Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Crushing Depression When Glutened


Googles

Recommended Posts

Googles Community Regular

When I get glutened I get crushing depression. How do people deal with it? I end up feeling suicidal when it happens. Help me please. I work really hard to keep it from happening, and it's only been CC. I can't imagine what would happen if I like went to a restaurant and they accidently gave me something with gluten in it instead of gluten free. Ugh.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sandsurfgirl Collaborator

If you are getting suicidal, you need to have a therapist that you can call when it happens. Maybe even be in therapy to deal with the effects of celiac so you are more prepared to deal with CC when it happens. A good therapist can give you coping strategies to get through the hard times.

AVR1962 Collaborator

Oh yeah, I do so hear ya! It's like my world caves.....I get an odd headache, my brain function starts slowing down, I become irritable, stomach feels sick, tired, dizzy. Sometimes I just want to hide as I know for me the first week is the worst. It is not easy to deal with so I try real hard to have no contact and take no chances. Nine months I was off balance until I could finally keep from being glutened.

Do something for yourself, something you can enjoy.....a hot bath, curl up with a movie, sit in the sun, whatever it takes to find enjoyment. Hang in there!

ravenwoodglass Mentor

This happens to me too and it's scarey. I now know it will last about 24 hours for me and that it is directly because of gluten. I know I will be a bit irrational, snappy and easier to anger at the same time so I avoid confrontational situations if at all possible. I will do something relaxing like reading a funny book, watching sitcoms, a bath etc and take it easy on myself those days. If I need to cry I cry. What helps me most I think is I just tell myself it is the gluten, it will end.

As another poster said you may want to consider talking to a therapist who can help you with learning to cope with those feelings. Mine was very helpful. If things are really bad call a suicide hotline and tell them what is going on.

Leper Messiah Apprentice

I'm exactly the same. The only way I get through it is tell myself it's just 2-3 weeks. And ok that's not great but from a background of having been diagnosed with ME/CFS, 2-3 weeks is a drop in the ocean. I'm not downplaying it at all though, you need a lot of mental strength and an ability to focus on the positives that you are going to achieve when you get to the end of the reaction. At the end of the day though this makes you a better person and that's what I'd focus on.

Once glutened then batten down the hatches and cancel all planned activities where possible and redouble my efforts at avoiding getting CC'd.

It does get extremely tough when you are constantly getting glutened and with me living in a house with lots of gluen it's a delicate balancing act at all times when eating or drinking including snacking.

dilettantesteph Collaborator

I'm the same. Get any guns etc. out of the house. So something soothing. Music, gardening. I watch sad dramas and cry. Remember the people who need you. Most important is to tell yourself that it is just the gluten and things will seem better once the reaction is over.

Poppi Enthusiast

This is exactly why there are trigger locks on the guns and locks on the gun cabinets and I don't know any of the combinations.

If I get cc'd then I've got a brief but intense period of feeling extremely emotional and weepy.

If I get seriously glutened then I can feel extremely depressed for anywhere from a few days to a few weeks. It's tough. All I can do is to keep reminding myself that my life is really awesome and I'll be able to see it again soon, that it's just the gluten doing this to me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Googles Community Regular

Hello.

Just so everyone knows I don't have any weapons in my home. My problem is that when this happens if I don't realize that I have been glutened I am terrified that my depression is back. The depression hasn't lasted more than three days, but during that time it takes so much effort to even get out of bed. I am in therapy for other things, and have dealt with the diagnosis in therapy. But these days just knock my legs out from under me. Thank you all for your input.

lucky97 Explorer

A crushing depression is not what I know as something that is associated with the Celiac or being "glutened" in particular instances. I have always had issues with Dysthymia but, even after the Celiac diagnosis, they did not change because of the radical change in diet. I wish it were so.

If feeling very differently low you should treat it like a true illness (from which relief can be had) and contact a doctor immediately to pursue relief.

Hope this helps you.

Leper Messiah Apprentice

A crushing depression is not what I know as something that is associated with the Celiac or being "glutened" in particular instances. I have always had issues with Dysthymia but, even after the Celiac diagnosis, they did not change because of the radical change in diet. I wish it were so.

If feeling very differently low you should treat it like a true illness (from which relief can be had) and contact a doctor immediately to pursue relief.

Hope this helps you.

Depression is a tough one exactly because of this. It is a separate serious illness in its own right from which I have no experience as I have never had depression as a standalone illness. I only have asymptomatic depression symptoms when I get glutened because I know what this means for me.

Just as an aside I've went to the docs and been giving the depression pills, various ones. Every single one of these did zilch for me. I still had all the symptoms of being annoyed, feeling worthless, feeling suicidal, feelings of guilt, anger, you name it. And it still occurs everytime I get glutened only because I know it's 2-3 weeks of pure misery. It's human nature to me if you break it down.

Depression pills probably won't do you any harm if you do want to give them a shot although I have severe suspicions about long term effects. Modern medicine after all tends to suppress symptoms rather than invest the time (and money) in finding out the root cause from my own personal experience.

AVR1962 Collaborator

Hello.

Just so everyone knows I don't have any weapons in my home. My problem is that when this happens if I don't realize that I have been glutened I am terrified that my depression is back. The depression hasn't lasted more than three days, but during that time it takes so much effort to even get out of bed. I am in therapy for other things, and have dealt with the diagnosis in therapy. But these days just knock my legs out from under me. Thank you all for your input.

Good to hear! Life can throw us some mighty powerful curved balls at time and there is absolutely nothing wrong with reaching out for help. When all my symptoms came to a head so much other stuff was going on in my life and my head just could not comprehend it all. I went to a counselor weekly for 8 months and it helped me alot. I wish you the best!

Celtic Queen Explorer
Just as an aside I've went to the docs and been giving the depression pills, various ones. Every single one of these did zilch for me. I still had all the symptoms of being annoyed, feeling worthless, feeling suicidal, feelings of guilt, anger, you name it. And it still occurs everytime I get glutened only because I know it's 2-3 weeks of pure misery. It's human nature to me if you break it down.

I've been on anti-depressants for years, long before I found out about the gluten intolerance. For me I still get the symptoms of depression, especially if I've been glutened. The anti-depressants don't stop it totally. What they do help with is my coping skills. My episodes aren't as bad and don't last as long. My moods are more even. I still get angry, but it's less of a hormone driven, raging anger. I'm in better control of myself and my moods. That being said, they don't work for everyone. And certain types work better for certain people than others. But you might give it a shot and see if they help you. My other suggestion would be therapy, but you're already doing that.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.