell much better off of gluten but what your saying is that could still be from Crohns? I had a negative EGD Biopsy for Celiacs. I also had a Colonoscopy that looked normal. I wonder if I might have Crohns still? Or perhaps both?

pricklypear1971 Community Regular
pricklypear1971
Posted

Well I didn't know those things. I do fell much better off of gluten but what your saying is that could still be from Crohns? I had a negative EGD Biopsy for Celiacs. I also had a Colonoscopy that looked normal. I wonder if I might have Crohns still? Or perhaps both?

All I know is that 20% of Crohn's patients are Celiac... My cousin has Crohn's so I looked into it to that degree.

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