Jinxed Myself

[IrishHeart]

I'm posting this here because I am not whining (honest) and I don't want to play the "poor me" card, but sonav*&^^%, I'm POed and I want to say it in this section where the silly people lurk and they will laugh me out of it.

It took me a full 11 months post DX before I said one day to my hubs, "OMG! This is the best I have felt in 5 years. If it weren't for the bone,joint,muscle,nerve pain, I'd be golden..." That was December 1st.

Then, 4 days later, on our anniversary, I took a leap of faith and we went out to eat. Mind you, this is my first time in a "regular restaurant" (I only eat at a dedicated gluten-free cafe near us, run by a celiac.)

But, this is one of our favorite places to go. I have missed it. They are supposedly very good about accommodating food allergies/intolerances.

Dinner was fabulous!!! Roasted duck w/pear chutney, sweet potato puree, fresh green beans and flourless chocolate cake. I ate every bite. Not bad for a girl who could barely choke down water and rice for many weeks last year. I was in heaven!!!

The meals are marked gluten-free and all allergens and GLUTEN are listed clearly.

Felt safe making my choice and the server was celiac-savvy.

Except...the desserts. No ingredients listed, but one did have a big gluten-free next to it. What can go wrong with flourless cake??

I have been sick ever since.

Bad. All my pre-DX symptoms, in full force and I could just cry. Instead, I wrote to the manager and left a message for the chef explaining why flourless does not guarantee gluten-free. Where did the cake come from? The woman who answered the phone today said she did not think they made the cake..."Some bakery makes it."

Moral of the story? Should have kept my trap shut. Jinxed myself.

Darn it, I was on a 4 day roll there....

ah well, this too shall pass... thanks for listening.

[Lisa]

I'm posting this here because I am not whining (honest) and I don't want to play the "poor me" card, but sonav*&^^%, I'm POed and I want to say it in this section where the silly people lurk and they will laugh me out of it.

It took me a full 11 months post DX before I said one day to my hubs, "OMG! This is the best I have felt in 5 years. If it weren't for the bone,joint,muscle,nerve pain, I'd be golden..." That was December 1st.

Then, 4 days later, on our anniversary, I took a leap of faith and we went out to eat. Mind you, this is my first time in a "regular restaurant" (I only eat at a dedicated gluten-free cafe near us, run by a celiac.)

But, this is one of our favorite places to go. I have missed it. They are supposedly very good about accommodating food allergies/intolerances.

Dinner was fabulous!!! Roasted duck w/pear chutney, sweet potato puree, fresh green beans and flourless chocolate cake. I ate every bite. Not bad for a girl who could barely choke down water and rice for many weeks last year. I was in heaven!!!

The meals are marked gluten-free and all allergens and GLUTEN are listed clearly.

Felt safe making my choice and the server was celiac-savvy.

Except...the desserts. No ingredients listed, but one did have a big gluten-free next to it. What can go wrong with flourless cake??

I have been sick ever since.

Bad. All my pre-DX symptoms, in full force and I could just cry. Instead, I wrote to the manager and left a message for the chef explaining why flourless does not guarantee gluten-free. Where did the cake come from? The woman who answered the phone today said she did not think they made the cake..."Some bakery makes it."

Moral of the story? Should have kept my trap shut. Jinxed myself.

Darn it, I was on a 4 day roll there....

ah well, this too shall pass... thanks for listening.

I am so sorry that you are feeling poorly! But, you felt good enough to join the world of the living and you will do that again. So it's maybe one step forward and one back....it all progress. That's a good thing!!!!

You're on a good road Irish!

[kareng]

If you like, you can start a blog here and give us hour by hour poop reports. Perhaps a flow chart of symptoms? ( but not a pie chart as you aren't up to pie yet).

I hope you feel better soon.

[Marilyn R]

I am so sorry that you are feeling poorly! But, you felt good enough to join the world of the living and you will do that again. So it's maybe one step forward and one back....it all progress. That's a good thing!!!!

You're on a good road Irish!

Great attitude and response, Lisa.

I wish you a speedy recovery, Irish! Hope you feel better soon.

[IrishHeart]

I am so sorry that you are feeling poorly! But, you felt good enough to join the world of the living and you will do that again. So it's maybe one step forward and one back....it all progress. That's a good thing!!!!

You're on a good road Irish!

Thanks, Lisa.

I know it's temporary but gee whiz

(I'm being "mild" in my speech here )

it's frustrating to lose another week of my life in gluten-induced hell.

My friend says her road and mine are similar (she has MS) We never quit and our progress may be slow, but it's steady...like the tortoise.

And as I recall, he won the race..yes?

Yes.

Thanks for the support. It truly helps!

Cheers, IH

[IrishHeart]

If you like, you can start a blog here and give us hour by hour poop reports. Perhaps a flow chart of symptoms? ( but not a pie chart as you aren't up to pie yet).

I hope you feel better soon.

:lol: Thanks, K!!

Honest, the poop thing is the least of my worries. It's the "gluten head" and agitation/insomnia/extra joint/nerve pain I can't stand....I get a whole mix of fun stuff with gluten!

and really, the "poop diaries" would just be another yawn fest to you guys--been there done that, right?? :lol:

[IrishHeart]

Great attitude and response, Lisa.

I wish you a speedy recovery, Irish! Hope you feel better soon.

Thanks, Marilyn!

I know --as my Dad would say "this too shall pass"

I swear, if it were not for my sense of humor, I'd have taken a swan dive off the nearest cliff years ago.

[kareng]

and really, the "poop diaries" would just be another yawn fest to you guys--been there done that, right?? :lol:

Needs vampires to be interesting literature right now. Maybe if you added a love triangle between a vampire, werewolf & a human? Maybe if you turned into a werepanther when glutened? Sent Vampirates after the restauraunt?

[IrishHeart]

Needs vampires to be interesting literature right now. Maybe if you added a love triangle between a vampire, werewolf & a human? Maybe if you turned into a werepanther when glutened? Sent Vampirates after the restauraunt?

:lol: oh, I turn into a she-devil all right. Gluten makes me "grouchy/sad"--not at all my personality. I COULD take someone's head off right now--one big bite--then burst into tears.... an overly-emotional vampire, for sure. Yikes.

:lol: it's not funny ha ha -- but funny nonetheless. Thanks.

[Marilyn R]

Pamper yourself tonight. Long soak in the tub with peppermint oil and epsom salts/baking soda. A few sips of Irish Whiskey or Gran Marnier. Drip a couple of drops of peoppermint oil an a tissue and stick it over a lamp in your bedroom before you soak.

Its taking me right around 6 days now to recover. You'll be yourself in a bit. Hope that helps, and once again, good luck!

[IrishHeart]

Pamper yourself tonight. Long soak in the tub with peppermint oil and epsom salts/baking soda. A few sips of Irish Whiskey or Gran Marnier. Drip a couple of drops of peoppermint oil an a tissue and stick it over a lamp in your bedroom before you soak.

Its taking me right around 6 days now to recover. You'll be yourself in a bit. Hope that helps, and once again, good luck!

Those sound so good (sadly, I can't sit in a tub with my neck/back) and my stomach is BURNING so, no booze right now (bummer, huh?!)

but I appreciate the thoughts! You're a doll.

I'm a week post- glutening today and it's starting to lift.

Looks like I'll live

[Darn210]

It's the "gluten head"

Makes me think Medusa . . .

Is this what gluten head looks like?

[IrishHeart]

EXACTLY!!!!!!!!!!!!!!!!!!!!!!!!!!

[Korwyn]

@IH

I'm so sorry, but I'm glad that you felt well enough to give it a shot. I'm just glad that you seem to be the kind of person who won't let this keep you from trying again!

Needs vampires to be interesting literature right now. Maybe if you added a love triangle between a vampire, werewolf & a human? Maybe if you turned into a werepanther when glutened? Sent Vampirates after the restauraunt?

What about a vampire who can only drink blood from people with IgA antibodies ? So the werepanther could go through a horrible existential crisis trying to decide if they should eat gluten for their vampire ?

[IrishHeart]

@IH

I'm so sorry, but I'm glad that you felt well enough to give it a shot. I'm just glad that you seem to be the kind of person who won't let this keep you from trying again!

What about a vampire who can only drink blood from people with IgA antibodies ? So the werepanther could go through a horrible existential crisis trying to decide if they should eat gluten for their vampire ?

Thanks, Korwyn.

I am a warrior princess. I fought hard to get well after being ill for so long and I refuse to let myself become paranoid about eating out in the world. I made the restaurant aware of what happened and next time, no dessert for me.

Just stinks because I am still feeling the effects a week later and my Christmas tree is sitting here stark naked and looking at me like, well? can I get a piece of tinsel or something??

[GFinDC]

Ha, that tree needs some popcorn strings, or some popcorn ball ornaments I think. Don't forgget to add some nuts to the popcorn balls too. Can you add rum to popcorn balls? Karen? Jestgar? Peopter? Mlee? Lowie? One of them will surely know. Or maybe even help if there is rum around.

On my 7th day after some peanuts that are marked with nothing but peanuts, peanut oil and salt myself, I don't get the same symptoms you do though IH. For instance, I get garter snakes not copperheads. Much more civilized! Or are those asps?

Here's a little poem (a term used loosely) I wrote recnlty about our lovely glutening symptoms.

Ouch! (pain)

Ouch ouch ouch and ouch is what I say. ouch and ouch and ouch too.

ouch. is what I say. Ouch.

Things just go by me and go bye me and ouch.

Things go by.

ouch.

So what.

Ouch.

I don't care.

ouch

Bye

Cool.

Ouch.

I am thinking about trying Zantac myself, to see if it helps at all. Aspirin too. Get well!

[IrishHeart]

Here's my haiku.

Gluten, you bugger.

Hit me hard.

But I will rise up.

Much better today. Thanks guys.

Life goes on.

[AVR1962]

Goodness, sorry to hear IrishHeart! Do take care and don't be too hard on yourself.

[Korwyn]

Wheat, Barley, and Rye

All these and more grains as well

Finally to be free

IrishHeart once again

We all desire her well now

Better she shall be

[Lisa]

Wheat, Barley, and Rye

All these and more grains as well

Finally to be free

IrishHeart once again

We all desire her well now

Better she shall be

What talents among us!

[IrishHeart]

Goodness, sorry to hear IrishHeart! Do take care and don't be too hard on yourself.

oh honey, I am not beating myself up at all....I would like to beat up the people who prepared the flourless cake and said it was gluten-free when it was not. I made my concerns known to the restaurant--both the manager and the chef--via email and phone messages. I said I am thinking this flourless cake was not made in-house? if so, the bakery where you purchsed it from is cross-contaminating it and you should not list it on the menu as gluten-free. No "wheat flour" does not mean it is gluten-free!

The chef called me today. He was extremely apologetic and offered to prepare me a special meal. (this is an upscale place and I am thinking , sure why not?) He wants to meet me and wants me to see the special gluten-free area and gluten-free pastas, etc. in the kitchen. He said we ARE very careful in the kitchen--regarding all food allergies. We work so hard to do this right. I said I understand and appreciate that. I do not think it was YOU or your food prep...I think it was the flourless cake--is it from an outside bakery?

He said "OH NO! It is from a local bakery. ONE THAT MASS PRODUCES all KINDS of BAKED goods." I said...that's the problem.

He thanked me for telling them and said they would pull it from the menu. He felt really bad and asked me all kinds of questions about celiac.

All in all, I felt as if he were trying to make amends. I was very polite (of course ) and thanked him for offering celiacs/GIs options for dining out.

I felt good that I spoke up. I did not want others getting sick too.

[IrishHeart]

Wheat, Barley, and Rye

All these and more grains as well

Finally to be free

IrishHeart once again

We all desire her well now

Better she shall be

Bravo, Bravo!! Thanks, K!!! Loved it!!

[AVR1962]

oh honey, I am not beating myself up at all....I would like to beat up the people who prepared the flourless cake and said it was gluten-free when it was not. I made my concerns known to the restaurant--both the manager and the chef--via email and phone messages. I said I am thinking this flourless cake was not made in-house? if so, the bakery where you purchsed it from is cross-contaminating it and you should not list it on the menu as gluten-free. No "wheat flour" does not mean it is gluten-free!

The chef called me today. He was extremely apologetic and offered to prepare me a special meal. (this is an upscale place and I am thinking , sure why not?) He wants to meet me and wants me to see the special gluten-free area and gluten-free pastas, etc. in the kitchen. He said we ARE very careful in the kitchen--regarding all food allergies. We work so hard to do this right. I said I understand and appreciate that. I do not think it was YOU or your food prep...I think it was the flourless cake--is it from an outside bakery?

He said "OH NO! It is from a local bakery. ONE THAT MASS PRODUCES all KINDS of BAKED goods." I said...that's the problem.

He thanked me for telling them and said they would pull it from the menu. He felt really bad and asked me all kinds of questions about celiac.

All in all, I felt as if he were trying to make amends. I was very polite (of course ) and thanked him for offering celiacs/GIs options for dining out.

I felt good that I spoke up. I did not want others getting sick too.

Nice offer on the part of management. Good for you and good for the positive reaction of the staff. By the way, what is a flourless cake? I have not heard of this.

[sa1937]

By the way, what is a flourless cake? I have not heard of this.

A flourless chocolate cake is to die for! My gluten-eating friends loved it and asked for the recipe. Here's one recipe to give you an idea from Open Original Shared Link.

[IrishHeart]

My pal Sylvia has already answered the question, but I was going to say "it's chocolately heaven in your mouth" One little sliver is sufficient to keep you buzzing for an hour.

There are several variations of it, but the one she has posted is the real deal. I have made one with almond in it as well.

(why am I drooling all of a sudden???.....)