Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Detective

notkuroda

By notkuroda
in Coping with Celiac Disease

Recommended Posts

notkuroda Apprentice
notkuroda
Posted

Hi there.

My wife has been gluten free for over 2 years now. Over the past week she has been getting contaminated by something, and we can't figure out what. She has DH, she's been having digestive problems, and is particularly tired and run down. We can't figure out what's getting her. She's stopped wearing makeup. She did start a progesterone cream over a week ago, and it's made by GNC and not "guaranteed" to be gluten free, even though it's manufactured to be so. She's stopped taking it just in case, but we kind of figure that's not it since she washed her hands after every application and she can't absorb it through the skin. My home is completely gluten free. We're at our wits end. Please help! If this keeps up I have some serious fears for her health.

Thank you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


notme Experienced
notme
Posted

are you doing any construction/remodeling? how about seasonal decorations? cookbooks from pre-gluten-free? grandma's cookie recipe?

notkuroda Apprentice
notkuroda
Posted
  • Author

are you doing any construction/remodeling? how about seasonal decorations? cookbooks from pre-gluten-free? grandma's cookie recipe?

we did put up the xmas decorations a week ago, but she hasn't eaten anything from pre gluten-free

mamaw Community Regular
mamaw
Posted

Does the cream contain a soy base? Any new pet foods?... sometimes we react to other things.. You didn't sayif the DH was acting up..

ciamarie Rookie
ciamarie
Posted

If she could absorb the progesterone through the skin, why not any possible gluten ingredients? Especially if she has DH, then I'd suspect that might be the issue. I know 'they' say that the gluten molecule or whatever it is, is too large to pass through the skin to cause problems, but we know 'they' aren't always right. It may be there are exceptions that haven't been accounted for in their calculations?

Otherwise, are there any new supplements, she's been taking? It might just be a new bottle of something she's taken before, but perhaps the new bottle has a new formula that used to be safe and now it's not? Or the same principle with food items?

notkuroda Apprentice
notkuroda
Posted
  • Author

My first suspicion was the cream too. She's stopped using it for a few days now, no real improvement. I do understand that the lingering effects can take a few days so she's totally off it(although she wishes she could find one that is certified gluten free). The DH has definitely flared up, usually she just gets a few bumps behind her ear or on her back, this time it's a major rash on her chest(which we haven't seen since pre-diagnosis)

I can't tell if it has a soy base but it doesn't say so in the ingredients. Pet food's been the same

mamaw Community Regular
mamaw
Posted

This may be a mystery ...anything even the slightest change that something came in to your home. Like a sample of soap , a new aftershave,candy, processed deli meats just look & think what recently maybe got it... recheck labels..

I suggest staying away from the cream since was purchased at a GNC I'm guessinig this wasn't prescribed by a doctor... It could be that she doesn't need it.. things like that can throw the body into havoc...

Also has there been any major issues in her life, death, accident of a loved one,& so on...

It could also be an allergy to a common food.. For instance I can eat a food but when I combine it with another food I react...But if I eat it alone no problems...

Sorry, can't think of anything else at present...

hope you feeel better soon..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gemini Experienced
Gemini
Posted

If she could absorb the progesterone through the skin, why not any possible gluten ingredients? Especially if she has DH, then I'd suspect that might be the issue. I know 'they' say that the gluten molecule or whatever it is, is too large to pass through the skin to cause problems, but we know 'they' aren't always right. It may be there are exceptions that haven't been accounted for in their calculations?

Otherwise, are there any new supplements, she's been taking? It might just be a new bottle of something she's taken before, but perhaps the new bottle has a new formula that used to be safe and now it's not? Or the same principle with food items?

It is correct that you cannot absorb gluten through the skin...doctors have that correct BUT a progesterone cream is formulated to BE absorbed through the skin. It might be something in the cream that is aggravating

her...especially since people with DH have additional skin sensitivities.

pricklypear1971 Community Regular
pricklypear1971
Posted

Is she eating a lot of iodine? Google "thyca" for a list of high iodone foods. Iodine can make DH flare.

Some people feel sick when DH breaks out, others not. It could be just the DH or some gluten sneaking in, or she could have developed a new food intolerance.

Double-check everything - just because a food has been safe doesn't mean it continues. Food companies do change formulations/processes.

I use Emerita progesterone cream and don't think I have a problem with it...But everyone is different.

Also, many people take a week or so to get over a glutening...

I hope she feels better soon.

notkuroda Apprentice
notkuroda
Posted
  • Author

thank you for all the feedback. She's pretty much eliminating everything and going to raw food then slowly adding things back in. we have been told that Celiac patients can develop sensitivities to many different things. Maybe this way we can figure out if that's the case. Such a frustrating disease, you change your whole life to take one thing out of your life, and then can fine that the same disease makes you more vunerable to other types of contamination.

Leper Messiah Apprentice
Leper Messiah
Posted

Yes I think this was the problem for me notkuroda, a lot of sensitivies to other foods, namely corn, soy, dairy, nightshades. As you can imagine this limits my food options considerably.

The good thing is that once I eliminated them all, I felt better within 1-3 days as opposed to 2 weeks with gluten.

Best of luck.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. pweidema
      - pweidema commented on Scott Adams's article in Latest Research
      1

      How the Gut Microbiome Shapes Celiac Disease Risk (+Video)

      Very interesting! Thank you Scott!
    2. Scott Adams
      0

      Celiac Diner Sues Olive Garden After Gluten Mix-Up Leads to Medical Emergency (+Video)

    3. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    4. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    5. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,044
    • Most Online (within 30 mins)
      7,748
    Emj 86
    Newest Member
    Emj 86
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.